r/cancer • u/No-Permit-9519 • 2d ago
Patient Prognosis is worse than I thought
Hi
I posted on here about a month ago, I had ended up in the hospital with fluid around my heart and my oncologist told me I had maybe 6 months-1 year to live. Well, on Saturday I wound up in the hospital again thinking it was the same problem. Turns out, the tumor next to my heart grew from 4cm to 13cm in the month I’ve been home, and it’s pushing on my heart & causing a lot of strain. The oncologist then explained that he had tried to be optimistic about my prognosis in July, but because of this development he thinks I have a few weeks left at most.
I’ve just been crying since I got home. I wanted more time with my family and friends. I feel so rushed now, all the plans I had just went down the toilet. Thank you to everyone who read my rants and gave me advice, I wish you all the best.
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u/NoTap7503 2d ago
I truly believe we have another journey after this life. what that is idk. I am also scared but I can't imagine ur feelings rn. u r loved and I wish u all the best on wherever your journey takes you ❤️
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u/Titizen_Kane 2d ago edited 1d ago
I believe this too, truly. And it helps. OP, it never hurts to get a second opinion, but either way, your choices and reaction is entirely justified♥️ there’s little rhyme or reason to so much of this, and so much is down to chance.
Not sure if this type of comment is allowed in the sub but I get ketamine infusions (under the care of a doctor), and that basically disconnects your brain and body while still being lucid enough for internal thoughts. The freedom and peace that I feel when my brain is no longer “tethered” to my body is incredible. I feel light and connected to whatever is beyond this life, but more than anything I feel a deep sense of peace and calm. I choose to believe that this is the experience we have when our physical form is shutting down, before our soul moves onto to its next journey.
You are very loved.
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u/Junior-Rutabaga-6592 1d ago
Ketamine is a wonderful treatment! I am on it for chronic pain and the way it puts the pain in the background of my mind has been life changing!
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u/Misskelleygirl 1d ago
I believe this too... This is just a drop in our existence.
My Dad's passing (cancer) really helped me with the realization.
There's another place after this... ❤️
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u/NoTap7503 1d ago
rip to ur father ❤️ I've lost family and friends both humans and animals. I feel like they have a headstart and hopefully can help guide us in our passing. much love ❤️
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u/fixed_night_turn419 1d ago
I believe we have another journey waiting for us as well. You are loved and I want to wish you peace and time with your family. I hear your story, and it’s helping me to cope with cancer as well. I’ll remember you and your story. Thank you ❤️
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u/Fluid-Prize554 1d ago
Sorry to hear that. Get a second opinion!! I had a friend in Chicago who was diagnosed with two different types of cancer: pancreatic and colon. The cancer was all over his liver! He also has some heart issues (valve obstruction) in one hospital in Oaklwan, IL,he was told that he had few months to live !! His family took him to a different hospital (Rush near downtown Chicago) there they did take / extract the liver and other cancerous organs, worked on his heart issues etc it has over 2 yrs now n he’s still alive and well. Get a second opinion if you could.
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u/WorkerThin610 2d ago
I am so sorry too. Fuck cancer. This is a horrible desease. Please try to get a second opinion. Maybe you can buy yourself more time. I am sending you lots of hugs from far away ❤️
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u/stretchmcneck 1d ago
I don’t know you but, I feel your pain.
I have stage 4 metastic prostate cancer. Stay strong-Miracles happen
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u/DishwasherLint 2d ago
I don't pray often, but I will pray for you. Knowing is sometimes better. I've been contemplating that a lot since they first found a tumor on a scan. I hope you have a chance to connect with people that you want to and are able to have some happier times before it is your time
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u/scaredsquirrel5 Caregiver 1d ago
My mom was in a similar position earlier this year. After several rounds of chemo, surgeries and radiation, there was very little progress. The oncologist offered another chemo, but still gave her until the end of the year.
It's been a couple months now and the chemo is finally working. We don't know what the rest of the year will be like, but for now her quality of life is much better.
I'm sorry you're dealing with this, it's a tough one to digest, but please don't give up. Cry, be angry, sad, vent as much as you need to...just don't lose hope - miracles happen.
Wishing you all the best
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u/Obvious-Worth-4469 2d ago
I am truly sorry to hear about that. Words cannot express. I wish you the best
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u/TheBrowserNYC 2d ago
Keep pushing! My mom has a recurring pericardial effusion building up as well, currently in the hospital waiting for a window procedure to be done to buy more time to treat the malignancy and slow the fluid buildup.
It’s a big uphill battle, but maybe there are other treatments still available for you to pursue that can help reduce tumor size? 🤞
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u/OkPrimary5809 1d ago
Don't give up. I also have [stage 4 colon cancer]() with [metastases](). Due to bad lab results, 3 [chemo treatments]() were postponed. Maybe I can continue on Monday. I wish your condition improves and you get well. I wish you the best.
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u/tbodillia 2d ago
OMG! I have no idea what to say besides I am so sorry. I'm sitting here thinking I'm having a bad day and I read this. I wish I had some advice besides saying goodbye to all you love.
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u/erinmarie777 1d ago
I’m so sorry. I wish I had the wisdom to know the best words to comfort you. I guess all you can do is try to prioritize and pick out the most important things you wanted to do and say when you thought you had more time. I really hope you have a good support system to help you. I’m so sorry. Sending huge hugs.
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u/Charlie-0 1d ago
Sounds like a turbo cancer. You’re faaaar too young! I’m so sorry you’re dealing with this. I hope you have a good support group to walk this path with you. I second getting more opinions. I’ve read a lot of near death experiences, and most of them fought to keep from coming back because it was so incredibly beautiful on the other side. I’m in remission from 4th st cancer; given 6-12 months to go, so I picked up some books to see what others wrote about the other side. When children3 yrs tell of similar stories and many people tell of similar stories, I think there might be some truths there.
I wish you strength & comfort & so sorry this is happening to you.
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u/Key_Confusion_2551 2d ago
I read your other posts and saw that you're only 25. My heart breaks for you. Life is so unfair sometimes. Hugs to you. ❤️
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u/Tiny-Faithlessness79 2d ago
I am sorry you are going through this. Stay positive and spend as much time with your family as you can. Try writing them love notes and messages. While doctors go by documented cases it’s possible they are wrong. You could wake up tomorrow and be healed. I am praying for your healing and recovery. Enjoy your time here devoid how long you have, saying please don’t spend your last days crying try spending them smiling and doing the things you enjoy doing.
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u/whatdoesthisallmean_ 1d ago
I’m so sorry ❤️❤️ There are no words I hope you are able to find as much comfort and peace at this time, and are able to spend time with your loved ones. I’m sending all my love to you and your family xxx
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u/SeaworthinessFree928 2d ago
Prayers and I encourage a second opinion from a doctor that specializes in this concern
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u/Diligent-Activity-70 Stage IVc CRC adenocarcinoma February 2022 2d ago
I’m sorry to hear this. I wish you peace in your final days.
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u/Kiwiiths 2d ago
I'm so sorry. That is so unfair. Just make sure you have a good time, whatever time is left. Sending love. ❤️💔
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u/Particular-League902 1d ago
Any clinical trials available for you?
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u/No-Permit-9519 1d ago
There was one earlier this year, but I didn’t qualify for it
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u/Particular-League902 1d ago
I would try getting another opinion or two if this is at all possible. Sending love 💛
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u/InspectionOdd2977 1d ago
I’m keeping you in my thoughts and prayers, I can’t imagine how difficult this is for you. Sending a big virtual hug.
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u/TheRealJustCurious 1d ago
I’m so sorry. 😢 We just said goodbye to my sweet husband after discovering he had stage 4 cancer on May 7 of this year. He passed away July 28th. We are grateful as a family we were able to say goodbye.
I wish I had recorded his voice. That’s my only regret. I love him to the moon and back. Oh, and it’s been obvious he is still with us. We see evidence of his magic all of the time. Stuff has happened that could only mean he’s still with us.
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u/goldysir 1d ago
I am sorry. I dont know what to say but just know that you are loved and valuable. Sending you hugs… ❤️
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u/FirstLake9601 1d ago
Sending you care and concern. I have always believed in a life after death. Nothing SciFi or weird…. Literally that people were waiting to greet me, experience the past with me, reminisce, etc. I believe I will see my parents, and my best friend from HS who died at 30 of a brain tumor. This way of experiencing life has sustained me and in the event I will know when I’m to leave here it will give me great comfort. Follow others suggestions to find peace. Stay in this thread as long as you are able and you will have a community of care.
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u/cat2167601 1d ago
As others before me have said, I have no great words for you except that I am so sorry you facing this! Sending you peace and love ❤️
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u/Time-Froyo642 1d ago
Please get a second and even a third opinion. Praying for you
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u/No-Permit-9519 1d ago
I wish I could. I don’t have the money to travel for a second opinion unfortunately
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u/aaaaaaaanxiety 1d ago
Sending you all my love and compassion, dear. ❤️I'm so sorry you're going through this.
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u/Cat_Mom_Indefinitely 23h ago
Thinking about you. Don’t be afraid to ask your doctors what they can do to help give you more time. And then get some of those plans going. Invite your friends and family for a party. Make all the recordings. Have a goal for every day even if it’s small.
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u/Swimming_Anything_27 19h ago
I wish you make the most of your family and be with those you love. I hope that even with all the difficulties, you feel ready, feel comfortable and welcomed. Everyone has their time, but many can't say goodbye, they are taken by surprise, so say goodbye and receive the love of your loved ones. And above all, from the bottom of my heart, may you not feel pain. Stay at peace and with God. If there is a miracle, it can still find you. And if not in this life, divine glory has an eternal life for us in Christ.
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u/No-Cattle6035 16h ago
Please don’t give up. I was supposed to die as a child because my brain tumour was about 14 cm. I’m turning 26 in two months! I’m not gonna say it was easy, and that they weren’t numerous life-threatening complications as well. But I’m here.
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u/Illustrious-Try-7524 15h ago
I wish I had the right words to say friend🥺 If you have a short list try your best to do the things that mean the most. Love like you've never loved before everyone you want to love. Forgive the people you want to Forgive (if there is anyone to be forgiven) and if you have a dream try to make it come true. There is another side and I believe you'll make it there. Try not to worry about resting too much that day will come. Reminisce with your loved ones. Make the most of the time you have left. Praying you fulfill your every need and wishing you all the best.
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u/RestlessMantis 1d ago
Have you looked into dr amy a breast cancer survivor on youtube? she talks about how diet can help cancer patients https://youtube.com/@dramycancerrecovery?si=vw8YVG_qfyToE5To
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u/PATRIOT-OF-YESHUA99 5h ago
Quality time.
I think of death as a transition into THE LIGHTED COSMOS. this cosmos is false one.
....My Mommy Daddy Sisters have died....it still hurts yet I remind myself they are FRE3...Mommy died June 2nd...it hurts so..
Have open hearted chats with your family friends...your love, any fears, etc...
May you have a PROFOUND TRANSITION.
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u/longlife-ahead183 3h ago
Can you get to MD Anderson for a 2nd opinion. They’re the #1 cancer hospital in the US. If not there, what about Memorial Sloan Kettering in NYC or the Mayo Clinic orCleveland Clinic? Any of those are the best cancer hospitals here. All the best to you.
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u/Hefty-Cartoonist-754 2h ago
May God enlighten you, and give you the opportunity for a miracle to find you, but if that is not possible, may you be the happiest person in the world on the other plane, you have the title of being the strongest human being on this planet!
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u/Valuable_Way_3533 2h ago
Listen to it everyday. InshaAllah Allah will give shifa. https://youtu.be/u4vyHNSbfzM?si=9OyLg4YOizW6u6XO
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u/Enough-Scholar7153 20m ago
I’m sorry for sounding uneducated but what does fluid in the heart mean?
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u/shishabutt 1d ago
Prayers for you!!!!! The only joy in this life are the 3 F's (Faith, Family, & Friends)... basically relationships!!!!! Be with people as much as possible, and enjoy the time you have left. May the Peace of Christ be upon you!!!!! God Bless!!!!!
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u/Brilliant_Picture_24 8h ago
I am so very sorry that you are going through this. I can’t even imagine all the emotions and fear of the unknown you are going through but what I can tell you is there is an afterlife! But the only way to spend eternity with your loved ones is to believe Jesus died on the cross for your sends and that He is the Lord of your life! Every single one of us don’t know how long we have on this Earth because this life is only temporary but we can know where we will spend our eternity!! Please read Romans 10:9-6 and John 14:6. I am praying for you this morning! I pray for mercy and miracles but more importantly I am praying for your salvation and that you will accept Jesus before it is too late! He loves you so very much ❤️
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u/WilliamofKC 2d ago
When my brother was near the end of his life, he seemed to focus on all of the people who went before him, including our grandparents, parents, aunts, uncles and our sister. He would also think about his friends that had passed away while they were still relatively young, as well as favorite actors and actresses that had gone before. He never belonged to a church or expressed any religious beliefs. I believe based on things he said and did, however, that he had a genuinely strong feeling that he would again be with the people in this life who he loved and who loved him. My brother was a good and kind person, and he certainly would deserve that. I do not have the character that my brother did, but I too believe he was right about what to expect.
I really hope that your doctors are wrong. I hope if a miracle is floating around out there, that it finds you. I also hope and believe when your time eventually comes, whether it is weeks, months or decades from now, that you are met with peace, warmth, joy and love that is beyond our limited imagination.