Endometriosis and symptoms 79 years old

[u/Safe_Specialist3834]

I have been diagnosed with endometrial cancer but don't know how many other things it has affected. i am 70 years old and have terrible back, pelvic and leg pain that has gotten worse over the past 2 weeks. I have pelvic pressure and am very tired. I am losing weight quickly when it is usually hard for me to lose weight. I had one episode of lite bleeding and a clot I had CT ultrasound of abdomen and pelvis and it only showed endo thickness of 6mm. Has anyone else had these symptoms and does this mean the cancer has spread all over?

[u/Glittering_Hurry236]

What was the Figo score of your biopsy or D&C that gave you your diagnosis?

Does it say for example "Figo 1 endometriod carcinoma" anywhere in your biopsy report? That will tell you a lot.

After the diagnosis we start feeling everything every twinge I was convinced cancer was spreading all over in the six weeks between my DNC report of cancer and my hysterectomy, but it did not spread all over and I also lost weight because I was a nervous wreck pre-op.

Hang in there, the days leading up to true surgery are the worst days... all the uncertainty.

[u/Safe_Specialist3834 → u/Glittering_Hurry236]

I don't know my Figo score. I do not know what that is. I am so in the dark on all this. Sometimes I think the pain is my back or hip but then the cramps and pains start and I am thinking the worst. I am eating less becausexI am a nervous wreck about all this
Did you turn out ok?

[u/Glittering_Hurry236 → u/Safe_Specialist3834]

Yes. I knew from my D&C before the surgery that I was Figo 1 and it was endometriod carcinoma because I had a thorough operative hysteroscopy with detailed uterine sampling, a polypectomy and a D&C.

We could see a shadow on the ultrasound and I'd been spotting and the endometrial biopsy was "inconclusive" so GYN and I figured I would have a benign polyp (again) as I had had benign polyps before.

Before my hysterectomy we had a lot of of information on the cancerous polyp from the D&C. So my ONC/Surgeon said he was optimistic lymph would be clear and they were.

And upon pathology after the hysterectomy I was Grade 1 Stage 1A; no myometrial invasion into the uterus and surgery ended my journey and now I go every 3 to 4 months to the oncologist for an internal check up.

I read my report on my chart before my doctor even called me so if you have access to your my chart, maybe you can check it out; and there will be more information there.

The unknown is the worst part - I was nearly catatonic and in a disassociative state for the six weeks between the cancer diagnosis and my hysterectomy, and I would burst into tears at any random time. It was hard to do anything and my little one was 11 and I had to be present to take care of my child and it was very difficult mentally...as we all here know.

But. Even if you have a more advanced cancer, you will attack it with a plan, but not knowing where you stage is terrifying.