For years after her diagnosis we put up with mediocre cauliflower crust pizza from the store. Earlier this year I decided she should have access to restaurant quality gf pizza. After some trial and error, I’ve gotten pretty good at recreating her favorite from her go-to pizza place pre-diagnosis.

I just got diagnosed and am wondering what everyone would suggest beyond stop eating gluten. I already eat healthy and am willing to spend money anywhere there is benefit, to either increase health, repair gut, or just make this transition easier. I started a pre/pro biotic and obviously stopped eating gluten. Are there any other quick wins people would recommend? Dietitian? Specific probiotic? Pre cooked meals?

Hi everyone! I hope that you're doing well today. I'm reaching out with a question about celiac testing.

To make a very long story significantly shorter, I suspect that I may have undiagnosed celiac disease or non celiac gluten sensitivity.

This month alone my symptoms have been the worst that they've ever been. This was until I took up a gluten free diet recently. (After which my symptoms and overall health significantly improved!)

This led me to research the testing methods for celiac. Learning that you need to eat gluten for several weeks in order to have accurate results made me wonder if there are health/other reasons why it necessary to differentiate between celiac and NCGS. I'm personally unwilling to begin eating gluten again for a test unless there's a compelling reason to do so.

I'm wondering what your experiences with this have been. Thank you for any and all input, and have a wonderful rest of your day/evening :)

I also apologize if this question has an obvious answer that I'm missing. I'm very new to this 💛

Hello everyone,

I was diagnosed with celiac disease six months ago. Since then, I have been eating a completely gluten-free diet.

Here in the forum, you often read about the positive effects of the diet. However, I haven't noticed much yet.

My symptoms before the diagnosis were diarrhea and frequent toilet trips (about 3-5 times a day).

Yes, that has improved a little now, with diarrhea only occurring every 2 days and 2-3 trips to the toilet per day.

But it's not back to normal like it was before.

Is that as expected? You often read here that everything improves within 1-2 weeks of starting a gluten-free diet ...

AirBNB, hotel suite, or efficiency unit, do you trust cooking with utensils that may have been used with gluten foods? Are there any you trust more than others?

Long story short, highly suspect gluten is problem in my life for years. When I cut it out I feel good. When I add it back - which I occasionally do frequently it can make me feel bad - brain fog, aches mornings, pins and needles.

Now they tell me before the tests I need to eat gluten daily for a month.

Can I just avoid the test and start living like I have celiac or is the test necessary?

I had undiagnosed coeliac for over 10 years and quite extensive damage, so I’m expecting to be in recovery for quite some time. However I’ve been gluten-free for 1.5 years now and still feel ongoing inflammation and pain in my intestines. I’ve removed processed foods, dairy and oats, don’t eat out, trialled low FODMAP (made no difference), eat mostly whole foods and live in a gluten-free house so I’m very sure there’s no cross-contamination happening. My latest blood tests also support this.

What I’m wondering is if there might be some gut-healing supplements or support that people have had success with to help with the healing? L-glutamine comes up a lot, although I’ve not yet tried it.

I always love going to this place, 100% GF kitchen and some really fantastic food. Their sister restaurant in Austin called Bulevar is also 100% GF and makes some great food too.

Pictured: Queso fundido, beef tenderloin tacos, carne guisada flautas, crab relleno on a smoked cornbread and a house spicy marg

Anybody have a celiac flare up due to this gluten free hot sauce? I wonder if it’s just that spicy food upsets me and it’s not a celiac flare up. Does it still have harmful effects?

So I've had celiacs now for about 5 months and I have to say I beat myself up way too hard about this whole thing. I guess reading this thread I have big standards but the fact of the matter is I have to be honest in this regard...

I've LED an indulgent lifestyle when it comes to food. Haven't had the healthiest relationship with it, for sure and emotional eater. Growing up that was very much Central of our lives was food. My dad has binge eating disorder and though I don't think I'm that bad to that degree I do believe it was an unhealthy relationship with food.

I had lactose intolerance first and with that intolerance it wasn't like avoid all dairy forever. I can tolerate yogurt in certain kinds of cheese but I absolutely cannot tolerate buttermilk for example. I could accept that because there's certain things I have to give up but at the same time they were also certain things I could still have.

Now of course it's no gluten forever. And a lot of my frustration comes from the fact that I can't seem to hold myself to account. Granted most of my gluten exposures have been accidental because of my lack of where gluten hides under every name. But some of it was because I had a rough day and I didn't feel like baking a baked good that was gluten free so I had a gluten one.

Giving up baked goods has been the hardest thing for me. Pasta not really a big deal I don't really care that much. But baked goods just kills me. Literally it could kill me and yet that is not enough to make me stop. I'm going to visit a dietitian but part of me thinks I should go visit a therapist at the same time because I know part of this is mental of course.

And it's frustrating because I know I could have like candy and stuff but it's just a baked good is so satisfying. And I beat myself up so hard when I knowingly do it. I've tried to think about what it was going to do to me and I still do it anyway and my body reacts very severely like within an hour or so. The feeling like I'm going to vomit the feeling like I'm going to s*** my pants. It's terrible and I feel so guilty. I really wish I could stop. Desperately to stop.

Hi! So there is a place nearby me that sells a bunch of celiac GF stuff, including a pancake mix- the recipe on it sucks but what it is: is the best GF flour ever!!!! Made it how I would’ve made gluten pancakes (lower temperatures for cooking tho since GF stuff likes to burn) honestly best pancakes I have had EVER. Doesn’t taste GF but I know for a fact they are. Blueberries, raw honey, free range eggs from friends with farm ❤️

If anyone is interested it’s in Onrus South Africa

I have been diagnosed Celiac for almost two years now, following a gluten free diet the whole time. I am experiencing intense abdominal pain, constipation, and horrible gas after almost every meal for the past week, but the catch is that I KNOW I have not been glutened as I have only eaten at home or places I feel very confident that I am safe from cross-contamination. I would say I have also been experiencing ongoing fatigue, which is a symptom I usually get from glutening. I am feeling frustrated because- for the most part- I feel like I have a really good grasp on my Celiac and take good care of myself. Obviously, there is still a lot to learn...

So, my question is- how do I interpret this pain? Perhaps I was glutened a while ago and my body is still messed up? I have seen people talk about having stomach pain from consuming any food after being glutened. Do I start down the path of cutting out additional food to see if I have additional sensitivities? Or seeing if I have another autoimmune disorder? It's feeling impossible to even know where to start to get to the bottom of this since there are so many possibilities of what it could be.

I've struggled to figure out how to explain what I am experiencing, so if similar posts have been made, it would be so helpful if people could link them here, since I couldn't find exactly what I was looking for.

Any advice or personal stories are appreciated.

Hey everyone, I’m currently trying to figure out whether my symptoms might be connected to gluten intolerance or histamine intolerance. I often get migraines with strong light sensitivity – but not right after eating. The symptoms usually show up with a delay. For example, I might eat pizza or a burger in the afternoon and then wake up in the middle of the night with a migraine, light sensitivity, and a sense of inner restlessness. This pattern repeats itself quite reliably.

I’ve also noticed that my stool turns yellowish after these meals (not loose, but definitely lighter in color) and I generally feel unwell. Sometimes these phases also come with inner restlessness or even panic-like feelings, which makes the whole situation even more stressful.

My clear triggers are: pizza, burgers, beer (even non-alcoholic pilsner), and Barilla Pesto Rosso. After these foods, the problems almost always occur. What confuses me is that I sometimes tolerate whole-grain bread quite well – often without any issues. On top of that, very carb- and fat-heavy meals tend to make me feel extremely tired and drained.

So I’m torn: on the one hand, a lot of this points to a gluten reaction (celiac disease or gluten sensitivity). On the other hand, it doesn’t explain why I can sometimes tolerate whole-grain bread. At the same time, histamine (from tomatoes, cheese, beer) and the combination of carbs and fat could also be playing a role.

Has anyone experienced this pattern – migraines and light sensitivity delayed after certain foods, but not after all gluten-containing products? Does this still fit with celiac disease, or does it sound more like gluten sensitivity or histamine intolerance?

Your body your choice, but whyyyy

Why is there no standard tax deduction for people diagnosed with Celiac Disease? The additional costs to our grocery bills can be considered a medical cost. While we are allowed a deduction, “the deduction applies to the incremental costs of gluten-free foods and other related medical expenses that exceed 7.5% of your Adjusted Gross Income.” This requires keeping track of your grocery spending, and somehow figure out the difference of what you would spend if you didn’t have to buy strictly gluten-free, and calculating the difference. That’s requires a lot of time and energy. What should happen is an economists should calculate the average additional costs of a gluten-free diet, and that cost should be an allowed and automatic tax deduction. All other medical treatments are tax deductible, why not Celiacs’ diets? Any thoughts?

I have been gf for 10 years and have only been cross contaminated. I was served gluten on Thursday unknowingly and ate a lot. I had stuff coming out both ends for an hour or two. Ever since I’ve had brain fog, aches and feeling tired. When will this get better?

Traveled for the 1st time in a long time. I made a snack box to go. Everyone was jealous. What are your go to travel snacks?

Amazon has gluten free Snyders snack packs - https://amzn.to/4oRntD0

I recently purchased a new Webber grill and have been sick twice in the ~month I’ve owned it. There’s never been any gluten cooked on it or even in its general vicinity, but both times have been right after eating grilled foods. My husband uses the Barbecue Daddy and ik Scrub Daddy’s damp dusters have wheat starch, but it’s so clearly labeled on their website, I’d hope they’d do the same if any other products had issues. wondering if anyone else has had problems with this product…feel like I’m losing my mind! Thanks for any suggestions

I didn’t buy them today. But they sound delicious!

My boyfriend has celiac and I was looking to find gluten free alternatives to Indian spices - a bunch of ones I use everyday tend to contain asafoetida and wouldn't be safe for him. Would love some recommendations (especially for Kashmiri chili powder)!

We're in Ontario, Canada.