Hi everyone. My boyfriend has idh1 mutant grade 4 Astrocytoma. He was undergoing 6 weeks of chemo-radiation. Everything was going well and he hardly had any side effects until week 5 when his platelets dropped to very low levels (19k). They had to stop the chemo. He continued with the radiation and finished it. But he did miss a week of tmz. He is supposed to start 12 rounds of tmz (5/23 cycles) in about a month. We have concerns that he may not be able to tolerate it. Has anyone had a similar experience during the 6 week chemo-radiation period but then moved on to complete the tmz cycles?

Hey everyone,

First of all, I apologize because this must be one of those many many times you're going to read the same thing, so sorry again.

My wife (40) got diagnosed with a low grade glioma about 40 days ago, after having a couple of horrible seizures while we were on a trip. The neurosurgeon took a look at the MRI scan and told us that the tumor was in a pretty accessible area, on the right frontal lobe. She underwent surgery the day before yesterday. It took a bit less than 3 hours. The neurosurgeon told me that he was sure he removed everything, and when I asked about her prognosis, he responded that my wife "would live a really long life".

After that I was really calm, but I made the mistake of googling and asking chatgpt about their opinion. First thing I noticed was the 5-10 year life expectancy. Then something about grade 2 gliomas not being completely removable, and the inevitable mutation to grade 3 & 4, followed by cancer and dead. I lost the little sanity these last 40 days left me. I panicked, cried.

After regaining a bit of sense, I came upon subs like this one and r/lowgradegliomas (which seems a bit abandoned, but has nice comments to read still).

Can anyone share their opinion about this?

Thanks in advance for your replies.

I’m so confused I’m 21 years old and I found on my gp report : cortical dysplasia vs low grade glioma. My gp said the “vs” means they are unsure which one it is. I was told a few years ago when I had a brain mri that I had something called “focal cortical dysplasia”. I have had a couple seizures before in the past which led me to getting a brain scan and that’s how they found it. I’ve been hospitalised many times throughout the years for mental health and a few doctors had told me it wasn’t cancerous and others said they were unsure what it was. I’m not sure what to do. Ive recently missed an appointment with the neurologist from the hospital that diagnosed me and they did not call mail or text about my appointment and now I have to wait a while to see them. Does anyone else have any of these diagnosis and what is your symptoms of it?