r/endometrialcancer • u/Ready-Sherbet-2741 • 23d ago

Newly diagnosed high grade serous carcinoma

I am now waiting for scan results to check spread. The stats on this cancer are terrible. I am 56 years old.

My symptom journey started with mild but persistent pelvic pain. Also started having changes in BMs. More D. Also, worsening insomnia. After a few weeks, I went to doctor and ultrasound showed 6mm lining but otherwise normal. Spotted blood with a BM then GP ordered a CT scan. Normal. Did a Pap smear also normal. A few weeks later a big bleed and went to ED. Then I was referred for a biopsy. I opted to go D&C/Hysteroscopy which happened last Wednesday. Gyno told me it looked like cancer after I woke up. Pathology confirmed the cancer.

Now a lot of crying and anxiety that is uncontrollable. Facing mortality with chronic insomnia is just bad. I share my home with my wonderful brother and one of my adult children still lives with me. I was widowed at 35 so my little family is everything. I am so upset that my children face losing their remaining parent. my adult child who lives at home is my best buddy.

I am being referred to the Gynaecology oncology team at my local hospital next week. Any tips for coping? Does anyone know why the cancer causes insomnia? medication?

21 Upvotes
  • permalink
  • reddit

97% Upvoted

57 comments sorted by

View all comments

Show parent comments

6

u/mandasee 23d ago

Lots of good advice but if it’s actually serous, more than a hysterectomy is always needed. It’s very different than other types of endometrial cancer.

3

u/Glittering_Hurry236 23d ago edited 23d ago

Yup. OP will have to wait and see with more information. So far it's just confirmed cancer. Hopefully it's not aggressive and maybe OP can find out Figo score.

I knew Figo score and what type after my polypectomy, DNC during the operative hysteroscopy.

4

u/CABB2020 23d ago

serous is always grade 3, so as the redditor above said, there is always more than a hysterectomy. op already knows it's serous, so, she isn't waiting to find that out.

3

u/Glittering_Hurry236 23d ago

Yes OP and I chatted below. I didn't know serous was always Grade 3. Hopefully she caught it early and can get a plan going. The waiting to stage and not knowing is the toughest mental place.