r/Narcolepsy • u/No_Cauliflower_1112 • 2d ago
Rant/Rave Hate being sleepy
As the title says, I fucking hate being sleepy. Got recently diagnosed with hypersomnia (on SSRIs and that can affect your eye movement). Doctor called me for my results and said “dude you’re sleepy af”. I fell asleep less than a minute every time during my daytime test.
I’m so angry because I’ve been living with this for at least 15 years. I always fought off the sleepiness (usually unsuccessful) but I tried really hard and I could function at least to become a doctor.
Now I’m finally on modifinil and the sleep attacks are less dramatic. I can stay awake more easily. Thought I could just use this at work but I can’t. I struggle even more now when I don’t take the meds daily. Even with the meds I’m still fucking sleepy just awake and sleepy? Do others find the same issue? Do I just need to accept that this is now a daily med for me?
8
u/Lovelybones2416 2d ago
It’s really easy to shame ourselves with narcolepsy incredibly easy actually but needing meds does not make you less than or not enough. You’re doing the best you can with the tools you have and if the meds help to get you at least tired but very functional. At least it’s worth it.
I’m writing this while fighting asleep attack so please excuse if it’s not perfectly said but I think you got it lol