r/endometrialcancer • u/throwaway132289 • 18d ago

Lost another doctor

I have posted before. I was diagnosed with endometrial cancer early last year and had my hysterectomy in April. Fortunately I was grade 1 stage 1a. At my 4 week follow up with my gyn onc, I found out that the hospital had decided to close her department and end her contact (she was on locums) and she was leaving the state. She told me to just go to my regular gynecologist for my every 6 months follow up appointments. I had only met this gyn 2 months prior, but ok she's all I've got.

So I just tried to make my next appointment for October but couldn't do it online. I called scheduling and was told my Dr. left the practice 2 months ago, in a tone of voice like I should have known that already. I was not notified that she was leaving at all.

So I guess now I have no Dr. I am thinking of going to a different practice, mainly because the hospital this practice is associated with is doing some bad things for patient care. But I'm doubting another Dr. will take me as a new patient at this point.

Guess I needed to vent. Feeling very let down by doctors.

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u/mcmurrml 18d ago

You need to find an oncologist. Your doctor was wrong to tell you to go to a regular gyn. Until you are NED for five years you should be under the care and monitoring of an oncologist. A regular gyn is not trained in oncology for in case you were to have a reoccurrence. That can happen even at stage 1.

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u/juicy-mangoes 16d ago

What really? My mom was diagnosed with stage 1b and her oncologist also told her to get her regular checkups from gynaecologist. She still has some radiation to do but even that was up to my mom. They said if she got radiation her chances of recurrence would drop to 0-2% and if she didn’t it would be 8%. Her oncologist let my mom decide since it was below 9%

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u/mcmurrml 16d ago

Some doctors do things differently. The thing is sometimes the cancer can come back at an early stage. If she go backs to a regular doctor she should know and be aware of what signs to look for in case of reoccurrence.