Dad has metastatic adenosquamous carcinoma

[u/Santaa_baby]

My dad has adenosquamous carcinoma but he looks fit and healthy no any pain or discomfort.

It’s been a rough week for us.My dad suffered few difficulties so he went for check up.They said they found few stones in his gallbladder.After that he immediately went for laparoscopic surgery then they found liver infiltration.They performed biopsy and the report came it’s stage 4 gallbladder cancer.It’s heartbreaking we’re still processing it.Surgeon told us it’s too late for surgery and we can only work with chemotherapy and immunotherapy.The doctors told us it’s very rare and aggressive in nature.I’m just 20 my life has just begun.God forbid I can’t imagine losing him but it’s a part of life.

Has anyone with metastatic gallbladder cancer has lived more than the time they’re given? Any suggestions for exercise,diet or anything would be appreciated.What else can we do to lengthen his life expectancy?

Thanks!

[u/bluedogdreams]

I’m sorry you and your dad are going through this. That’s very scary. I also recently found out I have gallbladder cancer but it’s stage 2. I don’t really have any answers for you, I just wanted to offer my sympathy and good wishes.

[u/Santaa_baby → u/bluedogdreams]

It’s very unfortunate.My sympathy and prayers to you too.Gall bladder cancer is very silent so it could not be detected in early stages for my dad.I hope you recover well.

[u/Ok_Cartographer5706]

I am sorry you are going through this. I was in your position over a year ago and processing the news is so hard. It’s been a year and 5 months since my dad started having symptoms and we found out what it was. They originally thought he may be able to have surgery and we were gutted when we found out that surgery wasn’t possible.

There maybe more than just chemo and immunotherapy for your dad. If it’s spread to the liver there is an ultrasound technology called hipsotripsy for liver tumours and there are drugs that can be used depending on results for DNA tests. My dad’s tumour had a mutation and it is now HER2+ and there is a combo of drugs that can be used for this rather than chemo.

I am wishing you and the family the best and happy to a see any questions about my family’s journey and mine as a daughter.

[u/Santaa_baby → u/Ok_Cartographer5706]

Thanks your suggestions are really appreciated.I am from 3rd world country in South Asia.I don’t know if the hipsotripsy you’ve mentioned is even in practice yet.As a cancer patient’s daughter it’s really hard to process all of this.I get panic attacks and anxiety whenever I have to visit my dad’s Oncologist.The hell happened so fast.Life is unpredictable.

[u/Ok_Cartographer5706 → u/Santaa_baby]

I think it’s only available in Hong Kong and not widely available in Asia at this time. I am so sorry you are going through this. My dad is entering hospice care and will pass within the next few weeks and I am having a hard time. It’s a very difficult journey. My suggestion is to try to spend as much quality time with him as possible. I spent so much time with my dad this past year and I don’t have any regrets because I made sure he knows about all of the things I love about him and all of things he did that I appreciated and meant a lot to me.