I've never ran into this issue before but as I've aged I've struggled to hold a job due to 'not being fast enough' I work in a physically demanding field and have been up and down with these jobs for a couple years now with the result being the same. My speed isn't fast enough for what they need. They don't put it in those words on termination. But it's stressful and kinda disheartening to find another job to maybe work a few months for the same result. Is their a government or any kind of other funding for people with cerebral palsy that I can look into for utilities and rent?

So I turned 30 today it's honestly depressing, I have a lot of friends that I was with the night before and it was fun, but because of my disability I don't feel an adult, I still live with my parents, I finished college my part time job is seasonal, I go out on dates, and I have a ton of friends I'm out all the time, but I don't have a partner rn, that doesn't bother me usually but I'm still trying to figure things out, I still just feel behind does that makes sense

My left shoulder is a Spastic and the pain is driving me insane. Yes I'm on muscle relaxers and get Botox. The spasticity has caused my rotator cuff. It's been this way since 9/11, and can't be fixed, because the spasms would just tear it again.I'm currently taking robaxin and norco as well as lyrica for both neuropathy and fibromyalgia. My Cerebral palsy has caused a litany of health issues. Bladder conditions,, my asthma chronic pain, insomnia, endometriosis. I know my diabetes is genetic, and because I love choxolate. That caused gastroparesis, which means that my stomach won't empty. I'm in so much pain. My left arm tries to mirror the right. It tries to "copy" the right side which makes the smallest activities painful, and at times agonizing. Which, makes things like typing difficult. Also I'm working on a novel and have tons ideas, but the pain is driving me insane. Sorry, I needed to vent and perhaps to get advice. You guys have helped before and very sweet, I could use some internet friends too, I get lonelly too.

My best friend who is deaf and he have Cerebral Palsy since born and he told me he have GERD cause of cerebral palsy which is it true? Cheers.

After years of dealing with one shoe that is way too big I finally decided to purchase two different sized shoes - one for brace and one for non brace. I have searched and can not find a place where could potentially match with someone with opposite shoe sizes - does this exist?

In the business (of having cerebral palsy) I have noticed a lack of books with first hand experience about having CP and I got the idea the other day while listening to the unashamed with Phil Robert (RIP) podcast to maybe write one with my XP with CP.

Am I missing books that were written? What’s the opinion of those types of books? Does the community have a bad taste from it? LMK good or bad.

27F with spastic hemiplegia. Went on 2 dates this month, with two different guys, I THOUGHT ths dates went well. I tried to kinda glaze over the fact that I have spastic hemiplegia, but a set of stairs and trying to cut my food ruined that for me. I could see it on their faces, clearly uncomfortabl; and ive been ghosted. Its discouraging, makes me think that when my dad kept reminding me that "no one wants a disabled wife" when I was younger, he was probably right

Hi, I'm going to get my permit in a month since I just move to Michigan from Florida so I need my new resident address to prove I'm a Michigan resident now before doing the permit. I discovered about my side body could drive in U.S cars last year because before that for 14 years I thought I couldn't drive due to driver being left side so in my mind, the only way I could drive if I was in a country where driver seat was the right side like U.K or Japan. So I would tell people only way I could drive if I were in those type of countries throughout the years. I would take ubers everywhere since that was my transportation in Florida. Last year I decided to look up if right hemiplegia are able to drive which I discovered they could just needed modified car like left pedal and wheel knob. Which now I know but last year wasn't best time since my mother was sick everyday so it was for rely on her to call a disability driving school for me to go in Florida. This year my mother pass away who was my dependence on phone calls due to my speech disorder. So last couple month I decided to move from Florida to Michigan which will be better to drive in since Florida drivers aren't safe to drive around. So right now is the best time for me to get a permit since my mom's side of the family lives in Michigan, so it's easy for me to depend on them to call for me and make an appointment, then do one at the Driver Rehabilitation Specialists' place. Before I'll order a car online to bring to the Creative Mobility group to add left pedal and knob for me. I'm thinking of getting a BMW X7 as my first car after I pass the exams, since I read online that it has auto parking and auto sense with rain, which will be easier for me to have. I just turned 30, so it's the perfect time to do it.

So how did you discover to drive, and what type of adaptive modifications did you need on your cars?

Hi everyone! It's a bit late at night right now for me, but I figured I might as well get this out there while my insomnia is still keeping me awake lol.

To deal with an increase in CP-related pain, I started experimenting with wearing knee sleeves to provide support just a few days ago. I've been alternating between wearing small-sized ones and medium sized ones since it's kind of hard to tell which size is the ideal fit for my legs. It's been less than a week, so I think it's too early to say if I have any definitive results, but I do think they help with relieving pain when I walk a lot during the day. I still definitely have noticeable amounts of pain though, and that's likely because I'm currently in a position where my responsibilities demand that I have to do a lot more walking than I usually do, so my knees have to do a lot of work even with the support sleeves. I have no qualms about continuing to experiment, whether that's buying different kinds of knee sleeves or just testing out the ones I already have even more. But, when I talked to a friend about still experiencing pain after walking even when I wore the sleeves, she was concerned and thought that I should be experiencing more immediate results and be in less pain by now, which worried me.

So, can anyone else who uses knee sleeves let me know if she's right? Am I supposed to be able to feel a dramatic decrease in pain after only a few days of using knee sleeves? Should I try out a different size or style? Or should I just keep going?

Hello! Hope everyone's doing good 😁 I am 28 (F) & have left side Hemiplegia. I work full time in Education as a receptionist (UK) and although I love my job & the people I work with, it's draining me. I left a job in a pre school for a desk based job & it does help slightly as it's less physically demanding, but I still can't help feeling exhausted all the time. I can't ask for work from home days because I'm at the main front desk & I deal with students and parents. Naturally everyone's going to feel tired after work, but the way I'm feeling I can't shake it. I try to power through. I don't have the energy to come home and make dinner & when I do it's straight to bed. My husband takes care of things a lot but I don't like leaving all the house work to him to do alone. I have epilepsy as well, so if I'm too tired I can experience seizures

I feel like as I get older, my cerebral palsy is getting worse and I'm scared for myself. I'm just not sure if it's just me experiencing this? I really thought switching jobs would help with my energy levels but it's not. I just want to sleep🥺 I have thought about part time but right now I'm trying to save as much as I can so we can start a family. My husband is totally ok with me going part time but it's more of a me thing where I want to have more money for myself. Should I talk to HR about the way I'm feeling? Do you think it's worth staying full time or am I running myself down a rough path? Would just like to hear someone else's experience and how they've overcome it. Thank you! X

Hi everyone, I’m a high school student at Sato Academy of Mathematics and Science working on my Senior Capstone project. My research focuses on the challenges people with limited motor skills face when getting dressed.

I would be so grateful if you could share your experiences or professional insights. Here are my main questions: 1. Do you, or someone you know/work with, have difficulty with clothing features like buttons, zippers, or shoelaces? 2. What are some other struggles with dressing that come up for people with limited motor skills? 3. On average, how much time does it usually take to get dressed?

Your responses will help me better understand real challenges so I can design meaningful solutions. Thank you so much for taking the time to share!

I wanted to share this in case anyone is interested in participating in research. It's important to shared lived experience if we want to see change.

Recently I saw a neurologist for the first time in forever (my cp is very mild, so I hadn't felt I needed to seek a neurologist's help until very recently, because of an increase in pain) and for the pain I've been dealing with, he prescribed me a low dose of gabapentin, to take as needed. I've never taken something like gabapentin before, and I'm nervous about the potential side effects. If the side effects are really bad, or I feel like it's not the right medication for my pain, I can just like...talk to him about it and stop taking it, right? I know this sounds dumb but I've never really been prescribed hardcore painkillers like this for my mild cp before. I plan on trying to take my first dose of it very soon just to see what happens, fingers crossed!

I'm a writer, and I used to write romance novels. Now, I'm aunt to 5 Nieces and nephews, (3 girls, 2 boys.) I started working on children's books.

Anyone get tired from taking this medicine. Any tricks to be less sleepy.

My son is 16 months he was a micro preemie and had bilateral grade 4 brain bleeds at birth and has a vp shunt. He was recently diagnosed with cp we knew very early on tho. He has no cognitive delays, although it’s improving very well he is low tone in his torso and neck. He bares weight really well tho and is only tight in his hamstrings. His arms are a mix of low and high tone. He can’t bring toys to his face or pick them up without help but sometimes recently has tried more often to. He has a gate trainer, a stander, tumble form with a tray, and a Firefly Seat to go Chair for travel. Because he has no cognitive delays he gets upset and bored very easily and gets so hard to play and walk and gets frustrated when his body doesn’t do what he wants. I am a stay at home mom so time isn’t really a problem, I don’t have a car tho so going places during the week other then therapy doesn’t happen

i have a couple random questions for people with cp and parents

1.what are your stretching routines, how often, what helps the most especially with your legs? He is in therapy and has a small checklist we do ever morning and mid day but i feel like he would benefit from more then the few small ones they gave us

1. What activities do you do that really benefit you physically and mentally? I am looking to getting a y membership for swimming but i dont have many options near me

2. Mostly for the boys and men. What activities did you and your dad do to bond? My fiancé has a hard time finding things that work bc most of his hobbies aren’t very accessible for our son to participate or do.

3. what is something your parents or someone special do for you that helped a lot with the mental aspects? He just seem frustrated and confused on why he can’t do things and it’s t really old enough to understand that

4. What can i do to prepare him for the world and pre school? anything helps i know he is young now but i want to be as prepared as i can

5. Last question, what activities do you think i could do with him now that would keep him entertained and engaged?

I really struggle with putting on my shoes correctly and I suck at directions. Yet I'm highly educated and bilingual.

I have spastic quad CP but my right side is obnoxiously weaker than my left. I try to use my echelon to exercise but when I'm done only half of me hurts lol

Have you guys found a way to isolate muscles so that your dominant side doesn't take over?

My cp is mild I can do almost any exercise 🙏🏼

Looking for Louisiana severe cerebral palsy to talk to...? Bonus points: if you're over 30, and type with your mouth.

im 19f, first post here. i have cp mainly in my right leg. i wore afos from the time i was probably 2 to my sophomore year of highschool, i just graduated highschool this year. i’m getting new afos as unfortunately my right leg has gotten really bad about dragging and putting my full foot on the ground (it’s been a struggle my entire life) but this past week, ive had pain in my right thigh and it seems to be when i put weight on it. i do stretch my leg at home (when i remember to because the effect of stretching doesn’t really stick per say) and at pt. i brought up the leg pain today to my therapist and they said yeah it could be your hip or something (i forgot what they actually said) but now im spiraling about possible surgery. i’ve also been casted for my new afos about a month ago, they just haven’t came in yet. could someone give advice/tell their experience about going back to afos after about 2-3 years of not wearing them and thigh pain? also also sorry if this is all over the place😅

Hi everyone, hope you're doing well and staying safe :-) I'm Trey, I'm located in the UK. I'm totally blind and I have only the use of one hand and walk with a limp because of cerebral palsy. Because of my cerebral palsy, I need to wear specially adapted boots. I was able to purchase a pair of hiking boots which my cobbler was able to adapt. Now I'm looking for a pair of stylish trainers. When I went to the shop to look for a pair, they were all very slim and their form factor couldn't accommodate my feet. So I'm looking for a stylish pair of trainers in the form factor of a hiking boot. Does anybody know any brands that do this kind of thing and can anybody post up some good links please? Thank you very much for helping advance everyone :-)