r/cancer • u/TheEvilSatanist • 3d ago
Patient Ivermectin ššš
I recently went shopping at Kroger with my partner, and I was riding around in one of the little carts.
After we were done shopping, I parked the cart at the charging station and plugged it in, while I waited for my partner to bring the car around.
As I'm sitting there waiting, I put my head down on the "steering wheel" bc I feel like shit.
So this guy who works there sees me and asks if I'm okay. I explain that I have stage 4 metastatic cancer and I feel like shit.
He starts rambling off about Ivermectin and how he's seen some shit on YT and all this other bullshit.
Y'all... I legit couldn't fucking roll my eyes hard enough!
I tried to be polite and just said I'll mention it to my oncologist. He then says "if he won't give it to you, then go to another one!" I said that I have two I am consulting with, and I will ask them both.
I do actually plan on mentioning this to my oncologists, BUT only so I can tell others that I've already mentioned it to my doctors, bc I KNOW it's gonna happen again... and again... AND AGAIN!
How do y'all deal with the crunchy woo tyoes? My Satanist ass doesn't do the whole sugarcoating bullshit nonsense, I don't have the patience for it.
How do y'all deal with ignorant ass people like this?!
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u/karenswans 3d ago
Look them straight in the eye, squeeze a tear out if you can, and say, "I took ivermectin when I got covid, and it gave me cancer!"
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u/GooseCareless 3d ago
Thatās deplorable and evil
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u/karenswans 3d ago
I know. Sometimes you've just got to be a little deplorable and evil.
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u/GooseCareless 3d ago
Okay Karen
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u/Illustrious-Try-7524 3d ago
You're the guy from Kroger aren't you? Whats your favorite part about it? I bet it's pushing carts. Ivermectin and yt saved you so you should be thankful you can push carts.
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u/GooseCareless 3d ago
Iām not even american and donāt live it obese cancer country lmao I donāt even know what Kroger is
→ More replies (3)
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u/rmawt4j 3d ago
Unsolicited advice is another thing I hate about cancer. A lady at the gym said ivermectin would heal my husband. I politely but firmly told her we believed in proven science and didnāt take advice from Joe Rogan. She hasnāt spoken to me since.
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u/FlyingAtNight 3d ago edited 3d ago
Itās actually a plus that she no longer talks to you. Someone that easily offended, particularly when she was the offensive one by pushing her opinion on you, isnāt worth your time.
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u/ImColdandImTired 22h ago
Yep. One of the doctors in my oncology team says, āWhen they find out youāve got cancer, everyone around you suddenly grows a white coat.ā
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u/ZookeepergameOk1186 17h ago
I literally just had a neighbor say my husbandās cancer was probably because heās been vaccinated. I told her that I refuse to engage with that anti-scientific crap and promptly walked inside and closed my door in her face. She texted that sheās āhere for usā. I said thank you but please refrain from any unsolicited comments or advice in the future. I had to hold back what I really wanted to say. Grrrrrrrr.
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u/probdying82 3d ago
Howā¦ can dewormingā¦.
Stop your body from mutating cells and to recognize mutated cells and attack them with your immune system?
Killing worms isnāt stopping cell division.
Now there are some advances in vaccines which allow the immune system to recognize the cancer cells and attack them. The reason we get cancer is the mutated cells trick our immune system and it thinks they are normal cells and do not attack.
So mRNA is promising and other vaccines which reduce the cell walls on cancer cells and or tell the immune system that there is an intruder and to attack.
But with trumps bitch ass and Kennedy who also has the brain wormsā¦ they cancelled studies on cancer and soon mRNA. Prob because it works and there is no money in a cure. Only treatment.
So take the worm meds. Take ginger. Take anything that wonāt hurt you more than chemo or radiation will burn you beyond repair. But donāt expect anything to cure you. Because if the worm Medicine did cure cancer. They would outlaw it all together. And thatās how I know it doesnāt work. Itās still here. And the nut jobs think they can talk to you about it.
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u/lisnoirs 2d ago
I follow a hybrid approach. Everything my oncologist needs me to do and then most of what my holistic practitioner recommends with my oncologist blessing. I feel freaking great, better than I have in years and still have cancer in my lungs. It is what it is right?
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u/probdying82 2d ago
Where is your holistic person? What state are you in. Maybe others can piggyback some of their recommendations.
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u/lisnoirs 1d ago
Amarillo, Texas. Body of Life Health and Wellness. We donāt see eye-to-eye on things politically, but she is respectful of what I want to do. My treatments include radiation, chemotherapy, Brachytherapy, and then Keytruda alone, which didnāt work six-months after a NED scan. I am going to be moving to Tivdak, itās fairly new. I take compounded vitamins specific for me, plus sour sop, Essiac, K2 D3. I also add Sacred 7 mushroom extract powder to my coffee. I have stage 3 recurrent cervical cancer, and I feel good even when undergoing treatment.
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u/Altruistic-Hornet977 3d ago
No one can cure cancer, but doing low dose chemo may be as effective as anything to keep it stable. As long as you keep it stable and not moving throughout the body, people seem to survive longer than trying to hammer it with 3 rounds of chemo that nearly kill you with it. Itās the side effects of unintended consequences of treatment that you cannot or your caretaker cannot prepare for. If radiation is in your cards, it works, but can trigger other shit if your oncologist isnāt on the ball. If you had chicken pox as a kid, and your oncologist DOES NOT prescribe antivirals as a preventative precaution against triggering shingles, you wonāt like what happens next once you get shingles, then Bells Palsy, then Guianne Barre that, in one weekend, loss feeling in her toes where it started on a Thursday, then by Monday couldnāt walk then lost feelings in her handsā¦until the neurologist decided start treatment she was headed for total paralysis ā¦.then once treatment was over had to get rehab to walk again ā¦during this time no treatment whatsoever was done after radiation due to thisā¦ she works her ass off to get to come home from being in the hospital for over 6 weeks just to die from sepsis from a procedure from 4 months prior , died in her sleep . Went to bed normal, was unresponsive by morning, called 911 and she passed quietly at the hospital with everyone there in shock. We were told āabout 2-3 yrs to goā and she got 1 yr of good quality life then 6 months of hell after the radiation and its side effects. People with cancer are literally on a tight rope between life and death and donāt know it after treatments. Godspeed.
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u/fluffysmaster Stage III Kidney Cancer 2023 3d ago
Ask them where they got their medical degree.
If they mention they heard it from Joe Rogan, ask where Joe Rogan got his medical degree.
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u/FlyingAtNight 3d ago
This was my first thought after reading the OP.
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u/meadowlakeschool 3d ago
Exactly - Iām plant based (so could be considered woo woo) because itās been scientifically proven to help with lifestyle diseases. Those pushing ivermectin are not into rigorous science. Or critical thinking.
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u/Flying_Squirrel_1953 2d ago
I hate it when people like that say theyāve ādone their research.ā They donāt even know what the word means. Just reading internet posts that tell you what you want to hear isnāt research.
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u/fluffysmaster Stage III Kidney Cancer 2023 2d ago
Show me a double blind, peer-reviewed study with control group, then Iāll believe youāve done your research. Otherwise you just have an opinion.
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u/Obvious-Worth-4469 3d ago
I started to tell people who tell me this, that I will bring it up at my next veterinary appointment. This is my biggest pet peeve right now.
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u/Hour_Gain_5073 3d ago
I have heard this as well from people. That and go to a naturalist doctor. I have metastatic cancer as well, so, I understand what you mean. I truly think people say things to try and help, even though we know it does not help. I have told folks that Ivermectin is for parasites and cancer is only cellular, not paracytic. Do we want to go through chemotherapy, no. If we had another choice that worked we would do that. Hang in there. Cancer has no cure, as far as I am concerned, but we do our best to survive. Stay positive and ignore.
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u/LuckyDuck7161 14h ago
Have you tried to do a 3 day water fast? Drink beet and celery juice and hydrogen water? Just a few items that knocked my cancer out. No chemo. Understanding what cancer is, how it starts is the fastest way to heal cancer. The government and hospitals love for you to jump into chemo. Just like everything else in America, everyone oneās a quick fix (give me a shot to lose 50 lbs). Simply Donāt eat sugar and processed foods! That gives the cancer cells energy to grow, not die!
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u/Mobile_Company9554 3d ago
I still donāt have a good answer for this. I quite literally work in cancer research and still get Instagram reels sent to me by family members insisting that I am just āmisinformedā.
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u/dandelion_k RN, somatic tumor mutation research 2d ago
Same. I get the "pretty sad people like you can work in cancer research when clearly you're a big pharma shill". No ma'am, I'm a shill for science, and it doesn't pay shit.
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u/PoetLaureddit 37m - 3x Stage 4 Melanoma - NED 3d ago
I always ask them to explain how it works biologically. Like, what does taking Ivermectin (or whatever dumb thing they suggest) do, and how does it help. I've never gotten one person who hasn't immediately been like "well, Dr. (insert YouTuber) said...," to which I again tell them, "no, you explain it - you're recommending it - otherwise I'll listen to my oncologist."
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u/funkygrrl Myeloproliferative neoplasm (PV) 3d ago
My husband died of bile duct cancer at the height of Omicron. I joined a huge online widows group where they had people lecture on various grief topics. At the beginning, they'd have everyone briefly check in. There were about 50 widows in the Zoom call and about a quarter of them were COVID widows. I'd expected they'd say, I wish my spouse had had the vaccine or masked up or whatever, but the majority bitched about how they were mad at the doctors for not giving their spouse Ivermectin. I realized then that there's no hope for these people. If the worst outcome happens and you're still thinking that way, nothing's going to persuade you otherwise.
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u/Asparagussie 2d ago
I hope that if and when they get a cancer, they follow their own advice. Fewer MAGA.
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u/MartinisnMurder 3d ago
I would have told him I will have my veterinarian consult my oncologist, maybe I can get a discount if I bundle it with buying it for my horses. Fuck these people. Iām sorry.
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u/Glad-Hospital6756 3d ago
Okay this one took me, āIāll talk to my veterinarianā ššš
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u/MartinisnMurder 3d ago
I mean, we actually get that dewormer for our horses they take it twice a year. Thatās so scary these shots are taking other idiots with no medical degrees advice to take it! Then on top of that pushing it on other people, when their useless and dangerous advice is not wanted. When I first was going through treatment, mid twenties, I had an old āfriendā reach out on social media to try to push her essential oils on me as a cure. Honestly, fuck your MLM scam and how callous is that?
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u/MisterVee321 3d ago
I have stage 4 colon cancer and my son mentioned Ivermectin to me. I just said something like "okay" and then forgot about it until reading your post.
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u/TheEvilSatanist 3d ago
That's what they are thinking mine is, I have my first oncology appointment tomorrow to find out more.
Do you mind if I DM you with some questions?
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u/Comfortable-Gap8946 3d ago
Welcome to the club no one wants to join. Diagnosed in 2022 with stage 3 colon cancer.
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u/sssyjackson 3d ago
I like that they think "Doctors want to keep ivermectin a secret, and sell you those expensive drugs instead."
If ivermectin could cure cancer, there's no way the manufacturer would let doctors keep a lid on that.
And ivermectin would no longer be cheap.
It's just so stunningly stupid.
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u/Lazy-Knee-1697 3d ago
Right? "Big Pharma wants to keep you sick, man!"
Who the fuck do they think makes Ivermectin?? Santa and his elves?
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u/swschultz 2d ago edited 2d ago
The patents for Ivermectin have expired. Thereās no money to be made like there is in promoting the use of the multimillion dollar use of chemo for which doctors receive a kickback for each treatment.Ā
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u/Faierie1 T-LBL (remission) maintenance year 2 3d ago
I wouldnāt have given in to people like this. He couldāve offered you a hand or something to drink instead of blabbing about pills. Itās plainly a lack of empathy. āIām getting the best care I possibly canā could be a good response next time to shut them up
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u/DishwasherLint 3d ago
I had something similar happen too. I just didn't respond and walked away without saying anything. I like some of the replies on this thread though. Might have to use them in the future
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u/Slightlyhere2023 3d ago
I tell them they've been lied to. They need to know.
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u/keinmaurer 3d ago
I did this last week, in a very gentle way to a friend of 25 years whose wife is terminal. He blew up at me in such a hateful way I think our friendship might be over. He said I was lecturing him (absolutely was not). I was just telling him what he didn't want to hear.
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u/Slightlyhere2023 3d ago
Good for you for trying to help by setting him straight. I hope it worked. Sometimes, telling a hard truth is kind because of the damage lies can do.
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u/JaneEyrewasHere 3d ago
While sitting in the waiting room yesterday before my onc appointment, a guy was talking LOUDLY about taking Ivermectin the last time he had cancer. But now itās back and he needs to go get some more. š I wanted to ask him why he was in a cancer center if it worked so well but I was too busy stifling giggles.
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u/SurroundedByPlushies 3d ago
Maybe he was hoping a few people would leave and reduce his wait time.
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u/KitchenLab2536 3d ago
Tell them to STFU. As a survivor, I have ZERO tolerance for such morons. š¤¬
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u/Ohmymaddy 3d ago
You can also tell them you already told your doctor without actually telling your doctor. I would totally tell my doctor though just to have a laugh together
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u/No-Camera-720 3d ago
"You are free to believe what you want, but dont EVER mention that stupid shit to me again."
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u/theycallme_shorty 3d ago
This is a HUGE reason why I don't tell people I have cancer. I do not have the time or energy for anyone's bullshit.
Thank you for coming to my TED Talk.š
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u/Muted_Raspberry4161 3d ago
Yeesh. Just say thanks Iāll look into it.
I had people trying to push me hard on this or baking soda and molasses or some other dumb shit. Donāt do chemo!
Sorry, but my oncologist at a world renowned cancer center recommended chemo, not Ivermectin, not baking soda and molasses.
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u/TheEvilSatanist 3d ago
... baking soda ... and molasses... just WHAT?! š¤£š¤£š¤£
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u/Muted_Raspberry4161 3d ago
Iād really like to see these aspiring oncologists face cancer and try this shit. Wonder how many would take the chemo and call it stupid.
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u/Current-Bison-6430 3d ago
There's a woman in my support group who is doing ivermectin and fenbendazole (?) She actually had me second guessing my knee-jerk eyerolls. Shes a bit of an influencer type and also posts things from doctors who are unlicensed or chiropractora with no specialty. Its wild, and I always wonder if I should be commenting caution to her followers. She just had scans that show movement in the bones but still swears by the ivermectin because her liver is doing better. I dont know what to make of it but she has a very rah rah cheerleader energy about it in group and I think its dangerous. She's also very religious, and Im recently deconstructed, so I am sure I come across as a too liberal curmudgeon. The most I've said is she is very brave but I have twice as many years on her and that is from science backed medicines and an educated and informed (she is taking the ivermectin in concert with traditional chemo but not letting her medical team know) oncologist. I just failed another therapy, though, and what if she's onto something the scared part of me asks. Desperation can be so dangerous, and the road to hell is paved with good intentions and ivermectin, I suspect.
Lot of rambling, but it is so refreshing to have someone's first reaction to ivermectin be the same as mine.
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u/thisismycanceracct 3d ago
Chiropractors are not doctors.
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u/DishwasherLint 3d ago
Don't hate on chiropractors. A form of pseudo medicine derived from a Ouija board is totally acceptable for those willing to pay enough and risk the consequences of a medical practice that is not grounded in real science.
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u/Roticap 3d ago
Not just ungrounded, but requires all chiropractors to be dues paying members in their professional organization that actively works to ensure that no science is done. They invented the medical subscription business model before the MBAs had words for it.
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u/DishwasherLint 3d ago
That reminds me of one of my current, favorite dad jokes. "Sometimes coffee tastes like dirt because it was ground that morning..." ;-)
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u/Current-Bison-6430 3d ago
Right!? I dont think they should get to have the title. A lot of people in my relatively small town are really bought into them and I do not get it and think they should have a different distinct professional title.
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u/CaptianSquish 3d ago
Please remember that invermectin and straight up drinking bleach came out as ācuresā to Covid at the same time. Iām gonna take a wild guess and bet you would not, in fact, drink bleach.
I beg you, do not let the anti-science bs into your life, you already deal with enough. Good luck!
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u/timewilltell2347 Stage IV Leiomyosarcoma 3d ago
I believe the Cheeto suggested injecting bleach to kill Covid. Direct address. Much more effective.
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u/TheEvilSatanist 3d ago
I'm really sorry you're going through this, she sounds like a Karen tbh.
Question though... What did you mean by you "failed" another round of therapy?
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u/timewilltell2347 Stage IV Leiomyosarcoma 3d ago
Usually when someone fails treatment they have disease progression during the treatment that is significant enough to know that treatment is not working for them.
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u/FlyingAtNight 3d ago
I hate how people are using the name Karen in such a derogatory way.
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u/TheEvilSatanist 3d ago
Doesn't bother me at all
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u/FlyingAtNight 3d ago
Bully for you. š
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u/TheEvilSatanist 3d ago
Bully for you too! (Whatever that means!) š¤£š¤£š¤£
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u/FlyingAtNight 3d ago
People who use Karen in a derogatory fashion are illustrating their inability to use more thoughtful language.
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u/TheEvilSatanist 3d ago
I KNEW there was a reason I liked it! Thanks for explaining, I always wondered why I liked it!
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u/Terminally_Ill2020 3d ago
Maybe her liver doing better since she stopped drinking due to cancer? We canāt trust anyone!
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u/Current-Bison-6430 3d ago
I feel so jaded but there are so many variables and though I dont believe she is one -- frauds and liars. I think she genuinely believes what she says and if it helps her maybe there is some value but does it outweigh what i think is the spread of misinformation? I dont know...
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u/Successful-Pie-7686 3d ago
I mean if you have nothing left to lose, try it. But donāt forgo actual treatment.
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u/Purple-Pomelo-2939 3d ago edited 3d ago
I wanna make sure that this comment isn't taken out of context, but even if you always have the last word on your own treatment, please, oh please, do make sure your care team is onboard with doing anything out of standard of care. Standard of care is standard for a reason, because it has the best chances of working (and honestly, f**k anyone who claims Big Pharma is hiding the be-all end-all cure, if they did, they'd monetize the heck out of it).
There could be interactions with your treatment or other drugs to manage side effects, your care team must be aware of anything else you take. If I was a doctor (which I am 100% not), if I knew something was safe and gave some agency to a patient who wants to try everything, I might consider the benefit of that sense of control for the patient on their mental wellbeing, even if I knew deep down that it will likely not do anything, but only if I knew that it doesn't hurt their treatment.
Tl;dr: It's crucial that you let your care team know of anything else you try that is not part of your treatment plan.
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u/Successful-Pie-7686 3d ago
Hence why I said donāt forgo ACTUAL treatment. If youāre out of options and terminal, it canāt hurt. Whatās it gonna do, kill you a month earlier?
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u/FlyingAtNight 3d ago
What you missed in responding to the poster is making sure whatever you do, keep your oncology team in the loop.
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u/Successful-Pie-7686 3d ago
Apologies, I thought that was implied. Maybe Iāve just been doing it so long, talking to my oncologist about things just seems like second nature.
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u/Purple-Pomelo-2939 3d ago
Iām sorry if what I said came off strongly or seemed like I was arguing, I agree with you, thereās just so much misinformation out there, itās sometimes hard to navigate.
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u/Successful-Pie-7686 3d ago
Completely agree. I have a background in cellular/molecular biology so Iāve been leading the charge with my oncologist on a lot of things.
But Iāll still get people in my life saying āhave you tried soursop?ā āHave you tried ivermectin?ā Nope, sorry. My oncologist didnāt recommend that.
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u/Lazy-Knee-1697 3d ago
The problem is, those who take Ivermectin in addition to conventional treatments will swear up and down that it was the Ivermectin that cured them
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u/SurroundedByPlushies 3d ago
"But the worms are my only friends!"
Okay, probably wouldn't actually say it, but it says a lot about the current medical climate that so many of us have made or thought of comebacks.Ā
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u/Chemantha 3d ago
I hate this type of shit so much. A person told me there's a plant in mexico that would cure my mom's cancer. I was so annoyed. I just told her we'd try it but now I feel like those people don't deserve kind responses. Just I'll trust the doctors that have spent their entire careers on researching this stuff, thanks.
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u/Capable_Anywhere9949 3d ago
Itās rude for anyone to push someone for their medical and financial records (we all know the 2 become linked at diagnosis). Can you imagine us walking up to someone to grill them about their medical condition then push them to change their course of care? And ask if insurance is covering their costs and how theyāre covering rent during treatment??
I accidentally tripped over one conversation stopper when I said āAt this rate, itās feasible approx half of the population will be diagnosed with cancer by 2030. That means I can see how it works out for 1 in 2 individuals to follow their treatment plans then compare their results to what Iāve chosen for myself.ā
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u/NinjaMeow73 3d ago
Horse dewormerā¦..even they hate it. Nonsense and I am sure if the shoe was on the other foot he would not take it either.
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u/fluffysmaster Stage III Kidney Cancer 2023 3d ago
There are drugs that have surprising crossovers.
Thalidomide was once prescribed for morning sickness (causing horrible birth defects) but was later found useful against leprosy and some cancers.
BCG (tuberculosis vaccine) is successfully used as immunotherapy against leprosy and bladder cancer.
Minoxidil, a potent blood pressure medicine, was found to also grow hair and is now sold as Rogaine.
Then there's that heart medication that was found to have an... interesting side effect and is sold as Viagra.
But that horse dewormer has NOT been proven effective against cancer!
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u/flockynorky Stage 4 NMIBC mets to bone 2d ago
People just want there to be a straighforward answer to the most difficult question life throws at us, and, more to the point, them, and they need us to buy into this credulity to help their own deflection.
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u/4x4Welder 3d ago
I brought this up with my oncologist, as I had also read that it was shown to suppress angiogenesis. She said that later lab tests didn't prove this out.
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u/dandelion_k RN, somatic tumor mutation research 2d ago
It worked in a petri dish. All the ivermectin people love to talk about this.
It didn't work at all in rats, and there's been no proveable benefit in humans.
There is a trial running with it as an adjunct to standard chemo right now to directly compare to baseline rates, and I guarantee even if this one fails, the ivermectin crowd is still just gonna keep harping on how it worked once, in perfect conditions, in a petri dish in a lab, so therefore swallow away.
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u/4x4Welder 2d ago
It amazes me how popular "alternative medicine" is, especially when there is proof that it doesn't work and that modern medicine does. And then the pushers of this stuff go all surprised Pikachu face or blame the recipient when it doesn't work.
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u/armyprof 3d ago
Iāve heard that too. From the same people who told me to drink silver water. I just smile and nod.
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u/damageddude 46 y/o wife stage 4 breast cancer in liver; passed June '17 3d ago
Response: Unless you have an MD at the end of your name, STFU and leave me alone.
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u/Luckypenny4683 3d ago
Hereās a fun one-
Just before 2am, waiting to get the last rental at the airport (after our flight had been canceled for the third time that day) so we could drive 5 states away to get to my hometown where my mom had just entered hospice and was actively dying from MBC.
Iām trying not to ugly cry while signing the paperwork, and the woman in line next to me asked if I was okay. I told her my mom was dying and I was trying to get home to her. She starts tell me about juice cleanses and sugar free diets and how they ācure cancer, even stage IV.ā I nearly punched her in the throat.
Then she asked if she could hitch a ride with us back to the major city near my hometown (she had been at our gate and was trying to fly to the same location). I wish I had thought of something pithy to say back, but all I could manage was a firm, annoyed āNoā and walked away.
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u/Physical_Wrap_1289 3d ago
I had a lady tell me i shouldāve died because it was gods will, and then try to probe me about being āexperimented onā as a st. jude patient. Another guy told me lions mane would cure me, shark cartilage too.. At this point, I just nod and keep going about my day.
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u/AI1as 2d ago
This is awful, when my mom was hospitalized with stage IV ovarian cancer, my dad and his wife were telling her to try ivermectin and replace chemo with vitamin D. (My parents had been divorced for over a decade at this point; my mom, a saint, developed a friendship with her ex and his wife.) Anyway. She didnāt really care that they said that and took it all in stride. I was honestly more offended than she was.
You can ask your doctor about it if you want, to be able to relay the response to ignorant people, but I wouldnāt even tell you to go out of your way to do that. Theyāll just double down with stuff about doctors/pharmaceuticals not being trustworthy. If you want to put people off, you can say āThanks for the tipā or āIāll look into itā and leave it at that. If you want to get into it with them, I like some of the snarky and informational replies recommended in this thread š whatever makes you happy. Because you deserve it.Ā
Iām sorry youāre going through this horrible disease, sending you love and strength.Ā
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u/dr_kust 2d ago
Terrible...sorry it happened.
Recently I wrote an article about ivermectin, just because a lot of patients asks me about it- https://www.onkologija.net/en/post/ivermectin-an-old-antiparasitic-new-hope-or-another-misconception-in-oncology-dr-kust-for-the-z
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u/MisterVee321 3d ago
When you mentioned that you felt like shit, let me say that crystallized ginger helps me to suppress mild nausea. If it's more than mild, I take the prescription medication. But that's me.
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u/TheEvilSatanist 3d ago
Yeah they prescribed me Zofran, but weed is better IMHO
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u/Comfortable-Gap8946 3d ago
I did edibles when I was going through treatment. Best thing I ever did. Worked better than any of the prescriptions they wrote me.
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u/Terminally_Ill2020 3d ago
Thatās all I do. I research the medicine myself and see if it is something I would even try then I mention it to professional if I think it is plausible for me to do so. Other than that. I thank them kindly and move on. I usually only research ones deeper if it has been fda approved for humans in a cancer situation
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3d ago
[removed] ā view removed comment
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u/The_B0FH 3d ago
Dude, cancer is not a competition. There's no worse one. My son started with a tumor the size of a baseball in his brain. I got breast cancer. They all suck hard in different ways.
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u/myersmjsc 3d ago
I tell them that they are welcome to their opinion but I make treatment decisions based on science and data, not rumors and bullshit
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u/Ok_Will_8686 3d ago
Omg! Same! My son stage 4 ewings sarcoma...eye dr actually pulled us aside to tell us this! She states, got it from my chiropractor....smh
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u/WesternTumbleweeds r/thecancerpatient:karma: 3d ago
I just tell them, āYour presumption that I would value any information from you is wildly incorrect.ā
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u/spookybatshoes 2d ago
My dermatologist prescribed ivermectin cream for a rash I had several years ago. Worked great! Then when COVID happened, I was like "That sounds familiar." Lol
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u/Internal-Ad-6148 2d ago
I have a neighbor with macular degeneration in her eyes. She told me she is using ivermectin eyedrops. š¤£
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u/Exotic_Pea3392 1d ago
Ā I literally cannot believe some of these comments? And to blindly trust doctors this much? š. Not a chance in hell for me, if and when I'm told there is nothing else they can do I'll be trying absolutely everything and anything.Ā Ā
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u/Misterfrooby 3d ago
I tell them straight up that I didn't ask for their woo woo nonsense. I have no patience for morons who don't trust science.
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u/WilliamofKC 3d ago
Most people who say something like that mean well. They just do not realize how it comes off to someone who is fighting a difficult battle.
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u/Musella_Foundation 3d ago
I just had a webinar on integrative treatments for brain tumors. Virtualtrials.org/videp.cfm the speaker is a mainstream neurooncologist from ucsf. He has looked into everything. He talks about ivermectin in a negative way but is positive on a lot of other things. Well balanced. He is running a clinical on using a ketogenic diet to fight cancer. He likes cbd
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u/Competitive_Snail 3d ago
My husband has been on high doses of ivermectin and fenbendazole since march, along with chemo. Stage four colon cancer. Tumors have stayed the same size. Hard to say if the lack of spreading is from the ivermectin - I think itās likely from the chemo.
Some people have reported a significant reduction in tumor size with ivermectin and fenbendazole. That, sadly, hasnāt been our experience.
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u/jojo1556- 3d ago
This is the 2nd today Iāve seen here about Ivermectin. The other ladyās husband wants her to take it, poor thing. It sounds like you did well to not engage. I always think of things to say afterwards. My nieceās friend found out she had advanced lung cancer. She will not go back to the oncologist or any doctor. She is in her 40ās and has a teenage daughter. She said she didnāt want to know anything about it, and she has no insurance. She went back to work because they need the money, and is taking Ivermectin! My niece canāt even talk her in to getting a 2nd opinion. So sad! It seems to be the magic cure all , ever since you know who, touted it for Covid. People have no business telling other people to take this snake oil! And it seems to be only one side of the political spectrum that believe this craziness!
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u/Overall_Dust_2232 16h ago
You can read up on the trials it has been used in so you know where it does have potential then explain why itās not yet proven to be effective for your cancer and could even make it worse. (I havenāt read up on it and donāt know in your case but was sent info. on other drugs to be used off label. Ivermectin does appear to have been and is being researched.)
I am ready to just say to these people F Off! but I also see it as an opportunity to try and make them think.
I try saying things like:
āWhy do you think this will be useful?ā
āHave you researched treatments that are known to work like chemo, radiation, immunotherapy, inhibitors, etc?ā
āDid you know one drug can make a certain cancer grow while making another type of cancer shrink?ā
āCancer is a blanket term for many types of cell mutations, each requiring understanding and we go with what treatments provide the least suffering and the most hope.ā
Most of these people are simply believing BS they hear and donāt know science from pseudoscience.
The placebo effect only does so much so we canāt simply believe a cure will happen, and itās dangerous to give cancer patients false hope with pseudoscience. Some of the pseudoscience has been studied to become part of science and has been found to make people die sooner!
I tell people I have done many hours of research and have to make decisions based on evidence. Anecdotal stories from conspiracy theorists is not evidence. Itās harmful BS.
I also challenge them to show me the stories where it didnāt work. If they canātā¦then itās not science. Its BS. Usually charlatans behind it taking advantage of peopleās hope to sell snake oil for profit.
Most of these people do want to help. They are just stupid.
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u/BillyJayJersey505 3d ago edited 3d ago
My step-father's nephew (who is a doctor) has mentioned it to me. He also acknowledged that it's very early in the research in terms of its impact on cancer. I mentioned it to the oncologist working with me and he responded by saying that he has heard of it but there isn't enough research on it. My step-father's nephew would never advise me to change oncologists until one of them approves using it though.
EDIT: Wow. This comment is being downvoted because I didn't cleverly tell my step-father's nephew to piss off? Wow. Redditors are pathetic.
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u/Crystals_Crochet 3d ago
If you mention anything about non-chemo modalities that may help kill your cancer you will be downvoted in this sub. Itās wild since there are some things that have been shown to kill cancer and since itās not chemo and radiation they wonāt stand to hear it.
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u/Frosty_Grand_4039 2d ago edited 2d ago
Actually, antivirals have been shown to have cancer fighting properties. Big pharma is not interested because there is no money in it, because it's cheap to make and there in no patent. You wouldn't be rolling your eyes if you research it. Props to the guy for giving you this info. The more people know, the better. Maybe one day big pharma will be held responsible for putting profit before people. https://med.stanford.edu/medicalgiving/news/antiviral-treatments-lead-researchers-to-develop-possible-cancer-drug.html
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u/False-Event-9113 2d ago
There are cancer trials currently using ivermectin so maybe this is what they meant.
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u/Newbiesauce 3d ago
there are some actual studies and papers on its effectiveness on ivermectin anti-cancer properties
https://pmc.ncbi.nlm.nih.gov/articles/PMC7505114/
and also some clinical trials currently going on, but like a lot of drugs, it could work or it may not.
quacks and influencer type probably picked this particular to push because there may be some truth behind it, just that it is unproven.
do consult your oncologist.
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u/DishwasherLint 3d ago edited 3d ago
I've read a few medical studies in my day, due to having doctors and surgeons as friends and family. I just read that entire write up. There is correlation and speculation, but no causation that exists... even when they break out into multiple types of cancer in detail. To quote the study, "Despite the large number of related studies, there are still some key issues that have not been resolved". That is a very nice way of saying that the study did not support the hypothesis
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u/timewilltell2347 Stage IV Leiomyosarcoma 3d ago
This isnāt a study to cite to cancer patients that know how to read actual clinical trials. This is a theoretical meta analysis of multiple other also theoretical and test tube or Petri dish studies that happened to get printed probably more by onc grads wanting to go into research instead of actual patient care. Basically theyāre playing around with the ideas of the mechanisms of action with slices of or cells from tumors in a lab. Tumors act very differently in the body, especially if itās metastatic and frowning in other tissues. What you cited is not even close to a Phase I trial with humans. Itās just literally a guy who found this interesting and looked up a bunch of other people who found it interesting and slapped it into a paper.
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u/Roticap 3d ago
Itās just literally a guy who found this interesting and looked up a bunch of other people who found it interesting and slapped it into a paper.Ā
AND even with all that, couldn't even come to a conclusion that supports the hypothesisĀ
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u/Glad-Hospital6756 3d ago
Yes people keep citing this article to me over the years and Iām just like, if you actually finished it you would see itās not really saying what you think it is lmao
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u/BillyJayJersey505 3d ago
Why is this comment being downvoted? You're encouraging people to consult their oncologists.
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u/davoutbutai 3d ago
Because (no offense to the commenter) itās an example of somewhat lazy research. PubMed is a content repository that compiles all sorts of articles, so just bc somethingās in there doesnāt mean its findings are the gospel truth.Ā
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u/BillyJayJersey505 3d ago
In what way is the commentor suggesting it's gospel though? The comment says that it may work or may not work.
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u/davoutbutai 3d ago
it's a figure of speech...
and the way that they phrased the comment suggests they referenced it without analyzing the article more in-depth in the way that u/DishwasherLint articulated
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u/BillyJayJersey505 3d ago
The comment also said that there MAY be some truth behind it and that it's unproven. Figure of speech or not, the commentor never suggested that anything should be accepted as gospel.
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u/DishwasherLint 3d ago
I would advise anyone commenting on a "scientific study" to actually read the study. Every legit study, not destined for retraction, says if the premise and/or assumptions, i.e. the hypothesis was supported or not.
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u/BillyJayJersey505 3d ago
And I would advise for people to understand what it means when someone says that there MAY be truth to something.
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u/DishwasherLint 3d ago
You and I are not going to agree on this. When someone says that there "MAY" be truth to something, that means they're unsure or unaware if what they are saying is true. Even if that person is well-meaning, that person is spreading a rumor and untruths. In the situation a lot of us find ourselves in when we are diagnosed with cancer, myself included with B cell lymphoma, it is not productive, kind or helpful to knowingly and willingly give someone information that is not 100% factual
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u/Electronic_Sweet_843 3d ago
Just a couple of peer reviewed studies for you ignorant people.
Antiviral treatments lead researchers to develop possible cancer drug
https://med.stanford.edu/news/all-news/2020/01/antiviral-treatments-lead-researchers-to-develop-possible-cancer.html
Fenbendazole Enhancing Anti-Tumor Effect: A Case Series
https://www.scitechnol.com/peer-review/fenbendazole-enhancing-antitumor-effect-a-case-series-2Kms.php?article_id=14307
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u/TheEvilSatanist 3d ago
Also for ignorant people, neither one of these has anything to do with Ivermectin
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u/iPhoneUser61 3d ago
"The broad-spectrum antiparasitic drug IVM, which is widely used in the field of parasitic control, has many advantages that suggest that it is worth developing as a potential new anticancer drug. IVM selectively inhibits the proliferation of tumors at a dose that is not toxic to normal cells and can reverse the MDR of tumors."
https://pmc.ncbi.nlm.nih.gov/articles/PMC7505114/1
u/ceddya 3d ago
You have linked to no in vivo studies let any preclinical ones.
There are so many compounds out there with a whole host of anti-cancer mechanisms. See sulforaphane, see curcuminoids and even look at PDE5 inhibitors like Sildenafil.
But until you have phase 3 studies for Ivermectin, stop recommending it as an replacement to proven cancer treatments. That is so wildly irresponsible.
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u/Electronic_Sweet_843 2d ago
Ivermectin Inhibits Bladder Cancer Cell Growth and Induces Oxidative Stress and DNA Damage
https://www.ingentaconnect.com/content/ben/acamc/2024/00000024/00000005/art000042
u/ceddya 2d ago
You have a Phase 1 study to establish the safe dosing level for this purpose?
You have a Phase 2 study to establish the effective dosing level?
You have a Phase 3 study to establish that it's more effective and/or synergizes with other treatments?
If you don't, recommending Ivermectin, especially as a replacement for actual proven treatments, is so irresponsible.
Basing it on in vitro and mice in vivo studies is hilarious. You have so many compounds out there which show similar potential and completely fail Phase 1 studies for a reason. It's not hard to kill cancer cells in a dish and mice results very rarely are a 1:1 translation to humans.
By all means though, push for more studies to be done into existing drugs. I think repurposing drugs can be a good avenue to pursue. See PDE5 inhibitors like Sildenafil too. But one is very suspicious when you ignore many other drugs with repurposing potential and when all you do is push Ivermectin only for reasons.
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u/Electronic_Sweet_843 2d ago
You state the obvious. I'm just pointing out that there are scientists taking it seriously.
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u/TheEvilSatanist 3d ago
The people who wrote this are all from China, sorry but I'm not crunchy or woo like that.
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u/DishwasherLint 3d ago
FYI, please make sure you've read a study before believing the headlines. Just because there is a scientific study or paper, does not mean the hypothesis was supported by the evidence they found.
https://www.frontiersin.org/journals/oncology/articles/10.3389/fonc.2022.942045/full
TLDR of the paper: "How cancer patients get fake cancer information: From TV to YouTube, a qualitative study focusing on fenbendazole scandal"
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u/iPhoneUser61 3d ago
Cool study. You could substitute any propaganda topic for "fake cancer" and come to pretty much the same conclusions as these authors.
Yeah, you have to read the studies and look at the author's conclusion. Then draw your own conclusions with rigor and research.
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u/hinchy-08 2d ago
I had people act like this when I took Rso oil and smoked weed. My oncologist even said 95% of her most successful patients take it.
Other patients on same treatment as me were still in denial about it. I took it straight from the get go and let's just say I live a very different lifestyle to the usual cancer patient because of it. Shrunk my tumour by over 30 % halved my cancerous cells and they said id never see my 30th birthday when I was diagnosed in 2019. I have now just turned 32.
Velindre are literally using me as a case study for this.
Dont knock things until you have done every bit of research and know all the answers. People knocked oils and look whats happened
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u/kurlysue_77 1d ago
You all need to read Radical Remission by Kelly Turner. There are ways to remiss cancer without toxic chemicals that kill your cells. The body is a miraculous machine that will work wonders when given the proper tools! What do you have to lose? Open your mind and explore the possibilities that there are things greater than modern medicine!
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u/timewilltell2347 Stage IV Leiomyosarcoma 3d ago
I had a former coworker, who really is sweet generally, call me drunk (she liked 3-4 double whiskey neats before bed to help her sleep) to tell me how sad and upset she is that Iām on chemo. She just wants me to stop! She has so many feelings and I am making her sad being on chemo and thereās this place in Mexico that does sound baths that cure cancer and I should quit chemo and go to Mexico and Iāll be cured. All with me interjecting (when I could) that Iām stage IV and due to the nature of my cancer Iām going to be on chemo until Iām not. Trying nicely to say itās fucking serious even though Iām stable. Trying nicely to say when I decide to stop chemo itās probably going to be to go on hospice. Trying nicely to say Iām the same age as her and I know how Iām going to die.
I got further down the list of the not so nice things and finally said āplease stop making me tell you that Iām dying. It isnāt nice or kind. Please donāt make me tell you this is likely terminal.ā Bitch kept on keeping on. We donāt talk really anymore.