r/CerebralPalsy 5d ago

Give me some feedback guys!

24 days ago I posted about launching my podcast. If you haven't yet you can check it out here: Oops Palsy - YouTube

I'm really blown away with the amount of attention and support it's gained this quickly. I wanted to reach out to see what topics you would like covered. We've touched on the basics and the mental health aspect. We will have our first guest speaker next week for episode 8.

The whole point of the podcast is to give us-all of us, a place to be heard and being a guest on a public platform isn't everyone's cup of tea, but in an effort to make sure we are addressing all concerns in our community, I'd like some feedback on things you would like discussed or addressed on the podcast.

Naturally we avoid politics for obvious reasons. We do plan to touch on financial concerns tho as this is a big part of having cerebral palsy, but we will be saving that for later. If we gain enough traction we plan to look into creating a charity or non-profit to provide assistance but that's a big IF as we are just getting started and we don't know what the future will hold with this journey. ( again it's only been 24 days since we started ) I have big dreams for this but I like to remain practical and realistic.

Let us know what you'd like to see.

Thanks in advance guys, and again thank you all for the support.

8 Upvotes

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2

u/OkTechnology4635 2d ago

I'd like to be on it. How can I apply?

2

u/onions-make-me-cry 5d ago

I'd be interested to see any topics on aging and CP covered, particularly Freezing of Gait. That is by far and away my main problem and concern at this point.

2

u/Poorchick91 5d ago

Thank you, our guest speaker for episode 8 is 75, so perhaps she can provide some insight on that one.

2

u/OkTechnology4635 2d ago

One topic that can be addressed is: CP and legalize marriage. Because of insurance, some of us can't get legally married.