It first started when I was about age 19, with talking in my sleep, then movement things such as walking around, picking things up started happening around age 21-22, I even somehow called my sister's ex-fiance and was apparently telling him nonsensical things like his friend was in my bed, then stole my cat and is hiding under my bed, he said my speech was slurred and said a lot of words that aren't even real words.
another time, my mom knocked on my door while I was having a nap during the day, I got up and started talking but no words made any sense
I used to have a drug issue, and have been sober. of course, I had no recollection of any of these sleep talking/walking episodes, and everyone was accusing me of abusing drugs again, while I tried explaining it to people, no one believed me. I was so hurt, offended and disappointed - I ended up leaving home and was homeless for around 7 months, because everyone showed they had 0 faith in me.
over the years say from 23/4 to 26(current age), I started developing sleep paralysis as well, most of the time it very short lived and not a huge issue but it gradually started to last longer and induce more panic, then I moved in with my (now ex) fiancee, and she'd frequently wake me from sleep talking/walking and save me from paralysis, I ended things with her and left brazil for australia (where I'm originally from) and since being back, easily 1 in 4, maybe 1 in 5 nights I get horrific sleep paralysis
at this point, I'm awake all night, genuinely scared to sleep at night time, so I stay up and work (software engineer remotely), and sleep once the sun comes up - I still sometimes get sleep paralysis during the day but it's far less fear inducing
one key point I've noticed is I only get paralysis when I lay on my back, I know it's not sleep apnea as my fiancee can attest to the fact I never stop breathing, I've also had equipment monitoring my blood oxygen, and there's no obvious dips or de-saturation normally associated with apnea (i know this isnt a 100% guarantee that it's not apnea and I need to get a proper sleep study done, but where I live in australia there's no public/subsidized or "free" sleep study places, I'd have to go private and I don't have the money for that)
if it were as simple as only laying on my side to stop it, I would, but I have autoimmune arthropathy that's still under investigation for it to be treated accurately, laying on my side for even a little bit too long I end up in such severe pain I need to go to the hospital, I also tend to move around a lot in my sleep and naturally end up on my back as time goes on
some health background: I have lupus, which I had tests ran recently showing my markers are down, so it's likely not the cause of the arthropathy or parasomnias
diagnosed with bipolar type 1 and adhd
my father used to sleep walk and sleep talk according to my mom
sister sleep talks
I've struggled with insomnia since like 12 years old
I take loads of medications: lamotrigine, amisulpride, pregabalin, verapamil for cluster headaches and occasional migraines, low dose ritalin for adhd(10mg 2 times a day, not increasing due to mania risk), buprenorphine for my severe chronic arthroparhty w/ naproxen
and about 3 times a week I use temazepam/alprazolam to help me sleep.
I've noticed a connection between benzos and sleep talking/walking, from when my fiancee would wake me & it'd be the nights I took them, sleep paralysis happens without or with taking them, generally its less intense whilst on benzos however
there's been times where I've been on none of these meds, some of them, or different meds entirely and these parasomnias still occur, so I can't pinpoint it down to 1 medication except for maybe benzos in relation to walking/talking
alcohol is definitely something that causes all of the 3 parasomnias, luckily I don't really like alcohol, and if I am to get drunk I wait to sober up a bit before I sleep.
I'm sleep deprived, at my wits end and scared to sleep. all the CBT shit I've learned for anxiety goes out the window when I'm so terrified I'm attempting to scream for help
tried sleeping with lights on, but for some reason I can't manage to even though I can sleep during the day
anyone have steps I can take from here? is it worth spending a boat load of money on a sleep study for them to tell me "sorry, nothing we can do about it, how about do some therapy" - I've tried therapy, all fail-safes I put into place go out the window and can't think straight when it happens
the only thing that's helped was having my ex sleeping with me, to snap me out of it if I start to panic & that's also not possible now... sadly.
TL;DR I have multiple parasomnias, being sleep talking, walking and paralysis, multiple health and mental health conditions, unlikely to be apnea (tho not guaranteed), talking and walking is whatever though it has caused issues, the paralysis is keeping me from sleeping at night, only seems to happen while laying on my back IIRC
dad would sleep talk and walk as well, sister sleep talks too.
any help, suggestions or recommendations are welcome, I'll try anything at this point.