r/Cancersurvivors Dec 28 '19

Welcome to r/Cancersurvivors

53 Upvotes

I mod of this subreddit.

I am 26 years old and had Osteosarcoma and Ewingsarcoma and I have survived them both.

Ever since I have been done with chemo its been rather hard to get the ground back under my feet but I've been doing the best I can.

I started to look for communities for people who have gone through what I've been through. One where we can help each other and others become better and help each other who gone through such horrible things.

I started looking and found this subreddit. It for all my understanding was abandoned and no one was running it.

I believe this page needs to be here for the people who survived, for the people who helped people survive and for hope to those who are fighting for our survival

I would like to take some time to listen about what you would like to see here on this subreddit. To talk to some of you and do what I can to make this community a place where survivors can go and have people understand how they feel.


r/Cancersurvivors Jun 25 '24

Please don't ask if you have cancer

60 Upvotes

My goodness. This is a survivor Reddit. We all had cancer and our lives got fucked over significantly. And some of you all think it's cool to just post pictures of your body and ask us if we have cancer. This sort of thing can seriously trigger our ptsd. Go to your doctor and leave us alone.


r/Cancersurvivors 4h ago

Épisode 24 : Marie

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1 Upvotes

Nos parcours de vie sont tous différents : en appréhender la richesse et la diversité est souvent source d’inspiration et de motivation. “Une signature et vous” vous est ainsi dédiée ; chaque mois, nous découvrirons ensemble le récit de celles et ceux qui, ayant décidé de suivre leur coeur, ont choisi la voie de la résilience… Au programme aujourd’hui : Marie (@la table du meunier ). . Interview et analyse de signature : Marie Laure Pace Réalisation, montage, musique et générique : Jérôme Pace . Contact: Marie Laure Pace : ulrickus@hotmail.com/ @demain_est_un_autre_jour

. Marie Facebook : @la table du meunier . Restaurant La table du meunier 42, cours Hyacinthe Bellon 13990 Fontvieille 04 90 54 61 05 . L'interview se trouve sur YouTube sur @unesignatureetvous .

unesignatureetvous #cancer #analysesignature #interview #passion #coeur #resilience #marielaurepace #jeromepace #signature #croireensoi #sourire #aimerlavie❤️ #toutestpossible #oser #maladie #sebattre # restaurant#soutien #rêve #famille #chimiothérapie #opération #guérir


r/Cancersurvivors 21h ago

My Unexpected Journey from Aspiring Nurse in Germany to Osteosarcoma Survivor in India, and Now a Battle with Neuropathy.

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2 Upvotes

r/Cancersurvivors 3d ago

Family of Survivor WTF #MSKCC ftw

6 Upvotes

So She made it. 5 years, 2+NED 5 years ago, Kemeny told a close relative that she didn’t think she could save her. Yet she made it. And is flourishig. Yay science Why is this so fucking hard to process?


r/Cancersurvivors 4d ago

I was 21, a brand-new mom, and told I had 18 months to live after a mesothelioma diagnosis… 18 years later, I’m still here. AMA!

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6 Upvotes

r/Cancersurvivors 5d ago

Upper GI cancer - Feb 25 now metastasis in lower GI

3 Upvotes

Hi all, mum was diagnosed with rectal cancer 18 years & after surgery with permanent stoma she won that battle. In Feb this year she was informed f tumour to upper GI which she completed a 10 day radiation course & it seemed to have shrunk. A few weeks ago she was in tremendous pain to back radiating to the side near kidney. After having conflicting results from MRI & PET regarding metastasis to T10-T12 they confirmed this was likely to be from the radiation rather than sister markings to tumour. They then completed an US of her stoma hernia & later biopsy which confirmed metastasis in lower GI - 3 tiny markings in nodes. Any one have any great results from chemo, immunotherapy, targeted therapy, etc? What the prognosis here? Miracles do happen I am a true believer!!


r/Cancersurvivors 5d ago

Need Advice Please GLP-1 after triple-negative breast cancer? Any experiences

2 Upvotes

Hi everyone, I’m a 39F (turning 40 soon), an architect, and a recent triple-negative breast cancer survivor. I finished chemotherapy in May 2025 (AC + Carbo/Taxol, followed by radiation). During the year before diagnosis and especially during treatment, I gained over 55 lbs (25+ kg). Right now this weight feels like another heavy burden on my health, both physically and emotionally. I’ve been reading about GLP-1 therapies (Ozempic, Saxenda, Mounjaro, Wegovy, etc.) and I’m really interested in starting them — not just for weight loss, but because of the overall health benefits (insulin resistance, reduced inflammation, long-term risk reduction). My main concern: Is it safe to start GLP-1 soon after completing TNBC treatment? Has anyone here (especially cancer survivors, or ideally TNBC) had experience with doctors prescribing GLP-1 in this context? What were your doctors’ main concerns or conditions before approving it? I know this decision has to be discussed with my oncologist and endocrinologist, but hearing real-life experiences would mean a lot to me before I push this conversation forward with my medical team. Thank you so much for sharing any insight or personal story 💜


r/Cancersurvivors 7d ago

Online Therapy For Cancer Patients/Survivors

16 Upvotes

Hello! I am curious to learn where people find therapy for survivorship, are there any good online resources? I've tried betterhelp, didn't work well for me. Really struggling with a lot of stuff right now.


r/Cancersurvivors 7d ago

Need Advice Please Reclaiming my life feels like hell emotionally and physically. /Rant

9 Upvotes

I feel ashamed of how weak I've become. I'm up to lifting 30lbs on my own; however, I get tired far too easily. It's really frustrating because I used to lift 120lbs three-string bales of hay like no tomorrow and throw them on trailers. Long story short, I survived a form of Osteosarcoma and have bone lesions throughout my body. I am strong for my other half who has been there for me helping me do things, but I sometimes need to go sit outside then stare into oblivion away from everyone. I asked my doctor if I could use the gym reserved for in-patients and hospital employees for some weight training but she didn't know if it were possible. I don't want to go to the gym near here and feel like utter crap because just three weeks ago I struggled to lift a 10lbs barbel at the big box store with one arm. I "look" normal, like I should have no problems. What do I do? How do I reclaim my life? This feels like hell.


r/Cancersurvivors 8d ago

Port placement

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2 Upvotes

r/Cancersurvivors 9d ago

🌱 Supportive Discord for People Recovering from Illnesses – Let’s Heal Together

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2 Upvotes

r/Cancersurvivors 9d ago

Colon cancer

2 Upvotes

Let’s bet this shit !!!


r/Cancersurvivors 10d ago

Family of Survivor Mom is a Stage 2 Cervical Cancer Survivor. All ok except she's not walking again.

14 Upvotes

Mom (72) got diagnosed with Stage 2 Cervical Cancer in 2023. Fortunately, insurance covered all her treatments. She underwent 6 cycles of chemo, 28 days of radiation therapy, and 4 sessions of brachytherapy. All of these were done in 4 months.

BTW, she already had Type 2 Diabetes before this and the chemo meds made her blood sugar levels way above her usual high levels. She's cancer free for a year now but diabetes doctor told us the hard truth that the chemo meds did destroy her nerves. She will not walk ever again.

She's devastated and we're heartbroken. Sometimes, I ask my husband what would've happened if we only opted for a less aggressive treatment plan for her. Will she be in a better state right now?


r/Cancersurvivors 9d ago

Alcohol

3 Upvotes

I’m high risk of getting cancer (have lynch syndrome), already had colon cancer when I was 26. I keep telling myself I won’t drink but I always slip up a few times a year. I was REALLY good about it this past year until a few months ago.

I know alcohol is carcinogenic and increases your risk. But if I decide to drink socially and to just wind down (let’s say 3-4 times a month) am I screwing myself over? This past year has been extremely hard and stressful for me and my family so I think about drinking to take the edge off. I can’t help it anymore


r/Cancersurvivors 11d ago

Becoming a Dad Significantly Improved My Health Anxiety

7 Upvotes

I was diagnosed with leukemia when I was 20 and had one conversation about freezing my sperm... and no conversations after that. The urgency was on treatment, so it's no one's fault, but it would have been a nice thread to pull at.

For the next 15 years, I had (at times, crippling) health anxiety, and if I'm honest, I lost years of enjoyment sitting in fear of what "might" come back or happen in the future.

After finding out I'd be having a daughter (which was a serious surprise after the treatment I had), I was terrified my health anxiety would a). get worse and b). get in the way of me enjoying parenthood.

Weirdly, being a Dad has significantly REDUCED my health anxiety!!!

Maybe it's because I'm just too busy to get lost in my own thoughts. Maybe it helped rewire my brain to focus more on someone else, which lessened the spotlight I've shone internally. I have no idea - but I'm thankful for it.

Has anyone else noticed their health anxiety change before vs. after becoming a parent?

I'd love to hear other survivors' perspectives to get a sense of what might be ahead.


r/Cancersurvivors 11d ago

Awesome Beating cancer twice helped me face my food aversions

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2 Upvotes

r/Cancersurvivors 13d ago

A COMPLETE TESTICULAR CANCER STORY

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1 Upvotes

r/Cancersurvivors 13d ago

DPD Before Chemo

3 Upvotes

DPD stands for Dihydropyrimidine Dehydrogenase, an enzyme in your body that helps break down the chemotherapy drug 5-fluorouracil (5-FU) and related medicines (such as capecitabine and tegafur).

🔹 Some people are born with a DPD deficiency (partial or complete). If you have this deficiency, your body can’t process these drugs properly, which can cause severe, even life-threatening side effects from chemo.

🔹 The DPD test is usually done before starting chemotherapy with 5-FU or capecitabine to see if you’re at risk.

There are two main types of tests: 1. Genetic testing (DPYD gene test): Looks for mutations in the gene responsible for making the DPD enzyme. 2. Enzyme activity test (functional): Measures how active the DPD enzyme is in your blood.

👉 In short: A DPD test helps doctors figure out whether it’s safe for you to get certain chemo drugs, or if the dose needs to be reduced/changed.


r/Cancersurvivors 13d ago

Coworker faking Cancer?

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0 Upvotes

r/Cancersurvivors 14d ago

It’s back!!!

13 Upvotes

I wanna talk about this but am not quite ready to tell my friends about it, but the cancer is back. Well, I don’t know if I would say “back” considering it’s a different type of cancer. But I have cancer again.

Had Rhabdomyosarcoma when I was 3, located in my nose. I’m 26 now, and had a routine eye exam done back in May. The scans they did showed something weird on the back of my right eye, they referred to a specialist, who referred me to another specialist, which is where I spent my day today and found out I have Melanoma on my eye.

I was NOT anticipating this at all. Im not experiencing any negative symptoms. Good news is the prognosis looks good. No chemotherapy, just radiotherapy. Will likely fuck up my right eye’s vision but not horrifically. The treatment has a 98% success rate.

When they told me I felt like I was dreaming. I couldn’t understand most of what the Doctor was saying as she did the dictation but I did understand “blah blah blah Melanoma blah blah blah.”

Anyway, I just want to vent because i’m annoyed that this is the rest of my life. Not this cancer or this treatment in particular, but the being scared of it coming back. Even when i’m done with this treatment and it’s likely successful, I get to have follow-up appointments and scans every month where I get to be scared as fuck that it’s back. I didn’t really experience that fear the first time around because I was so young and just didn’t really get it. But now I do and it’s way scarier lol.


r/Cancersurvivors 14d ago

Anyone had these treatments

3 Upvotes

Hello. Mom was prescribed Cisplatin, Gemzar, and Ketruda for her Stage 4 gallbladder. Anyone have experience with any of these? How bad are the side effects? Signed, scared Daughter.


r/Cancersurvivors 15d ago

Opinion on Chemotherapy - UPS Sarcoma

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2 Upvotes

r/Cancersurvivors 15d ago

Need Advice Please Endometrial Cancer Stage IV Metastasis

1 Upvotes

Hi All, I have previously discussed about my mom’s condition on this forum and received emotional support and crucial information related to the cancer and treatment. I realised she is not alone in this journey and that there are many battling the same.

Current scenario: My mom has completed her 6 cycles of Chemotherapy (Carbo+Platin) and is taking Targated Therapy (Bevacizumab) in every 21 days interval she as is MSI-Low and Her2 (-)ve. CA125 dropped from 1214 to 15. We have also done Germline BRACA and HRD testing for her. And she came out as BRACA-/HRD+

Next line of treatment as per doctor: 1. Hold Bevacizumab for sometime 2. Take Olaparib (PARP Inhibitor) 3. Perform FAPI PET CT ( Earlier PET CTs were FDG) 4. Perform biopsies from distant organs to where the cancer has spread. (She was diagnosed with stage 4 metastasis with spread to Omentum, Peritoneal, Mediastinal, and Supraclavicular lymph nodes). Earlier biopsy sample was collected only from lower abdomen. 5. If the biopsies from distant organs are (-)ve -> Complete uterus and fallopian tubes removal via surgery 6. If the biopsies from distant organs are (+)ve -> PIPAC surgery

If suggest if this approach is correct and if anyone here is has experienced anything similar? Will this increase the number of years for her?

Also there is a notion among my family members that SURGERY will increase the rate of cancer spread and might lead to the END sooner than expected. Is this true?


r/Cancersurvivors 15d ago

Need Advice Please Endometrial Cancer Stage IV Metastasis

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1 Upvotes

r/Cancersurvivors 18d ago

From cancer diagnosis to college drop-off: a mama survivor’s full-circle moment.

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40 Upvotes

Last week, I dropped my firstborn son off at college.

There are moments in life that feel like full circles this was one of them. Eighteen years ago, I was told I had peritoneal mesothelioma, a rare and aggressive cancer, when I was just five months postpartum. Back then, the future felt so uncertain. Would I see my baby grow up? Would I get to be here for milestones like this?

And here I am. A mama cancer survivor, standing in a college dorm room hugging my son tight, while three other little (not so little anymore) siblings remind me that life didn’t just give me a second chance it multiplied my blessings.

I cried like a baby in the car afterward. Because it’s bittersweet. Because it’s beautiful. Because it’s proof that God still writes stories of thriving, even when the doctors said the odds were against me.

To every parent sending a child off, and to every survivor wondering what the future holds: take it from me you may not know how the story will unfold, but you can still hold on to hope. One day you’ll look back and realize you lived into the very moments you once prayed for.