Hi for the past few weeks I’m constantly cold. Like shivering need a coat and electric blanket type of cold. I’ve been feeling unwell, lots of diarrhea, lots of vomiting. I’m only on keytruda at the moment. Have nephrology and pain management appointment coming up in the next few weeks.. And see my oncologist this week.

I was never ever cold before,like walk out in winter with a tshirt. I love the cold and it felt so nice on a brisk winter night. I’m so happy fall is here. but my damn body seems to be going haywire. I know you’re supposed to get hot flashes and I occasionally do but mostly I’m just freezing and I don’t think there’s any cure for it. I have my scans coming up and I’m very concerned that because I feel so poorly I will have a reoccurrence or the disease is just still there growing growing..

I hate this goddamn disease, I know complaining of being cold sounds very whiny and minor, but I’ve been through hell with treatment and I’m just ready to feel somewhat better and now I feel so hopeless and depressed that I am not gonna get better and I don’t wanna do treatment again ,once almost killed me. anyway, I was wondering if anybody else felt chilled all the time not just a little bit but I mean 24 seven because it sucks and I miss my old body. Even my sister noticed she’s like you were never cold before,and why are you walking so slow ,because I have no energy and people tend to walk faster than I can. I just do the best I can and use the shopping cart as a walker… blah this sucks I guess I’ll see what my scans say but just being realistic it scares me that they’re not gonna be good. And just to add I had 5 bags of iron n a b12 shot. I was hopeful that it would help, but I don’t feel any better.

I was recently diagnosed with a recurrence and now stage 4a. We have a four year old we were lucky enough to have before becoming infertile from my initial diagnosis 2 years ago. He is the greatest, sweetest, most wonderful kid. Everything he is doing and saying is typical of a four year old. The problem is our patience and ability on some days to stick with our parenting method and be patient and kind with him when he is not "easy". We have major guilt on those days and I can't stand that we are tasked with raising this inherently good person while dealing with such adult, serious problems that a four year old should be completely sheltered from and that may shape who he is forever. I hate this cancer. I hate any moment where I am frustrated knowing I might not have even another 5 years with him. I am conscientious to not take any moment for granted. But even with that, we have our moments. We are angry and bitter and at the same time, he is the best part of our lives even on the hard days. If you are reading this and were not even able to have one baby, I am so sorry and please move on from this post as I can imagine it being hurtful. For any other parents in this situation, FUCK THIS FUCKING DISEASE AND WHAT IT IS DOING TO MY FAMILY.

So I (40f in the Uk) have been diagnosed with Cervical cancer i am also 27wks pregnant. Originally the plan was delivery at 34wks and a complete hysterectomy, that was before I had had my MRI. After my MRI they have found a 6cm tumour that is inoperable. Surgery won't fix this unfortunately. So plan now is a larger biopsy under general anaesthetic, chemotherapy and radiation after delivery at 36wks. The bonus is baby boy gets 2 more weeks to cook. But just wondered if anyone has been in the same boat.

Hi.. I was just told I too have cervical cancer.

My periods have always been regular to the day (I am 38) but I started noticing changes.. they started lasting longer, the consistency itself seemed different, etc.

I have always been prone to BV, even caused by pad sensitivities etc!

I felt I had the symptoms of BV again, and I started getting some low back pain with it which usually is the sign I go by that it’s time for antibiotics again, but it would sometimes clear up after my cycle.

Then I got my period, it ended at its usually 6 days.. and 12 days later I got it again! I was so shocked, I called my doc right away and said I think I have BV but I am tired of dealing with it, what can we do?

She told me I had better do a pap, and that she thinks it’s something else this time.

I got an email that I have hpv with high grade cells, and sent for colcoscopy.

Doc took biopsies, and three weeks later says the results are unclear so they sent the biopsy to a larger hospital and that he is going to send me there. His words..”in a case that’s more complicated like yours, I am not going to touch this one. They have better surgeons and treatments there. But I wouldn’t send you there if it isn’t cancer.”

So now I have to wait for a call to meet with the gynaecological cancer team and he feels it will likely be a hysterectomy! I am okay with that, but I am frustrated too.

Why is my case “complicated?” What does that even mean when it comes to cervical cancer? He also said they won’t know what stage of cancer until they do the surgery. That part really sucks.

I am exhausted. I had to cut back my hours at work and seem to tire easily and we haven’t even started this journey yet. I have been bleeding for over two months, passing clots regularly and randomly, and also bleeding and passing clots with bowel movements from both areas. Just the pressure of blowing my nose causes my cervix to bleed. I get nervous every time I have to “go.” I desperately need a break from pads and liners. I have constant bloating, light headed, etc.

Anyone have relatable symptoms/“complicated” results/waiting for surgery to find out the extent?

Hello,

I just completed all my treatments in July and this group has been incredibly helpful during my darkest days...now I need to ask for another help..

My bestfriend's sister just got her PET results and the cervix + ovaries lit up. She is waiting for her MRI results and will sit down with her medical team on treatment plan after. The wait is killing us all, most especially her. We dont want to speculate so trying to be as positive minded as possible for now..

If you are from Turkey, or if you have any insights, could you please share if the Chemo, radiation, etc. is free on public healthcare? Or one needs to go via private route? Any recommendations? She is PR and married to a Turkish.

Thank you for reading my post 🙏

I had uterine cancer, hysterectomy in January 2021, follow up with vaginal radiation in spring 2021 (that was fun🙄).

All follow ups have been clear. But today my vagina hurts, and I’m getting twinges like uncomfortable period pain. This scares me a lot!

Not sure whether I can see my care team for 60-90 days (long story).

Just came here for a pat on the back. If you have any insight, that would be appreciated too.

I’ve been having some loose stool/diarrhea side effects from immunotherapy (bevacizumab + pembro), which I know can be pretty common. I’ve tried working with the hospital dietitian, but nothing has really helped so far and it’s been tough to manage.

Have you experienced any side effects on immuno treatments? I’d really appreciate any advice on what helped you minimize or reduce them.

Ok bear with me. I am on day 2 of week 4 session 2 (17 treatments in) I was doing pretty darn good. Managing diarrhea and gas well with meds. No pain with the bladder. No nausea. The only thing that was really throwing me bad was my kidneys and headaches. I had to skip 2 cisplatin infusions but my kidneys have recovered. I had been taking daily ibuprofen to help with the headaches which is probably why it was so bad.

Anywho. So today I go in. Do the things and come home. I go to pee and it burns like a mother and my hips start to ache and I can’t take ibuprofen for that (or Tylenol actually because they heavily affect my liver). So I’m like… I got this. I’ll take Azo. I’ve got my pharmacy army of all the things I bought in prep to counter act every symptom super fast like a freakin ninja. 🥷. Then I read the back. Don’t take if you have kidney issues. wtf.

So in one day I go from “I got this” to Migraines, kicked up horrid gas (did I mention the gas x had one freaking job and it’s failing after today too), burning piss, and feeling like I need a hip replacement and I don’t know that there’s a damn thing I can take for ANY of it that’s not going to do more damage than the actual effing cancer. Le Sigh.

I’m more than open to suggestions here.

TLDR: my head hurts, my hips hurt, it burns to pee and I can’t take otc pain meds or Azo. Also you probably shouldn’t be within a 20 ft radius from the gas. SOS.

Hi just got my results from my biopsy and unfortunately they said I have cancer and I’m feeling so lost. I’m so scared of what’s coming next. I’m 36 and so scared to lose my hair or my life. Any comments would be helpful I don’t know what to do with myself right now 🥲

Just received MRI results (1 year post-treatment). It shows a T2 signal (slightly brighter area) in a part of cervix (no enhancement or diffusion, meaning no change in water or blood flow), and MRI reads "This is equivocal for recurrent disease" meaning it's unclear. There a new nodule near urethra, which is 'enhancing soft tissue nodule'.

I'm trying not to freak out, because I know there can be changes after radiation treatment. If this is recurrence (which I was told is very unlikely after the type of treatment I received), does this mean surgical intervention? Are these areas to be cut out?

I have a follow up with my doctor next week to discuss these results. I'm assuming biopsy of these areas is next, even though upon visual examination the week before my MRI she said "I wouldn't even know where to biopsy because it looks normal". Very worried.

My OBGYN wants me to start birth control pills so I don’t get pregnant. (I don’t want to get pregnant right now, obviously)

My previous OBGYN told me to not start the pill until everything is done with CC and I also need an EMB.

Has anyone taken birth control pills while undergoing stuff with CC?

So, I went in early for my pet scan. I am 2 months out of treatment for a 7/8 stage 3 cc. Well, my fingers were crossed. But today I started having some blood in my underwear. Yeah, I don’t think it’s a good sign. Hoping for some good news. Not feeling like I am in a good place.

Hello, just looking to see if anyone has been in the same position. I do have my 6 week follow up appointment with my oncologist on Sept 3rd we have also spoken on the phone and he doesn’t seem to be concerned at this point however I am.. I did chemo 25 external rad and 3 brachytherapy. Leading up to my diagnosis I had a lot of watery stinky discharge and my Periods the last two months leading up to diagnoses was awful heavy painful and I passed clots the size of limes. Fast forward, discharge and bleeding stopped during treatment but shortly after I started having a tanned/yellow colour discharge (odorless). I’m also noticing I’m having awful back pain it does come and go and is actually worse at night it feels like someone is holding a lighter to my back. I noticed a few times after using the washroom in the morning it looked like tiny pieces of tissue at the bottom of the bowl. Anyone else go through something similar? I feel like it’s one thing after another.

I had a hysterectomy in May to treat 1b3 adenocarcinoma. I'm 38 and honestly, was just as freaked out about the potential side effects of early menopause as the cancer. They left my ovaries in.

Post treatment, it was decided I needed a month of external then internal radiation. I was told my ovaries would fail within a year.

My last treatment (internal) is tomorrow. At my OB-GYN oncologist appointment last week, I asked for info about hormone replacement therapy- when to start, testing, levels, etc.

My doctor wrote me a script for Estradiol (patch), but rushed me out of the office and didn't answer many questions. I was told testing levels was a money grab and all I needed was estrogen.

I've got it in hand but can someone give me more info? I've had a friend who is on Wiley Protocol and loves it. Not sure I want to go that route. I'm reading up on different options and what's best for women my age but I'm having trouble finding sources that are comprehensive and unbiased. I'm ok with Estradiol if that is best, but I'd love more info and perspectives.

I was diagnosed with stage 1B3 back in June. I just turned 30 in June and it was a total shock. So far I’ve had one surgery where they removed most of my cervix and a 6cm tumor. Luckily it seems it hasn’t spread too far from the source, so far my lymph nodes are clear and my PET scan was virtually negative. My next surgery is an open hysterectomy in September, and I’m honestly terrified. Full procedure (radical hysterectomy, bilateral salpingectomy, bilateral lithopexy, bilateral pelvic and aortic lymph node dissection, omentectomy, cystoscopy with stent placement) One bright side is I get to keep my ovaries, my oncologist said they were going to simply move them up near my kidneys which sounds so strange to me. But the reasoning is that when I do chemotherapy/radiation after surgery they’ll be out of the way. I’m mostly scared of the pain with my next surgery and how chemo/radiation will affect me. Anyone who’s gone through similar things I’d love to hear your experience. My friends and family have all been supportive but it’s hard not to feel alone. The fact I have cancer is constantly in the back of my mind.

Hi, I have reached out here before when my wife was diagnosed with adenocarcinoma HPV16, 3cm only on cervix and PET negative with bilateral microscopic lymph involvement. Treatment is 28 external radiation, 6 cisplatin, 4 brachy + Keytruda every 3 weeks from the beginning. She is almost at the end of her treatment (2 brachys left) and did very well with just very few side effects so far. MRI showed no tumor before Brachy, since it was removed with a LEEP before Radiochemotherapy (for lab testing).

We lived a very peaceful and normal life when this diagnose hit us like a truck, nothing seemed normal since this day. Radio oncology said 80% chance of curing it.

How do you all stay positive in such a situation? I thought the worries will transform into hope&optimism once we have a treatment plan in place, but somehow my worries don’t really became less. I am still terrified and very often can’t think of something else. Any tips? I do need a therapist in any way, I do realise that. Thank you all!

My girlfriend and I are in a long-distance relationship. Recently, she was diagnosed with cancer. When she told me, she also said she needs to go through this on her own. Since then, she’s gone completely silent and hasn’t talked to me at all.

I’m really struggling to understand if this kind of withdrawal is a normal reaction to such life-changing news, or if it means she wants to push me away. I love her and want to support her, but I don’t know what she might be feeling or how I should handle this situation.

Has anyone been through something similar—either as the person diagnosed or as their partner? How did you deal with it?

I finished treatment almost a year ago, but I'm still dealing with some back pain. Doctor says it’s nerve damage from the tumor pressing. Has anyone else had this, and did it ever go away? And if so how long it took? I'm still waiting for physical therapy for hip pain and hopefully the back pain, so I would love to hear your experiences in the meantime..

Hi everyone,

Back in July I was unfortunately diagnosed with cervical cancer, squamous cell carcinoma, stage between IB2 and IIB. The tumor is about 4x4 cm, no metastases. The uncertainty is whether there’s infiltration into the parametrium. My scan report says: no definite parametrial invasion, but on the left side there’s something they can’t clearly define (during the internal exam the left side felt a bit firmer). The current recommendation is chemoradiation, with a planned start date of either September 1 or 8.

However, when I spoke with the radiologist, she mentioned that my diverticula and endometriosis are located exactly in the area that would be irradiated, which carries significant long-term risks. She said she would discuss with my gynecologist whether surgery might still be an option. I should hopefully hear more about this on Tuesday. After surgery they would have a clearer view of whether there’s any microscopic invasion, and if needed, radiation could then be given more specifically. According to her, that might be more favorable considering the diverticula and endometriosis. In the worst case, the same area would still need radiation, which wouldn’t really change much compared to the current plan.

Right now I feel completely stuck in uncertainty and don’t know what the right choice is, if there‘s any. Should I go or push for surgery, or if their advice stays chemoradiation (which I’m honestly very scared of), should I go with that.

Has anyone been in a similar situation or have any advice to share?

(I had a MRI August 2024, no signs of a tumor. Does this mean it is spreading fast?)

P.S. I’ve read through many posts here already and my heart breaks that we are all going through this. 💜

Hello everywone, my mom will start the brachytherapies next week. She will be in hospital 3 days and a half they said. Monday, under anesteshia the doctor will insert the aparatus and she will have 2 radiation sesions per day for 3 days. She did chemo plus imuno and 25 sesions external radiations. I will be there with her all this days. I cannot fathom in my mind how she will stay there 3 days and a half without moving at all. She is old and fragile. Please tell me what is your experience with this kind of brachytherapies. How can I make her to feel more confortable...if possible . Thank you

I’m about 4.5 months out from external and internal radiation, and I’m having some UTI symptoms. I was tested for a UTI, but didn’t have one. This all started after my treatment follow-up pelvic exam. It burns a little when I pee and is somewhat uncomfortable at all times. Anyone experience this?

My mom was recently diagnosed after going in for a hysterectomy (was not completed) where they found cancer. I’m at a total loss at the moment. She’s been taking the diagnosis well for all intents and purposes but she started bleeding BAD out of nowhere about a week ago. Doctor put her on megace but it hasn’t been helping. She went to the oncologist on Tuesday and her RBC were 7.7 and they sent her home and said they would give her blood on Friday before her first chemo session. I got a text from my sister this morning who is with her at the moment and she said that my mom’s BP was 93/52. I was like nope immediate ER. When they got there they checked labs and her RBCS were 5.3!!! Thankfully they gave her fluids and 2 units of platelets and she is starting to feel better but still exhausted from the blood loss and Benadryl they gave her. Has anyone experienced this and what helped? She’s starting radiation on Tuesday to hopefully help with the bleeding and tumor shrinkage.

Another notable lab…her WBCs. They were slightly elevated (13 something) on Tuesday and today they were 22 and her neutrophils are elevated as well. Has anyone experienced anything like this before? She’s going in tomorrow to get more labs and her first chemo infusion but it seems like no one is answering any questions or has any answers. I’m so frustrated with how this is all being handled. Any advice on what my sister and I can ask the doctors or care team is so much appreciated. My mom is just very upset and weak and I don’t know how much more of this she can handle.