My eyes itch and I’m losing my mind but I don’t want to make it worse.

I got a cornea transplant 3 weeks ago. The last few days, around the same time like 7pm-9pm, i get this feeling of something stuck in my eye, the one that had the cornea transplant. Its the same feeling of when something gets in ur eye and its annoying and after u wash ur eye or blink a few times, it naturally goes away. But this feeling doesnt go away for a while and its quite annoying because i feel it when my eye is open and moving around and when im blinking. Anyone know what it is? Thanks!!

So i have had KC for about 5 years, one eye is too thin for cxl, the other they are finally going ahead with it. What should i expect? Also how long did it take for doctors to put others forward for it? Thinking there has been some very unnecessary delays i might need to log a complainwuth or legal action against my hospital about the delays.

Has anyone seen improvements in their ghosting and starbursts after using losartan for many months???

Did it improve your HOAs?

I just wrapped up my second CLX epi-off procedure, and my doctor is sending me back to my optometrist to get fitted for scleral lenses. They want me to start about a month and a half after the most recent procedure. Does that seem a little too soon, or is that a normal timeframe?

For context, my right eye has a pretty noticeable scar from an old injury. My doctor said the vision in that eye probably won’t ever be 100%, but he thinks I might be able to get around 70–80% of it back with the lenses. He also mentioned that if the scleral lenses don’t correct things enough, I may need to come back for a PTK. So I’m just trying to figure out if this fitting timeline makes sense and won’t interfere with any possible next steps.

I'd also greatly appreciate any advice or learn about how the fitting experience went for

Just got done with CTAK surgery(right eye) so we will see if my vision gets better, hopefully I will have very little to no ghosting once I heal up.

I was diagnosed with keratoconus about 2 years ago but have had symptoms for 5+, and somehow prior eye doctors never caught it. Several years back i had a severe chemical burn on my eye. I saw my cornea specialist last week and after doing a scan, dilation, and a few other exams, she told me that eye is no longer “fit” for CXL. Has anybody else ever been told this before? Am i just doomed to basically go blind in this eye, as it’s been getting significantly worse? She said there are some doctors doing the surgery in cases like mine “off label” but that she cannot suggest it and it likely would not heal. I’m just at a loss altogether.

Should this be a concern? I noticed my forehead upper eye area scrunches quite a bit when inserting my sclerals.

My 24 year old Daughter has scarring of cornea due to fungal infection . Anyone had positive results from Losartan eye drops? She was prescribed them today by her ophthalmologist at Duke. He said it was in clinical trials .

As the title I'm F18. I got diagnosed with Keratoconus back in the middle of 2023, and I've had the cross-linking twice in both my eyes. I've got my screal contract lenses 4 months back, and I can't wear them longer than 6 hrs a day. I know my eyes are getting worse, and I don't know what to do anymore. I'm currently in the waiting room of my eye centre.

Update: so I did my 2nd contacts lenses fitting. As my current pairs have been fogging up every few hrs. Um, my cornea is still thining, and I have another appointment in a few months where they want to do cross linking for the 3rd time. I asked if I could do a transplant, but that's not an option since im still young. ( I don't want to do a transplant, but if it helps, I'll do it )

BTW: thank you all for the loving comments they really helped me feel like I'm not alone, and it's okay to feel frustrated and just blue. I hope you all have a lovely day/evening. 😊

Hey guys, I'm sorry if I sound stressed I've just woken up and my eyesight is so awful, it takes me a solid 4 seconds to focus on anything and it still has extreme haze and ghosting.

This is my right eye and my left eye is completely busted after having three corneal hydrops over the years and I am in my last year- mid semester of my art degree and I am very troubled by the idea of my eyesight rapidly declining when I have 6 assignments due by next week that all require intense use of eyesight.

Is this an emergency? Is this hospital or specialist contact worthy? I haven't had this happen before even on days where I wake up worse and my eyesight adjusts just from the act of waking up this doesn't feel or look the same. I am freaking out and was told as well by my specialist 5 years ago that she thinks I am too young and mentally unfit for a corneal transplant because of the maintenance and upkeep.

I'm also not working, have been trying to save for a back surgery and just have been in the worst shape I've ever been in my entire life.

I am stressed and need some actual advice and reassurance. Kind regards, I am able to answer any questions.

For reference i’m 23 F, I got a referral in February to go to an ophthalmologist due to KC concerns, didn’t think anything of it but now 6 months later i wish i had gone earlier, my vision has declined so much since then especially in my right eye. I can’t even begin to explain how frustrating it is especially when my job is literally to watch a screen for 12hrs and rubbing my eyes was usually my coping mechanism for stress.

The doc seemed concerned and recommended i try to do the clx as soon as possible due to the progression. (cornea steepened ~2 diopters and thinned by ~15 µm in both eyes)

I honestly have nothing to compare my eyes to and I’m trying to understand what I’m looking at and to gauge how bad my eyes actually are, so i’m posting my test if anyone cares to give advice it’ll be greatly appreciated. Are my eyes actually bad or am i overthinking it?

Hi! I dont have KC, I have irregular cornea after lasik, though I haven't found a better place to ask. I had a fitting today and I need to decide if I move further. With sclerals the light streak in low light are almost gone, though my vision wasn't perfect in trial lenses. Is it normal? My doctor told me that my vision will be much better with actual lenses. What was your experience? Is the vision in your sclerals better that in trial lenses? It's an expensive purchase and I need help to decide. Thank you

I had cross linking done recently and plan to start trying to have a baby in a few months. Wondering if anyone could share their experience with pregnancy post cross-linking - how long did you wait, did you notice any changes in your vision, anything else worth mentioning.

Some members experience fluctuating vision. Sharing your observations about triggers could be helpful for others.

Optometrist showed me the scan of my eyes showing the corneal thinning. My left eye just began echoing, and my right eye is mostly useless. They got to a negative 18 on nearsightedness and gave up. Can barely read the first line of letters. What should i expect and anything i should do outside of the doctors?

Hi If anyone has had cross-linking done, could you possibly tell me about your experience? looking for info about recovery time (if any) etc. thank you

Reading many user reviews here about their vision after CXL, I see a contrasting opinion. Did you notice that your vision worsened and then resolved after a year? I'm worried about being nine months post-CXL and still seeing quite distorted, despite having changed my prescription a month ago. Despite seeing ghosts, I saw better before than now and could lead a normal life, as far as possible, with my early-stage grade 2 keratoconus.

While my Optometrist is a dedicated healer that spends hours crafting my scleral lenses my experience with ophthalmologists has been hit and miss. The Dr. that performed the cross linking in my left eye was a good communicator and seemed interested in me as a person. He left my HMO before he could do the right eye. My subsequent ophthalmologists say my right eye is stable but they have not spent more than 3 minutes with me in an examination room in over three years. It leaves me no time to ask questions or inquire about treatment options.
I was having a lot of discharge in both eyes. I had to beg to get an appointment to see my ophthalmologist and she failed to diagnose a bacterial eye infection which my optometrist noticed right away.
Furthermore they sent me to the low vision specialist without any explanation. Suddenly this well meaning Dr. is walking me through my computer settings and recommending magnifying glasses.
Based on a precursory Google and Youtube search it seems like there are promising treatments and surgeries.
Can anyone recommend a surgeon or Ophthalmologist they've had a positive experience with? I live in Sacramento but any Ophthalmologist in Northern CA will do and I am willing to travel.
I have moderate issue in my right eye and extreme in the left eye... I think. I appreciate any feedback and help.

Hey everyone,

I’ve come across this really cool guy on Etsy called TinkerTurtle3D who creates custom keratoconus travel cases. Definitely worth checking him out if you haven’t already.

I’d like to get one made but I need to find out the exact measurements or dimensions of:

• HYLO Forte Preservative Free Lubricating Eye Drops 10ml
• Boston Simplus Travel Contact Lens Solution 2 x 60ml

Just need the sizes so they’ll fit properly in the travel case. Any help would be really appreciated.

Thanks in advance

I'm not even sure what the proper term for this optical phenomena is. I see halos if my pupils dilate wide enough but I'll start to see this even before a visible rainbow halo ring forms. I know what normal starbursts are supposed to look like but this feels way more extreme than that. Currently waiting for ovitz lenses to come in and see if that fixes it.

Recently I am diagnosed with one eye keratoconus. My left eye is healthy.and this problem was not in my family i.e it is not genetic.. Is there any probability that my left eye will also get keratoconus? ( Not done any C3r in affected eye) good vision after using scleral lens in right eye. Any one with same problem.pls help!