r/endometrialcancer • u/Ready-Sherbet-2741 • 24d ago

Newly diagnosed high grade serous carcinoma

I am now waiting for scan results to check spread. The stats on this cancer are terrible. I am 56 years old.

My symptom journey started with mild but persistent pelvic pain. Also started having changes in BMs. More D. Also, worsening insomnia. After a few weeks, I went to doctor and ultrasound showed 6mm lining but otherwise normal. Spotted blood with a BM then GP ordered a CT scan. Normal. Did a Pap smear also normal. A few weeks later a big bleed and went to ED. Then I was referred for a biopsy. I opted to go D&C/Hysteroscopy which happened last Wednesday. Gyno told me it looked like cancer after I woke up. Pathology confirmed the cancer.

Now a lot of crying and anxiety that is uncontrollable. Facing mortality with chronic insomnia is just bad. I share my home with my wonderful brother and one of my adult children still lives with me. I was widowed at 35 so my little family is everything. I am so upset that my children face losing their remaining parent. my adult child who lives at home is my best buddy.

I am being referred to the Gynaecology oncology team at my local hospital next week. Any tips for coping? Does anyone know why the cancer causes insomnia? medication?

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u/mcmurrml 24d ago

Hold on a minute. This cancer doesn't mean you are going anywhere. I know it is scary hearing it. Hopefully you will get more info on staging and treatment next week.

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u/Ready-Sherbet-2741 24d ago

thanks for saying that. I looked at the stats and got so depressed.

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u/Good_Vast4993 24d ago

The stats are old. There have been advancements in treatment for this cancer in the last five years. And more are coming! I have it as well. Don’t look at stats. You are unique and hopefully will have a unique positive response to treatment. Best wishes and stay in touch. We’re here for you.

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u/Ready-Sherbet-2741 24d ago

That really helps! The stats sent me into a doom spiral but the lovely folks on here have set me straight. im feeling a bit more positive and trying to concentrate on what’s next.