r/braintumor • u/Struggling2Survive85 • 6d ago

My Brain Tumor

Hey guys I'm 39 and male my name is Jeremy. I had another account I made a post on until I could remember this account. So I have a Pituitary Machroadenoma that is almost 2cm in circumference. I am not seeking treatment because of financial issues and me being on SSI and only getting 967 a month. This also puts me on Medicaid with Humana. I know a lot of people say don't worry about the financial part now but later. I can't do that because then I got to worry about bills and a place to live which I am already having to worry about that stuff. Im currently on hospice to help with pain management but the pain is getting worse. I really don't know what to do now I reached out to the brain tumor network and they can't really help because of me not seeking treatment so that option has failed me. I feel like my options are limited as to what to do and I feel I have no where to turn for help. Financial assistance here in Florida is next to nothing and I am afraid that I will be homeless and dying on the street and I'm scared to death on this. I currently live with my best friend but I agreed when I moved down here if this was going to be a long-term thing which when diagnosed the life expectancy was 2weeks to 2 months I'm going on 3 months after diagnosis now that I would need to find a place. I have to stick to this time frame. My family doesn't want me because I am one of Jehovah's Witnesses and they laughed and said I deserved this tumor when I told them. The only person that's had my back through this is my best friend of almost 22 years but he is going through things himself and I don't need to add anymore onto his plate. This is my thinking not his. I really need help. I am beyond lost and scared right now.

6 Upvotes

88% Upvoted

4 comments sorted by

2

u/seeumauf 6d ago

Many hospitals offer financial assistance for low-income individuals. Please consider the life-saving surgery. I am 4 months post op and returned to part-time work after 8 weeks. It isn't easy but you don't deserve to suffer this way.

1

u/Struggling2Survive85 6d ago

I do appreciate the concern and the advice on seeking financial assistance but knowing I still have to be concerned as far as living arrangements after would be the next biggest issue and whether or not this tumor will come back or not. The tumor in my right knee has come back 7 times and I feel like it's back again because my right knee feels like it did each time before I had the previous surgeries. My body has an issue with it where I tend to get a lot of different kinds of masses. I did just have one behind my left side of my scrotum removed and I am dealing with an opened wound I'm trying to keep taken care of. I wish it was as easy as don't worry about the financial side of things. For me though I can't just say it's all going to be ok financially that's irresponsible and here in the USA our medical system is good but there's a cost that I don't wanna pass onto others. I was trying to get my body donated to science so some good can come out of my body but no one will take my body after I pass because well I am obese and my BMI is too much I've been told by different companies I've inquired about. So when I do pass I've told my best friend don't claim me or anything. I told him to just listen to the song and remember me when he hears the song the show goes on.

1

u/Friscogirl007 5d ago

Jeremy, I’ve gotta pray for you. It’s late right now but tomorrow I’m gonna send you another message to see how I could help you. God bless you good night.

1

u/Struggling2Survive85 5d ago

Truthfully not much can be done for me. There is things I need that I can't get and don't expect people to get me. I just have to learn to deal and accept that for people like me who have been dealt a hard hand and get knocked down constantly by life and those who where supposed to protect and love and care for you that sometimes it doesn't come. And that's the hard pill to swallow.