Thoughts & experiences about low grade gliomas

[u/El_Billy]

Hey everyone,

First of all, I apologize because this must be one of those many many times you're going to read the same thing, so sorry again.

My wife (40) got diagnosed with a low grade glioma about 40 days ago, after having a couple of horrible seizures while we were on a trip. The neurosurgeon took a look at the MRI scan and told us that the tumor was in a pretty accessible area, on the right frontal lobe. She underwent surgery the day before yesterday. It took a bit less than 3 hours. The neurosurgeon told me that he was sure he removed everything, and when I asked about her prognosis, he responded that my wife "would live a really long life".

After that I was really calm, but I made the mistake of googling and asking chatgpt about their opinion. First thing I noticed was the 5-10 year life expectancy. Then something about grade 2 gliomas not being completely removable, and the inevitable mutation to grade 3 & 4, followed by cancer and dead. I lost the little sanity these last 40 days left me. I panicked, cried.

After regaining a bit of sense, I came upon subs like this one and r/lowgradegliomas (which seems a bit abandoned, but has nice comments to read still).

Can anyone share their opinion about this?

Thanks in advance for your replies.

[u/MusclesNuclear]

If we aren't talking wt gmb or dipg/dmg all stats are bunk. Tons of long termers (even astro 3) are pushing 15-20 years.