r/CerebralPalsy • u/Initial_Sea9631 • 2d ago

thigh pain

im 19f, first post here. i have cp mainly in my right leg. i wore afos from the time i was probably 2 to my sophomore year of highschool, i just graduated highschool this year. i’m getting new afos as unfortunately my right leg has gotten really bad about dragging and putting my full foot on the ground (it’s been a struggle my entire life) but this past week, ive had pain in my right thigh and it seems to be when i put weight on it. i do stretch my leg at home (when i remember to because the effect of stretching doesn’t really stick per say) and at pt. i brought up the leg pain today to my therapist and they said yeah it could be your hip or something (i forgot what they actually said) but now im spiraling about possible surgery. i’ve also been casted for my new afos about a month ago, they just haven’t came in yet. could someone give advice/tell their experience about going back to afos after about 2-3 years of not wearing them and thigh pain? also also sorry if this is all over the place😅

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u/Long-Ad7047 2d ago

You get Botox

1

u/Initial_Sea9631 2d ago

im supposed to be getting them, however last time i got them, they didn’t really work. i tried to call for an appointment about 6 months ago and they said it’d be up to a year because insurance🥲

1

u/Long-Ad7047 2d ago

You need to tell your doctor. It dosen’t take that long to approve to be honest.

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u/Long-Ad7047 2d ago

Also try dynasplint