r/endometrialcancer • u/juicy-mangoes • 3d ago
Mom was misdiagnosed with cancer but it was actually adenomyosis
We’re so confused but still extremely grateful. My mom had a total hysterectomy that removed her tubes and ovaries. She was diagnosed with stage 1b. Her results said that it was over 60% into her muscle wall.
This pathology result came a month ago. She was sent to an oncologist and she was gonna start radiation in September.
We just got a call today and they said that they examined her uterus again and the cancer was only a millimetre in her muscle wall. Apparently the 60% myometrial invasion wasn’t cancer. It was adenomyosis but they mistook it for cancer. We’re genuinely so confused at how they interpreted it wrong. This is exactly what it said in the recent report:
“While the endometrial tumor appears to extend widely into the myometrium, upon closer inspection this is noted to be within adenomyosis. Focally there appears to be myoinvasion extending less than 1 mm from adenomyosis within the inner half of the myometrium. No definitive invasion in the outer half is identified. This tumor is therefore considered to be stage pTa. There is strong positivity for ER in approximately 90% of the non squamous areas of the tumor”
Her oncologist said she will no longer need any type of treatment because this is stage 1a
Has anyone experienced something similar?
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u/MeanMugginMin Stage IB 3d ago
Holy crap! That is the best news ever! Also highly disturbing that such a mistake was made. I swear med care can be so sketchy these days! (I am SUPER biased because I've had major mistakes made. I had a stroke while in the hospital, which was denied and claimed it was anxiety, then before my cancer dx, a radiologist said my 14cm tumor was not there, it was my full bladder. My gyn onc called her and demanded an addendum to my scan report. I survived the cancer, but the stroke left me disabled.)