Diagnosed on 8/1. I had an ultrasound yesterday that shows a tumor in the uterus and a 36mm endometrial lining. According to the doctor 36mm is way abnormal. CT scan in scheduled for 8/28. I am curious what others experienced with the CT scan? Did it show more than the ultrasound? How thick was your lining? Sorry for all the questions. I am just trying to wrap my mind around all of this.
This is what I had! And mine was 22mm as well i can’t recall exactly but i think normal is 10mm or less
Ik i also have pcos so i was skipping periods but the lining was still there and kept growing and cells mutating into the adenocarcinoma
I did have a biopsy through a D&C procedure, had ultrasounds, an MRI to see if there was any myometrial invasion (where cancer has invaded from lining into uterine muscle wall)
We tried megestrol to see if it helped (for me it did not possibly because i also have pcos and messed up hormones because of it) — i refused to do IUD though it was given as an option because I 1. Dislike the idea and way IUDs are pushed on women because they ARE painful to insert and take out, come with risks like infection or puncturing the walls they are connected to etc etc and I was not concerned about preserving fertility like my dr kept pushing on me (I’m 30F), i was fine adopting if i ever wanted kids in the future. Also IUD does not stop cancer it just prevents the hysterectomy temporarily if the caver reacts to hormone based treatments (which mine did not as shown by the megestrol failure), even after having a D&C procedure, and taking megestrol for 6 months we did another in office biopsy and the adenocarcinoma had come back despite clearing it out with the D&C.
The only way to 100% get rid of the cancer without risks was through hysterectomy. I kept my ovaries. I had my surgery in June.
My lining was 43mm thick. Biopsy said grade 1 adenocarcinoma. Post hysto was grade 2, stage 1b with 64% myometrial invasion and the tumor was 7cm or the size of an apple.
I wouldn’t get too in the weeds with the thickness that’s been extrapolated from the ultrasound for correlating to a final grade/stage of cancer. For one, your lining thickness can fluctuate even if you’re postmenopausal. Secondly, it’s an educated measurement, but not 100% exact. The variation of where and how the ultrasound tech measures the endometrial lining can greatly affect this number.
My CT after the TVUS confirmed that I had a mass, it was big but didn’t identify any suspicious areas in the pelvic region. This correlated with the final post op pathology report.
The surgery is scheduled for Sept 8th. They found the attached information in my medical records chart from May 14th 2016. Apparently, this has been going since 2016. My family doctor left the practice and forgot to inform me. I am angry and worried. *
Right after biopsy results, the gynecologist ordered a CT scan which I had done right before I got my appointment with the gyn. Oncologist. I remember saying, I guess you don’t have those CT results yet, but he didn’t seem concerned because he said he wouldn’t have ordered a CT anyway. Nevertheless, for me when I saw my CT results on mychart, it was reassuring that the only thing noted was the endometrial abnormality- I don’t remember how large it was. I’m glad you are booked to have this taken care of- good luck and good recovery :).
June of 2024 I had a thick uterine lining. The pain got worse and worse. I found no one to help and then Aug 1 of that same year I had a biopsy. Five days later they said I had stage one endometrial cancer. I pushed to see an oncologist because the pain was horrible and I could barely get out of bed. I had surgery August 27 of 2024 and they said it was grade 3, but others said it was stage 3. 🤷🏼♀️. I started chemo October 21. I pray you feel better soon.
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u/SuperMarge 11d ago
Have you had any biopsies? If not how were you diagnosed with grade 1 endometrial cancer? What type of endometrial cancer do you have?