r/endometrialcancer 18d ago

Mom recently diagnosed looking for hope

UPDATE: my mom had her hysterectomy. They assumed it to be a 4-5 hour surgery which ended up being 12 hours. They found cancer in her entire abdomen, her colon, her bowels, her pelvis and I want to say cervix. The surgeon was able to remove it all!!! Truly a miracle. She had way more disease than expected but he said it's all out and he doesn't suspect she'll need to do radiation just chemo to kill any cells that couple of been lingering. We are elated with the outcome

My mom was recently diagnosed with stage 4 endometrial sarcoma. Her doctor ignored her bleeding for two years telling her it was normal. She has been in so much pain for the past 3 weeks due to the tumor pressing into her bladder but has her hysterectomy scheduled on Monday if they can even do it. We are scared and lost. My mom is my best friend and the rock to our family. I'm only 31 with 3 small children and she is only 64. Looking for hope or what to expect. I read too much online and I'm scared shitless

14 Upvotes

32 comments sorted by

View all comments

16

u/sanityjanity 18d ago

I'm enraged that her doctor ignored bleeding and pain, and told a woman in her 60s that this was normal.  That's extra moronic.

I hope that they are able to complete the hysterectomy, as it will probably end the bleeding, and hopefully the pain as well.

A lot of us do much better after the surgery.  Don't believe too much of what you read online, but be prepared to attend her oncology appointments, and ask lots of questions 

2

u/AnyPumpkin2322 18d ago

Me too she also has had a fibroid for 10 years, post menopausal and bleeding which are all leading signs to endometrial sarcoma!!