r/Ovariancancer • u/TARich92770 • 1d ago
In testing phase: undiagnosed Super worried for my wife.
My wife's GYN found a mass on her Ovary this Monday. Sent her for Bloodwork and CT Scan. Bloodwork is super high. CA-125 at 185 & HE4 at 197. Now waiting on CT-Scan results which was done today. Any advice would greatly be appreciated. 😪😪
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u/Professional-Owl483 1d ago
It's awesome that her gynaecologist seems vigilant - many of us are fobbed off. If you want to read about possible diagnoses, don't Google randomly. There is a lot of old info out there about ovca. What country are you in?
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u/TARich92770 1d ago
United States NYC to be exact.
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u/Professional-Owl483 1d ago
You're in an awesome place for any treatment required (if you can afford it). I'm Australian, and have more limited advanced treatment options, but on the upside, it's all free here.
Line up some counselling for both of you if you can. Whether good or bad news, you will benefit from support through this. The early days of shock and horror are some of the toughest. My fiance is in a partner support Zoom group. I find this Reddit community really great.
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u/TARich92770 1d ago
Thanks I have great insurance thru my job. At this point we are just praying 🙏. She lost her twin brother 4 years ago to cancer so her worried level is extremely high.
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u/AZPittieMama 1d ago
What kind of cancer was it? Does she have any family history of breast or ovarian cancer? Or a BRCA gene mutation?
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u/TARich92770 1d ago
Colon cancer and no with her parents.
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u/Capable-Matter-5976 1d ago
I had similar bloodwork and my tumors were all benign endometrial tumors, I needed a really big surgery, but they were benign.
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u/AZPittieMama 1d ago
First off, I’m so sorry. These initial weeks are by far the scariest and most overwhelmingly dark. A CT will give you more info, but ultimately a biopsy is the only way to be 100% certain if the mass is malignant. My sister’s CA125 was 132 and HE4 was 149 after her pathology came back as high grade serous carcinoma. That said, CA125 and HE4 are not used as a standalone diagnostic tools due to the fact that these levels can be elevated for reasons other than malignancies. Some women have normal levels upon diagnosis.
Hang in there ❤️🩹