r/Narcolepsy • u/No_Cauliflower_1112 • 2d ago
Rant/Rave Hate being sleepy
As the title says, I fucking hate being sleepy. Got recently diagnosed with hypersomnia (on SSRIs and that can affect your eye movement). Doctor called me for my results and said “dude you’re sleepy af”. I fell asleep less than a minute every time during my daytime test.
I’m so angry because I’ve been living with this for at least 15 years. I always fought off the sleepiness (usually unsuccessful) but I tried really hard and I could function at least to become a doctor.
Now I’m finally on modifinil and the sleep attacks are less dramatic. I can stay awake more easily. Thought I could just use this at work but I can’t. I struggle even more now when I don’t take the meds daily. Even with the meds I’m still fucking sleepy just awake and sleepy? Do others find the same issue? Do I just need to accept that this is now a daily med for me?
6
u/CaitlinisTired (N1) Narcolepsy w/ Cataplexy 2d ago
I hear you, I'm getting better at self compassion but it's a lot of work to try and be even a little less bitter that the pills they give me to make me "functional" just about stop the sleep attacks bur don't remove that bone deep, HEAVY fatigue. Like my body is made out of rocks... that are magnetised to the ground. Waking up after what felt like a decent amount of sleep feeling like I'm fresh out of a car wreck. Always a persistent, low grade headache (that, if I'm lucky, won't turn into a migraine that day, maybe).
And then I go to work and am still expected to function at the exact same level as my non narcoleptic colleagues and you absolutely can't make people understand how much deeper your tiredness is especially if you don't wanna sound like you're making it into a pissing contest, so to speak. Not really anything I can say to help, just wanted to offer commiseration because it truly is so rough. Wishing you the best, you're not alone ❤️