r/cancer • u/exceptyoustay • Jul 11 '25
Patient They gave me 1-2 years
I’m devastated. In 2023 I finished treatment for stage 3 breast cancer. I did everything: double mastectomy, radiation, chemo, etc.
Today I found out it’s in my bones, liver, and lungs.
I have an 8 month old baby girl.
I can’t believe this.
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u/A-Guy-tryin-his-best Jul 11 '25
That’s awful! Sending my love My wife has terminal cancer, diagnosed at 26, which started off as ovarian but it’s latched onto endometriosis and spread everywhere She’s not got a feeding tube to her heart, tube to her stomach as her bowels have collapsed, abdomen drain for fluid, syringe driver for pain meds and sickness 24/7 We found out about hers for the first time in October last year, they gave her 2/3 months then, our little boy was 11month so had the crappiest first birthday party ever! We’re now 8 months in, treatment has been tough and her body is struggling hence all the pipes But we’ve doubled the time she should have been around and we plan do double it again!! She’s just recovering from chemo and the operations so sleeps 90% of the day, we’re staying positive and trying to get her well enough for family days out!
It’s quite different but my grandad had a massive heart attack at 40, they said he’d wouldn’t see the end of the week, then the end of the month and then so on, two tripple bypasses later they said he’d only live till 43 max! He’s 79, planning his 80th birthday for December! Outlived the doctors that fixed him and the ones that condemned him
Please please please don’t give up! So what if they say 1-2 years you might have 30! You’ve got to acknowledge the bleek truth that 12 months could be all you have but also look to the future and see yourself at your baby’s 21st birthday party That’s the only way you can do this! It’s shit and not fair and you’ve every right to tell me to fuck right off! Good luck!
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u/Barking-Parrot18599 Jul 12 '25
This message struck me hard, you’re an example of the kind of person the world needs more of. I wish you and your family nothing but the best my friend.
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u/A-Guy-tryin-his-best Jul 15 '25
Wow I didn’t even know I needed to hear that! Real tears of relief I’ve just felt I don’t know what you’ve unlocked in me but thank you I really needed that! Thank you for wishing us well! Just got to keep yourself positive and take every day as it comes!
Someone once told me in the hospital while my wife was on the edge of life,after a long conversation about life and its meaning etc he said too me I’ve a question for you If you could have 20 million pounds in your hand right now would you go for it? I said what’s the catch He said you do not wake up tomorrow I said obvious anwser is absolutely not thank you! He said there you go that means each day is woth your 20 mil you could have had Don’t take a day for granted and don’t waste it! Lesson learnt days were easier after that!
Hope you all the best! And prove them doctors wrong!!
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u/804449 Jul 14 '25
I found it helpful to continue to plan for the future. I planted annuals in my garden this spring knowing I might not see them bloom next year. Maybe I will maybe I won't. It still helped to think about it. Start planning your baby's next birthday. Let your physician know if you need help with depression.
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u/A-Guy-tryin-his-best Jul 15 '25
I love this! Live your life still! Love your life! Captured reality beautifully thank you
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u/OkBumblebee1479 Jul 14 '25
Praying for you and your wife! Keep pushing and keep hope alive!!
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u/A-Guy-tryin-his-best Jul 15 '25
Thank you! We strive to be positive every day! We’re trying to look to the future even if that’s only the best few months
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u/MysteriousSet521 Jul 14 '25
Can I ask how she got diagnosed at 26? Does it run in the family? How did you find it?
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u/A-Guy-tryin-his-best Jul 15 '25
Yeah ask away! My wife is big on educating people to try and catch theirs before it’s too late!
So bit of a long story! Had our baby boy in October 2023 he was emergency c-section Mid surgery the surgeon came up our end a total of 3 times during and asked if she’d ever had any major surgerys, c-sections, reproductive organ reconstructions etc.. I was then rushed out of the room once my little boy was out as it was clear my wife was very unwell and a crash team had to come in An hour later she came out and had to have a doctor from the trauma centre stay with her for 24hrs and monitor her bloods This is context for the next bit
Surgeon came round late at night and told me and my wife that was highly unusual what they found, looked like scar tissue but was sticky and bled excessively when touched, she said do not let this go undiagnosed please follow it up! She put nothing in her notes and then was untraceable so wasn’t able to follow up Chased that for 6 months In this time she had pain round her scar again chased this for another 4 months but gynocology kept saying her “case wasn’t important enough” and she was “too young to be seen” In the last few months of us trying to get seen my wife had swollen up to a size of someone pregnant with twins, she had 18ltrs drained out of her abdomen!!! And then a further 6 another day, she was in so much pain!! We kept getting told it’s a stomach infection, we pushed for blood tests as knew it was wrong, after trying to get doctors to look at her at the local gp and 2 trips to A&E we finally found out it was cancer after the blood tests came back, they found her ca125 markers (ovarian cancer) were newly 2000 So we found out she had incurable cancer that had now spread all over her body, they think latched onto endometriosis and spread fast like that, we found out in a waiting room in A&E just like that, bomb dropped No plans for what to do, the man that told us said it’s the worst case he’s seen and he doesn’t know what we’re going to be able to do, then burst out crying it was surreal!
All tests come back as no genetic match so not generational
Her cancer is stage 4B low grade sirus so incurable and very hard to treat It’s also grown around her bowls and stomach and collapsed them so she’s fed though a tube into her heart and a peg pipe out of her to drain off any fluids
It honestly has been the worst experience possible from start to finish
So please please please if you feel anything wrong with your body do not take no for an anwser!! If you are a woman get the ca125 blood test, it costs the nhs £28.61 to do the test and that is the difference between finding a silent killer before it gets you! If they’d have found it sooner my wife would be in a much better condition today! It’s gutting
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u/Holiday-Fan-5213 Jul 13 '25
Prayers and best wishes May the Good Lord lay his healing hand upon her
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u/A-Guy-tryin-his-best Jul 15 '25
The good lord isn’t real mate Why would he give a young family with a young child a dose of cancer they cannot beat? Strongest battles to strongest followers? Whatever why’s he given out an unbeatable battle What sort of higher power is that! Will never walk another step in his name
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u/No_Equal4973 Jul 11 '25
Don’t believe that …. I know someone who has stage 4 and metastatic everywhere. Almost 10 years on trials and not going anywhere from this earth 🌍
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u/False-Spend1589 Jul 11 '25
I don’t think your doctor should have given you a time frame. Because they can’t actually know most of the time. I have stage four breast cancer myself, and I have for 7 1/2 years. My breast cancer is confined to my bones, but it is in pretty much every single bone from my skull down to my knees, my shin on my left side, and both my arms down to my elbows. My oncologist has never given me a time frame, nor would she. Just keep doing your treatments, and do your best. Start writing letters for your child if you’d like, but you can’t live like you’re dying, that’s no way for anyone to live. Please join the MBC subreddit if you haven’t already. Lots of advice over there from real patients, and it’s only people with MBC.
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u/BDSMpickle Jul 12 '25
This is somewhat comforting. My husband has stage 4 breast cancer and they told him 3-6 years. Working in oncology research I know it can go both ways, being a bedside nurse I only saw the worst. There are more treatments being approved and studied all the time. So I have hope. I am happy for you and I hope you get many more years!!
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u/False-Spend1589 Jul 12 '25
Based on currently available statistics that is technically correct-ish (2-5 years with a median of 3). But those statistics haven’t been updated, and your husbands oncologist shouldn’t have given him a time frame either. I’m sorry you have to see so much trauma regularly. And your own spouse going through cancer. But you’re correct, there is so many new treatments coming out. And while stage 4 breast cancer is currently still a terminal diagnosis, it’s getting much closer to a chronic illness. I hope both your husband and I have many more years on this planet. 💛
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u/MysteriousSet521 Jul 14 '25
And when you do those breast cancer screenings, if all of them come back negative, including the ultrasound of the chest area and then taking pictures, squeezing your breast tissue on that machine that means you’re pretty much fine if nothing is showing up right?
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u/mcmurrml Jul 11 '25
I agree. Unless someone really wants to know and asks don't blurt that out. I don't know how many people on these different groups I am in were told a time. Here they are alive years and years later.
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u/edbash Jul 11 '25
Some things that others may not say: Sounds like you are going to be very busy. The longer you survive, the better for your child. You also need to make plans for your child’s future—including pictures, letters for later, etc.. You have to continue to be emotionally involved with your baby, so there is not much space to be depressed & withdrawn. Same goes for your husband. The baby is a reason to take care of yourself, be tough, and survive as long as you can. I wish you well on your journey.
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u/Vast-Marionberry-824 Jul 11 '25
I would also add in the need to get a second opinion - a fresh set of eyes by a major cancer hospital and consideration of possible new treatments 💔🙏♥️
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u/Rude_Meet2799 Jul 12 '25
Dana Farber did a genetic analysis of biopsy tissue taken in my home state. They found a weak spot in the genetic code and designed chemo/immunotherapy to exploit that weakness. Medicare paid for it
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u/billyvnilly pathologist-Not medical advice, only opinions Jul 12 '25
Every commercial can do that these days. I'm hopeful that OP has already had next generation sequencing and additional tests for her stage 4 disease.
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u/Rude_Meet2799 Jul 12 '25
I’m old. When I was a kid cancer was a death sentence. I’m so thankful for how far the medical research has pushed this.
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u/Crazy_Tourist_7817 Jul 12 '25
You’re absolutely right that next generation sequencing (NGS) is becoming more common and valuable. I’d just add that in cases like this, especially with stage 3 or 4 disease, a full whole genome or exome sequencing (WGS or WES) can sometimes reveal vulnerabilities that standard NGS panels miss. Even if nothing actionable is found today, the data can be reanalyzed as research advances. There is a very real chance that within the next year, a new therapeutic target or mutation specific treatment could emerge based on findings from broader sequencing. It is not just about helping future patients… it can make a real difference for current ones too.
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u/No_Interview_2481 Jul 14 '25
I’m wondering if that’s what they did for me. My genetic testing had me in the 90th percentile. All I know is my oncologist told me he would be happy if I came back at 1% and here I was at 90%. After two years of immunotherapy for stage four metastatic lung cancer which has spread to my liver, I am cancer free. It’s amazing what research can do for us today?
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u/MysteriousSet521 Jul 14 '25
Is that a person or are you talking about the cancer Institute?
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u/PsychologyOk8722 Jul 15 '25
The Dana Farber Cancer Institute was named for its founder, Sidney Farber, and Charles Dana, an industrialist who contributed a great deal of money to Dr. Farber.
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u/zippyboy Jul 12 '25
This is basically the plot of the 2003 film *My Life Without Me," starring Sarah Polley and Mark Ruffalo. OP might enjoy it.
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u/CandyAnnie79 Jul 12 '25
They gave me less than a couple of years. You know what? They can suck it! Im still living. Started a new treatment even. It is a Hail Mary treatment, but I am about to be a first-time grandma. Don't listen to estimates, op. Everyone is different. Keep your head up!
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u/MysteriousSet521 Jul 14 '25
1979 which I’m assuming is the number at the end of your name, is only 11 years older than me grandma? That sounds pretty intense. Especially at only 44.
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u/CandyAnnie79 Jul 14 '25
Im 46, lol. She is 27 and has been married for the last 3 years. The two of them are high school sweethearts. We are very excited 😊. She is going to be a fantastic mom, and im going to get to see he/she grow up!
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u/SugarMagnolia_75 Jul 11 '25
There’s a lot of treatment options. I have a friend who had widespread bc and she’s still livin life 6 years later. I’ve had mbc since 2019 and still kickin! Come join us at the MBC sub. You’ll find lots of support and hope 💗
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u/Front-Ninja-6690 Jul 12 '25
I know many people who have had very advanced cancer and lived decades longer than they were told they would. That was way before "really good drugs" came along.
Cancer is mysterious. And lots of people beat the odds. There's no reason you can't too. You are not a statistic. Your longevity is just an educated guess.
I have Stage 4 Breast Cancer and am thriving because I am taking drugs that didn’t even exist when I was diagnosed with Stage 2 Breast Cancer in 2013.
Trust in science. Cancer research is going at warp speed. Never ever ever ever give up hope.
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u/FromGreat2Good Jul 12 '25
Just curious, is it iBrance?
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u/Front-Ninja-6690 Jul 12 '25
The drugs I take?
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u/FromGreat2Good Jul 15 '25
Yes the new drugs that you’re taking that didn’t exist in 2013?
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u/Front-Ninja-6690 Jul 15 '25
Yup. I have never done chemo either. Apparently my 2025 meds are better than chemo.
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u/Exp626-Stitch Jul 12 '25
If I were a loving god, I would cure you, or at the very least let someone take your place, and I would be willing to do that for you as well. I will hope for just that.
I’ve never understood why we have to suffer, I’m sorry, but I just can’t grasp the thought of allowing a young mother whose little girl isn’t even a year old suffer like this. I was willing to give my life for my country when I joined the Army, and I’m willing to give my life for you young lady. I can only hope he’s listening, I will never be able to come to terms with this.
-Chuck (Minnesota) 60(M)
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u/Future_Law_4686 Jul 12 '25
You're my hero! Thank you for your service and thank you for your self-sacrificing generosity. Your post is one of the most beautiful I've read anywhere and I will keep it and read it and treasure it. The following quote fits you.
"The greatest want of the world is men-men who will not be bought or sold; men who in their inmost souls are true and honest; men who do not fear to call sin my it's right name; men whose conscience is as true to duty as the needle to the pole: men who will stand for the right though the heavens fall".
Ellen White
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u/Exp626-Stitch Jul 12 '25
My heart breaks 💔 for you and your little one, I can say Northeast Georgia gave me three years, whereas Mayo Clinic in Minnesota said, “we got you, you’re gonna be just fine, so I chose Mayo after being stage 4, I’m currently in remission coming up on the “three” year mark. All I can try to do is offer hope, and I am so sorry this is happening to you.
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u/Defiant-Aerie-6862 Jul 11 '25
I don’t have any words for this, sending hugs, I’m so sorry this is happening to you
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u/Specialist-Guest-296 Jul 12 '25
They gave my father 2 months with stage 4 squamous cell carcinoma. Perfurated skin to his pleural cavity, spread to ribs, esophagus, lymphnodes, it went everywhere. He lived for 3 years, and he had a terrible outlook the entire time. Keep hope. Keep busy. Keep happy. Manifest good health. I wish the very best for you and your family.
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u/MysteriousSet521 Jul 14 '25
How do you diagnose that particular cancer? That’s another one I’m worried about,
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u/RevolutionaryDrop206 Jul 11 '25
A 77 yr old (I know) was diagnosed with stage 1 br cancer in 2012/in 2016 she had mets to bone, liver & lungs. She is doing fine, dr’s treating it like a chronic illness.
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u/pinkmoonme Jul 11 '25
My heart is breaking for you. I’m so so sorry to hear this news.
Are you feeling well-supported for this stage in your journey? Do you have strong palliative/hospice care in your corner? Thyme Care has been an excellent resource for me in the US. I hope you’re able to find peace and comfort somehow, some way.
🫂 💕
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u/wspeck77 Jul 12 '25
Those diagnosis sucks.
Like everyone Is saying, get second opinion, check hospitals for treatment options. I am in Houston, so luckily have MD Anderson.
Get the necessary stuff done as well. Will, plans etc. have it all done just in case.
I am 2.5 yrs post stage 4 diagnosis. It is not the end. Multiple surgeries, procedures, chemo cycles, recovery etc. I am currently in better shape than most of my last 5 years (better than last 10 except hernia repair keeps me from lifting weights now)
You can get more time, but it is not easy. You may get a whole lot more time. I hope you do.
Good luck looking for options and finding a good treatment plan.
Since diagnosis I’ve seen my 2 kids have several birthdays, several vacations. All the effort is worth it.
Also had the bad days, bad calls, tests showing positive again. Still here going.
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u/fabyooluss Jul 13 '25
I’m just gonna put this here.
In 2003, they gave me 6 months. They gave me 5 years 5 years ago. I’m still here.
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u/Foreign_Day_4875 Jul 12 '25
Listen to me and remember what I write here. I am a doctor in the US of 25 yrs. I have worked at several of the countries top hospitals, including Oncology, where I contributed to a lot of research. Do not and I mean do not rely entirely on conventional medicine alone and never allow any doctor, especially not one who has not survived their own cancer (me) use the expectancy effect on you. Cancer is highly misunderstood by most people. I have seen even “well trained” Oncologists mis speak. Never ever let a medical staff speak death over you. Begin reading now on all of the specifics of your type of cancer and follow a very strict diet, fasting, supplement, and sauna regimen. Commit to this 95 percent, and flex off of it about 5 percent. Never and I mean never allow anyone to tell you youre dying no matter what your scans look like. If you keep hearing this, look at God and explain how youve allowed a mere human to speak fear and death statistics over you. Cancer is not a condition that can be treated by the standard of care alone. You can survive and if you follow what I am saying you will. God Bless you.
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u/Complete-Radish-3222 Jul 13 '25
People say this but they never explain what to do. I can’t find anything on synovial sarcoma please help I have 2 children who I don’t want to leave? Anything to give me a better chance to beat this! Xx
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u/lassieduffy Jul 12 '25
How do I find out about the diet I should be eating. I’m stage 4 Mbc Hr + her2- with Mets to lymph nodes and sacrum. I’m 29 yo.
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u/lassieduffy Jul 12 '25
What supplements are helpful?
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u/MysteriousSet521 Jul 14 '25
They’re probably talking about standard supplements like a multivitamin, fish oil, etc., as far as the diet, it’s probably something like a Mediterranean style, where it’s mostly seafood, very minimal carbs, and a lot of of healthy oils like olive oil, avocado oil that sort of thing.
A lot of the cancer stuff comes from the diets that we have, primarily because the food has so much stuff in it.
I’m not a doctor, but that’s what I’m presuming they’re talking about.
I don’t think there’s any one particular supplement that’s supposed to help with cancer. They probably mean an overall health wellness supplementation.
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u/CheesecakeFinal362 Jul 11 '25
I’m so sorry you’re going through this what type of breast cancer did you have? Were you having bone pain or lung issues? Are they able to do any type of treatment!
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u/Panther4533 Jul 12 '25
I have stage 4 kidney cancer with metastasis to liver. Have had 8 lesions radiated and ablated in my liver. MD Anderson was a game changer for me. Please consult with a top cancer center in the country. There’s a reason they are the best. I pray you die an old woman in your bed at 87!!!
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u/Complete-Radish-3222 Jul 13 '25
Pray for me too please 🙏 I’ve prayed for this I just want to see my kids grow up and see there children and want to die old in my bed xx
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u/south_of_broad Jul 13 '25
I have stage 4 after 8.5 years of NED, mets ( singular) in my liver. After radiation and been on targeted drugs since last October the latest blood biopsy Signatera showed no cancer in my blood and the latest MRI showed the significant shrinkage of the tumor. My oncologist on my question how long I have left told me at least till 85. I am 54 now. So, please go for the second opinion, schedule the visit with the good social worker or psychologist and start this new chapter. You have no choice but fight and win!
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u/Anxious_Eagle9092 Jul 12 '25
I’m so very sorry to hear your news. Do all the things you want to do with your baby girl. Take lots of pictures and write her letters.
Is this triple negative breast cancer? I see many posts criticizing your doctor for the timeframe, but only your doctor knows what subtype of cancer you have. Less aggressive cancers, like hormone receptive, may see women living 5+ years with stage 4, but TNBC is typically 1-2 years at stage 4 because it is so aggressive. I know the other posters here want to give you hope, but sometimes it is very irritating to hear people giving advice who do not know all the facts and assume all breast cancer is the same and it is not.
I wish you the very very best in this next stage. I know it has to be incredibly hard. Big big hugs to you 💕
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u/imperpu 34F - Synovial Sarcoma with mets Jul 12 '25
I was diagnosed just after my daughter's 1st birthday late last year, already with spread in my lungs and pelvis. They gave me the same timeline.
After that, and starting treatment, I told my oncology team to never talk prognosis with me again. I know they are/were just trying to be helpful and basing it on statistics and experience, but none of that helps my or my family's mental health or journey.
I don't want to assume how you are doing, but at my diagnosis and prognosis, I was so shocked, upset, angry, confused, and scared - and I am sure you are feeling a varying degree of all the same combo. If you need an online cancer Mum to vent to about how unfair and hard this all is, please reach out anytime.
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u/Subject_Disk_3581 Jul 12 '25
Cancer is literally the worst. I also did everything they told me to and now it’s in my brain. Literally cannot catch a break. You are not alone. 🩷
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u/prettykittychat Jul 12 '25
Come over to the MBC forum. I have stable St 4 breast cancer and so does one of my friends from high school. I’ve got estrogen positive and she’s triple negative. She developed brain Mets 3 years ago, and she’s been stable since they changed up her meds.
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u/Brithenurse190114 Jul 12 '25
I’m an RN in Canada with stage 4 breast cancer Mets to liver. When I was diagnosed in 2023 I specifically asked my doctor not to give me a prognosis. I’ve seen first hand people/patients beat the odds. I’m still here with no evidence of disease.
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u/Asparagussie Jul 12 '25
My friend had triple-positive MBC with mets to the same places as yours. Three years since dx. She’s at MSK, on a protocol that’s helping her mets remain stable. Feeling better than before. As others suggest, please get many opinions by top cancer research hospitals if you haven’t already. Breast cancer research is afire with new approaches (I assume you know this). Doctors’ timelines have been off by many decades. I’m a born pessimist and would be as devastated as you (who wouldn’t?), but I also know there’s hope that’s realistic with MBC. Sending you hugs from Brooklyn. Please keep us posted if you feel like it. We’re all rooting for you.
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u/Little-Support-3523 Jul 13 '25
In 2005, I was told I was terminal/Stage 4. They biopsied just about every organ multiple times then told me it was sarcoidosis, so I went back to Stage IIA which has worse outcomes than Stage III for my type of cancer. They are still scoping & biopsying me on the regular. I have many friends who were stage 4 and NED now. I wish you healing and your baby must be so precious 🥰
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u/exceptyoustay Jul 13 '25
THANK YOU
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u/Little-Support-3523 Jul 13 '25
When I did chemo for 8 months, I also focused on having all of the white blood cells flooding in and killing the cancer. It sounds crazy, but mentally focused on healing as bad as the chemo was. I truly hope caring for your baby and loving her will help. I believe in miracles. Try to stay optimistic.
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u/Honest_Journalist_10 Jul 13 '25
I am very sorry to hear. How disappointed you must feel. I cannot imagine. My thoughts are with you.
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u/AustnScott Jul 14 '25
This may sound silly, but please look into the studies of baking soda as a way to dead cancer cells. 🙏 All the best
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u/OkBumblebee1479 Jul 14 '25
I’m praying for you during this time. Remember that God has the final say. I was 21 years old with a five month old baby and was diagnosed with peritoneal mesothelioma. They gave me 18 months, it’s been 18 years and counting and I’m still here thriving. Keep pushing, keep praying, and living your life and thriving!
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u/No_Interview_2481 Jul 14 '25
Two years ago, I was diagnosed with stage four metastatic lung cancer, which had spread to my liver. That was basically a death sentence. Today, I am in remission and cancer free. Fortunately, for me, my genetics worked very well with the drugs that are out there and immunotherapy saved my life. Do not give up ever. Keep fighting. Doctors should never give you an expiration date because they don’t even know.
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u/Concretejungle69 Jul 14 '25
My wife is 38 also diagnosed with a terminal brain cancer. We are trying a vaccine in Germany, maybe they can help - called cegat, there is also one is Boston and you can find it if you search jaime leandro foundation. Both are expensive but check them out. We are betting on them, push comes to shove it’s just money. Good luck
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u/Hi-im-Diz Jul 25 '25
My mother was given the exact same timeline with her breast cancer reoccurrence. She dunked on those doctors and lived her best life for another thirteen years. I can’t imagine how you feel right now, but you’ve got this!
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u/FirstLake9601 Jul 12 '25
These threads have such wisdom in them from suggestions for palliative care to maybe the doctors don’t know everything definitively. I care. Blessings to you… please take solace in the notion that the impossible is possible. I hope it helps to know someone…. Many care!
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u/mmillsdesigns Jul 12 '25
They can only guess when it comes to time. I was diagnosed with stage 4 MBC, it had spread to various bones, almost 3 1/2 years ago, and I am still here. My oncologist has not said anything about how long I have left. As long as there are meds to try, we try them, and I continue to be in active treatment.
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u/Successful_Hope4103 Jul 12 '25
So sorry to hear that, but I’ve been told no Dr. can predict unless you are at the very end of. I’ve already passed the time they gave me and still getting around great . Try your very best to be positive. Another Dr. told me that they should never do that !
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u/billyvnilly pathologist-Not medical advice, only opinions Jul 12 '25
Ask if they re-reviewed your her2 to be called ultra low, you be eligible for additional treatment. Have you got a second opinion from a large institution? Mayo/MD Anderson/MSK?
My desire for you is to be connected to your daughter. write letters. Buy a good camcorder that lets you take 30+ minute videos, and just start filming life. Get a tripod and set it up. Film ordinary stuff. Film celebrations. Start video journaling. Create video entries for her to watch for future bdays, future celebrations. Save them in two back up locations so they can't get lost.
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u/kittensinpiles Jul 12 '25
sending you so much love and prayers. please do what’s best for you and your baby girl. breast cancer is tough.
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u/Responsible-Ad-8009 Jul 12 '25
All I can say is never give up and don’t let someone else tell you how long you have to live.
While I was fighting cancer all the nurses told me that those with a positive outlook live WAY long than patients that are negative. Live everyday to the fullest you can.
You got this! 💪🏻
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u/Jaciebugg Jul 12 '25
I’m so sorry… Breast cancer is so awful in my family we’ve been told it’s not if we get it- it’s when. However almost every timeline they’ve given my loved ones have been years off. And they had at least a couple more years with us. I’m praying that will be the situation here.. I can’t imagine the thought and feelings you’re battling right now. There are no right words… hugs Maybe check out Tannerandshays instagram.. He (tanner) made many many many videos for his fam on there as he battles cancer. And his optimism, joy, and strength may help ya.. and just the videos he left for his baby girl.. such a treasure for her to have as she grows.
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u/poxelsaiyuri Jul 12 '25
I was diagnosed with metastatic breast cancer this year and they’ve said they have no idea the time frame but treating it like a chronic illness, googling average life expectancy is 3-5 years but that doesn’t take into account hormone receptiveness and the newer treatments available, I’ve taken the attitude to prepare for the worst and hope for the best (I have metastasis in my liver, bone, lymph nodes and chest cavity)
I do get the worry about leaving children motherless though my children are 6, 9 and 22 and I will do everything to stick around as long as possible for them as I can’t imagine how painful it is to lose a mother at my age let alone theirs
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u/Basic-Outcome-7001 Jul 12 '25
Just saw a webinar yesterday about how emotions need to be attended to, for cancer patients to heal. And that negative emotions disallow the body to heal from cancer.
My dad was supposed to be dead from cancer over ten years ago they said. He's still here and doing very well.
Doctors are often so, so wrong. And they don't understand healing.
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u/KittyKatHippogriff Jul 12 '25
I am so sorry. We do have an excellent stage 4 breast cancer group. You may look into clinical trials, especially if you have triple negative.
I have stage 4, inflammatory breast cancer. Been mostly stable for over 2.5 years. Will know next week what my new CT scan results are.
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u/Outrageous_Buddy_505 Jul 12 '25
I am extremely sorry. I don't know what to say. Which type of breast cancer do you have?
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u/windchimes876 Jul 12 '25
Stay hopeful. Get the book "Radical Remission" or go to their website. It is written by an Oncologist and tells you what you can do to help yourself. So sorry and with a sweet little one it's just so unfair. There are things you can do and lots of people have gone into remission for many years. I also have stage 3 cancer so we just have to stay strong and never loss hope! Keep searching for information that gives you hope! Wishing you the very best!
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u/Mayya-Papayya Jul 12 '25
I’m so sorry! About a month and I half ago I got diagnosed with stage 4 lung cancer that is in my bones and lymph nodes all over my body.
I am 39, never smoked, healthy as a horse otherwise. I also have an infant. Freak DNA transposition called ALK
Find a leasing research hospital in your type of cancer go to them and get into any trial that you qualify for.
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u/Glittering_Tap_5262 Jul 12 '25
My mother-in-law was diagnosed with breast cancer when she was 27 and had young children. It spread to her bones and lungs, but she had great treatments and lived until she was 60 and her children were grown up. Don’t give up and get the best treatments possible. I wish you the best.
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u/Upbeat_Today2837 Jul 12 '25
That's so awful! I can't imagine how hard this is for you. Of course you are devastated. My husband had colorectal cancer. He did radiation, surgery, chemo, clinical trial, more radiation, and more chemo. It is absolutely devastating to think you got it, and then to get the news that it has spread throughout the entire body. There is nothing that can prepare you for that.
The 5-year survival rate for stage 4 colorectal cancer is abysmal, but my husband beat all of the statistics. He fought hard, and I know you will, too. For both of us, it was important to acknowledge our devastation, our sadness, our anger, and our grief. After we acknowledged and felt our feelings, we geared up for a fight. I hope that you have a strong support system. Saying a prayer for you, your baby girl, and your family.
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u/Tiny-Faithlessness79 Jul 13 '25
God has the final say. Do what you can and remember, this battle is not yours.
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u/Substantial_Jelly623 Jul 13 '25
since there is a god in this world there is will always be hope and miracles and i hope you live a one
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u/bzoee Jul 14 '25
My dad has prostate cancer that has spread to his lungs. I was searching for a peptide that could help break it up. I saw Thymosin Alpha-1 (Tα1) helps with that. I haven't used it but I have been doing a lot of research on it. They use it in China and Europe. Its not FDA approved but I don't believe much in our system. From what I got is says its pretty good with breast cancer. Search it up. Fight mamas!
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u/Rare_Tackle6139 Jul 31 '25
You have every right to feel shattered... praying for u in this trying times.
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Jul 12 '25
I’m sorry to hear that. I will probably get a lot of backlash for this, but it’s certainly worth exploring other routes of healing. Do not lose hope. I repeat DO NOT LOSE HOPE. Dr. Makis has protocol outside of what healthcare considers acceptable, and lots of people have been kind of miraculously healed of cancer. My grandma has breast cancer, and in Her tumour has visually shrunk. These are things like ivermectin, fenbendazole, very high dose vitamin D are just a few. I know everybody will think I’m crazy but I do not trust big pharma with my body, nor anyone in my family and many of us have seen amazing results, looking for answers ourselves. Hope and what you believe is one of the biggest factors of healing. I think it’s worth exploring.
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u/Artistic_Athlete9025 Jul 13 '25
Don't give up, there may be alternative treatment options, search for Joe Tippens
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u/tacomamajama Jul 11 '25
Are you in the breast cancer and MBC forums? Both are very active and supportive.