r/braincancer • u/Beneficial_Ad_1329 • 9d ago

Recently diagnosed with brain cancer

He redditors, i was recently diagnosed with a braintumor around 3x5 cm on the right hand side of my brain. I feel very frustrated that i can't get any answers from the doctors about my survival rate yet or worse risk of getting paralyzed on my left side of the body. i understand that it takes time and they have to wait for the results from the biopsi that was taken last friday. But can anyone give me something? I'm 28 years old and feel free to ask any questions, and i will try to answer as best as i can.

EDIT: Not my scan but looks awfully close to my pictures. stupid me didn't take a picture of the scan. maybe i can find it somewhere in my online journals

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u/Brandisco 9d ago

A huge variable right now is the type of tumor, and that will be shown in the biopsy. If you’re lucky you’ll have a grade 2 or lower since you’re young. That’ll dramatically increase your prognosis. However if you have a monster, like glioblastoma IDH wild type methylated (which I have), things are WAAAAaaay less positive. You can google survival rates for each of these to see what the potential is. But in general it could be 6-18 months (in the worst case) or you could go on for the rest of your life with no real impact.

Naturally I hope you have the “no impact” version. Fuck cancer. I hate this shit and wouldn’t wish it on anyone. Best of luck. And feel free to DM me if you have other questions.

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u/Beneficial_Ad_1329 9d ago edited 9d ago

Thanks, well i think that the fast result the doc gave me was a grade 3 gliomtumor. I'm neither afraid or in chock eventhough it was 2 weeks ago that they found it. I hope you're doing well

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u/ExtremeActuator 9d ago

If you do google survival rates (unwise) remember that the most common age to be diagnosed with a brain tumour is in your 90s and that very much skews the averages presented.

You are in the absolute worst stage right now, the not knowing. No matter how good or bad the biopsy results, at least the you can make plans, start treatment and keep putting one foot in front of the other.

Good luck.