r/braintumor 11d ago

My Brain Tumor

Hey guys I'm 39 and male my name is Jeremy. I had another account I made a post on until I could remember this account. So I have a Pituitary Machroadenoma that is almost 2cm in circumference. I am not seeking treatment because of financial issues and me being on SSI and only getting 967 a month. This also puts me on Medicaid with Humana. I know a lot of people say don't worry about the financial part now but later. I can't do that because then I got to worry about bills and a place to live which I am already having to worry about that stuff. Im currently on hospice to help with pain management but the pain is getting worse. I really don't know what to do now I reached out to the brain tumor network and they can't really help because of me not seeking treatment so that option has failed me. I feel like my options are limited as to what to do and I feel I have no where to turn for help. Financial assistance here in Florida is next to nothing and I am afraid that I will be homeless and dying on the street and I'm scared to death on this. I currently live with my best friend but I agreed when I moved down here if this was going to be a long-term thing which when diagnosed the life expectancy was 2weeks to 2 months I'm going on 3 months after diagnosis now that I would need to find a place. I have to stick to this time frame. My family doesn't want me because I am one of Jehovah's Witnesses and they laughed and said I deserved this tumor when I told them. The only person that's had my back through this is my best friend of almost 22 years but he is going through things himself and I don't need to add anymore onto his plate. This is my thinking not his. I really need help. I am beyond lost and scared right now.

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