r/Ovariancancer • u/Direct-Wait285 • 2d ago
In testing phase: undiagnosed R/ovarian cancer scare
I'm so nervous. I've just been referred to oncology OBGYN for elevated inhibin b but my CA125 was normal on the low end all the rest of my results were normal. My regular OBGYN said it looked like a cyst I had grew and looked like a complex cyst. I had another vaginal ultrasound by my RE because I'm trying to conceive and he said he did not see that cyst and I had an HSG test done and neither provider said they saw a mass and said I had a perfectly functioning ovary. Fast forward my regular OBGYN redid my inhibin b test and it is still high so she referred me to an OBGYN oncology specialist. I'm so nervous because I never expected this but apart of me is not concerned too much because I read inhibin b level can be higher in childbearing women. Also, my first gynecologist told me she did not like running those type of tests because they cause more stress on the patient when they are not 100% reliable. She said you can have elevated numbers and won't be cancer but can have normal numbers and it can be cancer. Considering the fact my RE and Radiologist did not see a mass or cyst but my regular OBGYN said she think the cyst she saw was complex is so confusing. If anything I'm praying this is all a scare. Anyone else had a scare like this and everything was fine? Feel so lonely in this.
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u/DeucesHigh 1d ago
Sounds like your OB saw a physiologic cyst, and it went away (as those do) by the time the REI did another ultrasound. Elevated inhibin B, on its own, is pretty meaningless in a premenopausal patient. No harm in going to gyn/onc, but I doubt they're going to find a cyst either.
FYI the HSG isn't going to show any ovarian lesions, it's just a fluoro study looking at the endometrial cavity and tubes.
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u/idontgottaclue 1d ago
In a similar situation as you. Went to the ER with extreme stomach cramping. Had multiple imaging tests done and they all indicated a suspicious malignancy. CA 125 is elevated as well. The worst part is the waiting. You either have cancer or it’s something else and you won’t really know the truth until a biopsy, but first you got to wait for the referral, then wait to for the appointment, then wait for the surgery…and the whole while you feel like there’s fireworks going off inside of you but they have nowhere to go.
It’s best to get all the recommended testing or whatever they recommend just to make sure. They’re just taking precautions to make sure and that’s better than being written off…but sitting with the not knowing is the worst part. I truly hope everything turns out okay for you.