r/lungcancer 2d ago

Pre-diagnosis Lounge

4 Upvotes

(new thread posted every Friday)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a lung cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. šŸ¤


r/lungcancer 23d ago

Pre-diagnosis Lounge

4 Upvotes

(new thread posted every Friday)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a lung cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. šŸ¤


r/lungcancer 10h ago

SCLC - Hospice time

8 Upvotes

My mother (73F) was diagnosed with extensive SCLC in May, treated with chemo/immuno for 3 months and unfortunately has had rapid progression with new spread to the brain. She has opted for hospice and we began that this week. She is at peace, but as a caregiver I am curious for anyone who’s been through SCLC with loved ones, how long did they last on hospice?

I know everyone is different and it’s based on the patient, I am just looking for your experiences.


r/lungcancer 9h ago

Can you help decipher these notes?

5 Upvotes

Hi there, my dad was recently diagnosed with lung cancer at least stage 3. We’ve done all the tests and at a basic level I’ve been told his tumor is 6.3cm in diameter on upper right lung, nsclc squamous cell. I accessed his notes after the radio onco told me they suggested chemoradiation, but what exactly does this mean?

Doctor notes: ā€œDiscussed his case in Thoracic multidisciplinary tumor board, aside from large RULprimary, also bulky R hilar and 2R avid nodes, and suspicious 4R and 7 nodes, suggestive of multistation bulky N2 disease. Consensus was to proceed with EBUS and chemoradiationā€


r/lungcancer 20h ago

Looking to connect with families/patients with Small Cell Lung Cancer (SCLC) on EP chemo

5 Upvotes

Hello everyone,

My father (69M) has been recently diagnosed with Stage 3 Small Cell Lung Cancer (SCLC). We have started the standard EP chemotherapy regimen (Etoposide + Platinum) as advised by his oncologist in Aurobindo indore.

I’m reaching out to ask:

Has anyone here (or their relatives) gone through this same treatment?

What were your experiences with EP chemo (side effects, how manageable it was, what helped)?

Which doctors or cancer centers did you consult, and how was the care?

Did you try additional treatments (like radiation or immunotherapy) along with chemo, and how effective did you find them?

Any practical tips on nutrition, side-effect management, or emotional support that really helped?

We’re just trying to learn from real experiences while walking this path and would deeply appreciate if you could share your journey.

Thank you


r/lungcancer 1d ago

My experience upper right lobe lobectomy.

24 Upvotes

Non small cell lung cancer - upper right lobectomy. Robotic assisted thoracic surgery. Cancer was Stage 1a

Preop 6am: preop nurse inserted IV in arm. Anesthesiologist gave epidural shot in back (uncomfortable prick, but no painful). Talked to anesthesiologist and surgeon. Breathed in sleep potion once rolled to surgical room.

Day 1: woke up with 1) IV in arm 2) IV in artery front wrist. 3) IV in back of wrist 4) urine catheter 5) chest tube 6) 4 incisions plus chest tube incision. Placed me in room and chair. . Took chest xray in room. Stayed in chair until morning.

Day 2:. Morning. Removed artery IV. Removed urine catheter. Later. Took chest xray in room. Removed chest tube ( surprised didn’t hurt). Walked a little. I checked off all boxes. Took off all IVs and sent me home.

Day 3: sat up in recliner at home. Back burning and itch pain. Incisions fresh - pain. Walked and did breathing exercises.

Day 4: husband realized bumps along my right side and back -same side as incisions. Sent pics to doctor. Said come in right away. Have shingles too! Pain of shingle is rising. Day 5-14. Shingles pain went to #9 and incision pain blended in with shingles. Shingles trumped the pain.

Day 15-22. Shingles are clearing up and itch and pain is at a #2. Now I can feel my incisions healing up instead of shingles pain.

Day 23 (now). I feel like I am on my way to the rest of my healing journey. Now able to lay in bed. I have energy. Just able to put on bra 2 days ago. Cloths don’t bother me as much. Looking forward to brighter days.

Pathology. No cancer found. Lungs are inflated properly. Chest xray looked good.

Thought I’d contribute to community. I read countless experiences prior to my surgery and it helped me.


r/lungcancer 2d ago

My mom has 2 kinds of lung cancer.

11 Upvotes

My mom is 72 years old. We recently found out that she has two kinds of lung cancer in her right lung. Adenocarcinoma is stage 4 and is outside of the lung... in a few lymph nodes in the mediastinum, possibly in the adrenal gland and there are nodules that were found in the pleura of the lung. The ones outside of the lung were biopsied several days ago...suspected to be the Adenocarcinoma. The second is the squamous cell and it's stage 2.

She's scared and I'm just in "let's get everything done and get chemo started before we worry" mode. She doesn't understand a thing that the doctors say, so I've been taking her to every appointment so I can make sure that we understand and can explain it a bit better.. and can make sure she's getting proper care. The oncologist told us that, without treatment, she only has a few or several months. (I can't remember exactly which one he said.) I asked the oncologist what her 5 year prognosis is and he said that she won't be here in 5 years. I didn't have the heart to ask about her 1 or even 2 year prognosis in front of her. I know that you never really do know, but she was already rather unhealthy to begin with, so I know that she may not even be here next year.
I feel bad for even asking the doctor that question, but it slipped right out of my mouth before I could even think about it. On the other hand, I kind of want to know what he thinks about her 1 or 2 year prognosis. I want to know what we're dealing with and what he thinks. I'm one of 6 of her children and they all ask me these questions and I just told them that it really doesn't look good, but we have to see how she does with the chemo and immunotherapy because we really don't know.

What questions should we be asking? Is there anything important that we should be asking?

She starts chemo on September 9th, which shocked us because he literally told us that, without treatment, she only has several months, but I understand that it takes a while for testing and such. I want to take her on a short trip to one of her favorite places, but I'm not sure how to plan anything around chemo and appointments because I have no idea how she'll be feeling.


r/lungcancer 3d ago

Question Anyone return to work with stage 4 lung cancer?

16 Upvotes

I have Stage 4 NSCL Ross 1 lung cancer I am currently on medical leave until the end of November. Currently I am doing chemo 4/6 rounds and after round 6 I’m supposed to start maintenance chemo every 3 weeks. I’m hoping in the new year I can switch to a targeted therapy

Anyone return to work full time ? Did you have accommodations?


r/lungcancer 3d ago

Possible Radiation Neuropathy - I'm Trying Not to Panic

5 Upvotes

For some context, dad was diagnosed Stage IIIa squamous cell NSCLC of the right upper lobe with rib invasion back in December 2024. It was a LARGE tumor, but nothing else showed up on his PET scan or brain MRI. He began treatment in mid-January, and after 30 rounds of radiation and 5 doses of chemo, his tumor had shrunk by 30%, and the doctor stated that it "looked like Swiss cheese in the middle because portions of the tumor have died and are necrotic." The doctor said that was good and a cause to celebrate. The doctor also said "we are still treating this with curative intent, and I think we've got a pretty good shot."

Before dad began treatment for his lung cancer, he was in INSANE amounts of pain - right in his shoulder blade area on his right side. He stayed drugged up with whatever pain medication they'd give him, plus he was drinking beer and taking THC gummies. The pain was so bad, he couldn't eat or sleep unless he just passed out. Within a week of starting radiation treatment, his pain decreased significantly. For the past 6 months, if anyone asks him to rate his pain from 0 to 10, he always says zero. He hasn't taken any pain medication (except for Tylenol) since early March, and hasn't really been drinking at all, and was only taking THC gummies to help with his appetite as needed.

Last week, Occupational Therapy came in to evaluate him to start back on PT and OT here at home. I didn't stay in the room, but I overheard the OT ask him "Does that hurt your shoulder a little bit?" And he said yes. He never mentioned pain to me.

At the beginning of this week, dad asked for a gummy. I asked if he was in pain, and he said "Nope! Just recreational!" and he laughed. PT came in to see him on Tuesday, and again, I didn't stay in the room. When PT was getting ready to leave, I heard him tell dad to "put ice on it for about 10 minutes every hour." When PT left, I asked what he needed ice for. He said his shoulder was hurting him, and it felt like a constant burning. That (to me) sounded like possible nerve pain. Dad's entire shoulder and armpit has been pretty numb since radiation treatment finished up - but we were warned by radiation oncology that he could get some radiation neuropathy at some point. They had prescribed him duloxetine back in January to help with pain and also some depressive symptoms he was having. He is still taking the duloxetine.

Today when dad woke up, I asked how he slept (I ask him this every morning, and most mornings he says he slept great). He said that when he woke up to go to the bathroom in the middle of the night, his lower back was stiff and hurting a little bit. I asked if he needed me to do anything to help and he said no, he'd be alright he just needed to loosen up. Around 3 o'clock today, he went and laid down in bed. He normally goes to lay down around 4:30-5 (he watches movies, eats dinner in bed, and then goes to sleep - but 3 is pretty early). I went to check on him, and he said that his shoulder was hurting him pretty bad. I asked him to describe the pain, and he said "I don't know, it just hurts! It hurts so bad, I feel like I need to get up and walk around the room." I asked what he needed - he said he'd just taken one 650mg Tylenol. I asked if I could do anything to help and he said no. I mentioned that I had some SalonPas lidocaine patches (4% lidocaine) and asked if he wanted to try that. He said "What I want right now is a gummy!"

I got him a gummy, found the lidocaine patches and put one on him, and then I called the Oncology team. She asked him to rate his pain from 0 to 10, and he said 8. He had described his pain as an 8 back before he'd started treatment, so I was pretty shocked to hear him say 8. Back before treatment, he was pale, sweating, shaking and sick to his stomach with pain. Today's pain doesn't seem like level 8 pain, but I can't say for certain what kind of pain he'shaving. She also asked if it was stabbing, aching, burning... he said burning pain. She said that it sounded like nerve pain, but she'd reach out to his doc and get back to me.

By the time I'd gotten off the phone with the nurse, he was as pleasant as could be. Either the Tylenol or the lidocaine had kicked in - the gummy hadn't had enough time to do much. He said he'd finally gotten comfortable and he was good to go. I left him alone to rest, and the nurse called back and said the doctor had called in 5% lidocaine patches to the pharmacy, and they wanted him to get an Xray.

Once she mentioned imaging, I started panicking a little bit.

After chemo and radiation dad has been on monthly immunotherapy with Imfinzi (no targetable mutations). He lost a lot of weight before and during treatment, so the worst side effects have been weight loss and weakness. He's been getting stronger day by day, and has gained back about 10-15 pounds of his 40 pound weight loss.

Last month he had a bout of what we believe was gastritis (he has an appointment with a GI doctor in 2 weeks to figure out exactly what it was) that caused him to not eat hardly anything for several days. Because of that, he got pretty weak (thus PT and OT coming back for therapy). His oncologist paused his immunotherapy for the month of August and gave him a tapered prescription of Prednisone. He finished the prednisone last Thursday, and began feeling a bit of pain in his shoulder on Friday. The pain seems to have ramped up for the past week.

I'm scared to death that it could be progression ... but it could just as easily be radiation neuropathy. I'm taking him to get the Xray tomorrow, and hopefully we'll have an answer on Tuesday or Wednesday about next steps. He also has his next follow up and immunotherapy on the 8th.

Has anyone else dealt with radiation neuropathy? Does this sound like that? I'm trying not to freak out, but I freak out about everything, so.... haha.


r/lungcancer 3d ago

Question Mumma in her last stage

13 Upvotes

My mother has lung cancer diagnosed in october 2024. She took 4 sessions of chemo and then targeted therapy started with Gefitinib Tab. It worked well and tumor size decreased significantly. There was no other new metastasis. She had brain mets observed in 1st pet scan only. Then doc shifted to Osimertinib Tab so it will help with brain mets. But after 2 months, her left hand and leg got weak. When PET scan done again, her lung tumor was double the size it was before treatment. There was increase in brain lesion too which caused limbs weakness. Osimertinib was not working at all. But doc concentrated on brain lesion and radiosurgery was done to treat it. He told to continue Osimertinib during this time. Brain lesion was treated well, but Lung tumor got aggressive in mean time and in just 10 days after completing radiosurgery, there was massive pleural effusion in her cancerous lung. Oxygen Support was given in ICU and continued since 1 month. After we came for follow up, Doctor said that fluid is building up again and admitted to ICU. Her condition got better and shifted to other room where there was continuous saline given to her but her urine output was low. Suddenly she got really restless and O2 dropped below 85% with o2 support after 2 days. After again shifting to ICU, Doctor told that she has Congestive Heart Failure and there is no chance of her survival without ventilator or BiPAP. They used BiPAP, and her O2 is now around 88 to 92%. Doctor is continuously telling us that there is no chance now and will just extend her life with BiPAP. We were asked for consent yesterday to use ventilator, after discussing with other doctors, we said no for ventilator as it will be extreme discomfort for her. Already BiPAP mask is too tight that her face is swelled and there is deep mark of mask. We can't five her food or water because it needs removal of mask which makes her go extreme restless and o2 drops as low as 45%. Where did we fo wrong in this process that led to this much worsening of her condition?


r/lungcancer 3d ago

Question Second follow-up CT scan after 6 months of durvalumab - pneumonitis

5 Upvotes

My father was diagnosed with stage 3C lung cancer in October 2024.
Therapy: Chemotherapy and radiotherapy → result: tumor mass reduced from 7.5 cm to 4.5 cm.

He then started Durvalumab, initially twice a month, then once a month → first follow-up CT scan showed further reduction from 4.5 cm to 3,5 cm.
Second CT scan at 6 months: stable disease (a large area of parenchymal consolidation is observed with some associated bronchiectasis, mostly fibrotic in nature, in the apical-posterior segments of the right upper lung lobe, reduced in volume and related to post-radiation changes, with a heterogeneously hypodense area of pseudonodular morphology measuring about 35 mm corresponding to the known lesion, essentially stable. In the left lower lung lobe, multiple areas of parenchymal consolidation are noted, some with pseudonodular morphology, with perilobular aspects, predominantly peribronchovascular; findings consistent with foci of organizing pneumonia due to immunotherapy toxicity.)

The doctor has decided to temporarily stop the therapy and start a course of corticosteroids, and to reassess later the possibility of reintroducing Imfinzi.

Has anyone had similar experiences? Were you able to restart therapy without developing pneumonitis again?

My father is completely asymptomatic, feels well, and is able to walk. I honestly don’t know what to think. I am grateful that the disease is currently under control, but I don’t know what to expect in the future.


r/lungcancer 3d ago

Mom is half delirious

7 Upvotes

Man, I really want to run away. I’m going to lose my composure. I can’t tell if my mom is lucid or not - she prob has some delirium. She’s been accusing me of being an ingrate (and other nasty names). Shes been insisting she wants to go home and doesn’t want treatment anymore. I mean yes that matches what she wanted before she became a bit delirious, but now I’m not sure bc she was the one who wanted to keep treating too…my dad has already lost his shit multiple times. I’m so tired, but can’t sleep bc mom would wake me up and demand some things like a child (well can’t help with that when you are end stage). My dad is gonna lose his shit again when he gets here. Like legit the nurses noticed how he’s speaking for mom. And I’m stuck in the middle

Doctor says he’s comfortable discharging her today but just needs to arrange transport. I think my dad wants hospice facility but mom wants to go home. She keeps saying she wants the wheelchair. I’m so tired. But I can’t even complain because my dad has been dealing with this for three days straight and I just one. I just want to sleep on a bed. I woke up at 7 yesterday and spent the whole day stressed out trying to get to her. She thinks everyone including me wants her to die. Sigh


r/lungcancer 4d ago

Well this is the pits - just venting

23 Upvotes

UPDATE: MRI Brain was clear!! Yay. Next step VAT procedure next Tuesday. Probably spelling that wrong but it's not surgery- they're popping in a camera to see if there's invasion of the pleura ( chest wall) if so it's stage 4 and we'll have to rework the plan but at least no brain..mets to worry about. I'm happy with that. It's the small wins that I'll take for now.

Newly diagnosed invasive SCCa left lower lobe lung. At first I was positive this would be something I'd be able to handle. Not easily but not that difficult either. I worked scheduling new cancer patients for 27 years so I'm not prone to catastrophizing when I hear "Cancer". Especially with all the advances in lung cancer treatment over the last decade - keytruda is the bomb diggity! Anyways - I keep getting test results back and each one is worse than the last. Zero PD-L1, low Mutational burden score, PET shows an area of concern in the pleura so I'll need another ' fun with cameras' session next week and if the chest wall is involved - another biopsy. The part that scared me a bit is thinking it was likely a T2 and instead learning it's a T3 and likely T4; and the testing is showing immunotherapy won't work on me. My pft scores were terrible so the surgeon is not loving the idea of taking more of my lung as the other looks kinda crappy. Former smoker here. I quit years ago but there's been a lot of former smokers showing up with lung cancer.

I guess I need to start getting my affairs in order but every time I start I feel my brain lock down and refuse to even let me move. Slight exaggeration but I stood staring at my closet for 20 minutes today before walking away. I don't want to trauma dump on my family; they're goin through a lot right now. Guess I'll stop here. I just wanted to get it all down while it's on my mind ( like I'll forget it if I don't) and I think you'll all forgive me. Sending love to all my cancer brothers and sisters out there.


r/lungcancer 3d ago

How to interpret the liquid biopsy percentages?

5 Upvotes

Hello to all patients and carers/family members,

My mom was diagnosed with Stage IV NSCLC, metastases to bones and pleura. Her primary lung tumor was removed 4 years ago. Now she's getting carboplatin, pemetrexed and pembroluzimab (PD-L1 10% from a cell smear result).

She was not a good candidate for a tissue biopsy, therefore all we have is the liquid biopsy results for the mutations (SENTIS circulating tumor DNA). She only has KRAS p.G12V. In the report, it says that the mutation abundance is 1.60%. I have a background in molecular biology & genetics, but I don't get what this means. Is this abundance in all cell-free DNA or only in tumor DNA? I found that there are a lot of clinical trials with KRAS G12V. Would an abundance of 1.6% make sense to target?

Thanks a lot for your responses.


r/lungcancer 4d ago

Mum diagnosed stage 3b lung cancer with no chance of surgery

8 Upvotes

Hi guys Today my mum was diagnosed with stage 3b lung cancer with localised spread to lymphnodes. She was also diagnosed emphysema. They say they won't operate as her capacity of her lungs is to low, they also say it's unlikely they will do a biopsy based on low capacity of lungs too and have basically ruled out radiation too. They say chemo is the only option. Today I asked life expectancy he couldn't tell me then and there. I'm really unsure does anyone know life expectancy? It's all a massive shock. Does chemo work? Is that just to extend her life? First time we've dealt with cancer


r/lungcancer 4d ago

Seeking Support Aunt 53F Diagnosed With Stage 4

9 Upvotes

This is all happening so fast. A month ago my aunt went to the hospital complaining of shortness of breath. They discovered a pleural effusion, pulmonary embolism and spots in lungs. They biopsied the fluid and it came back positive for adenocarcinoma.

My mom called me a couple hours ago and let me know she has been hospitalized for pleural effusion again and they were planning to put her under to biopsy the lung and drain the fluid. The anesthesiologist doesn’t think she will wake up from anesthesia and are transferring her to a different hospital.

I’m 38 weeks pregnant and scheduled to give birth Friday. My mom was supposed to fly in from out of town and now it’s just up in the air. I’m scared for my mom and aunt. My grandma died from lung cancer at 53 as well. Except she lived a year after diagnosis. 😭


r/lungcancer 4d ago

Seeking Support Stage 4 NSCLC Ross 1 mutation

4 Upvotes

I was diagnosed with Stage 4 Lung Cancer 09/05/2024 at 36 years old female. I had a cough that didn’t go away. Did a X-ray was told it is pneumonia. I had a right side pleural effusion they drained some in hospital then gave me a plurex to drain at home. I was started on Eliquis to prevent blood clots and Augtyro targeted therapy.

Augtyro was working great for 8 months.now I am doing chemotherapy already completed 4 of the 6 sessions. My doctor wants me to continue with maintenance chemo after I finish round 6. I want to start another targeted therapy in the new year this one zidesamtinib. It’s good for patients who have already tried a different targeted therapy.

Anyone else have there targeted therapy stop working and what did you switch to? I would have been able to switch to a different targeted therapy but my doctor said it was off target resistance based on my CT scan

I have read stories from others with Ross1 targeted therapy working years and never stopping.

I’m trying to be hopeful starting a new targeted therapy in the new year, but I’m also worried it’s going to stop working again.


r/lungcancer 4d ago

Mom new diagnosis & pericardial effusion

3 Upvotes

My mom recently had a biopsy (2.5 weeks ago) on a lung nodule that was found on CT during follow up for her lymphoma (under active surveillance). The same day the biopsy came back for lung adenocarcinoma she was admitted to the hospital with severe abdominal pain that we found out was a large pericardial effusion. They drained that last Friday and the fluid was sent for cytology. We still haven't heard anything, but I can see the sample has a comment from the pathologist that it is suspicious for adenocarcinoma and to 'see the cytology report'. The cytology report isn't available yet. Does anyone know how long these usually take? I was expecting it to be back today. We are in Canada.

Of course, I've gone down a rabbit hole of lung cancer with an initial presentation of malignant pericardial effusion and the prognosis is extremely poor. I'm so worried about wasting time when she could be getting started on treatment. There's been no follow up from the medical oncologist although we do see her hematologist early next week. I'm so worried and I don't know if there is anything to be done to speed things up, I've called to book an appointment but they want to wait until the actual report is back, not just the comments. Any feedback or stories are appreciated.


r/lungcancer 5d ago

Seeking Support Mom diagnosed with stage 4 small cell lung cancer that’s metastasized. Only 57.

14 Upvotes

Hi there. My mom has been experiencing significant respiratory distress because of this cancer. Wondering if anyone has gone through similar with having breathing complications. She’s admitted to medical oncology and last night critical care needed to get involved as she was hypoxic and is now on hi flow requiring 70% oxygen 50 L/a min. They have been able to do 2 lasix doses and still did chemo today. Please tell me if anyone else has been in a similar situation with this cancer and if your loved one was able to pull through. I’m due with her first grand daughter in 3 months I just want her to make it. I haven’t read any similar experiences with this breathing complication.

Thanks.


r/lungcancer 5d ago

50years old diagnosed in May 2025 with PE.in my left lung&a 7.7cm mass in my right lung.only symptom was coughing up blood regularly.

15 Upvotes

Since being diagnosed the biopsy came back as stage 3 NSCLC. I've done 6 chemo infusions.the first 2 was with carboplatin&taxol.but the third one I had an allergic reaction to the taxol&almost went into shock.so they changed the taxol to a a abraxene.andbi had no more problems.radiation went well and the tumor was shrinking at such a rate that they had to adjust the radiation field 4 times. They stopped my treatment to give my body time te recover.i go for blood work tomorrow &for a scan on Friday.Surgery was never an option for me because the tumor was wrapped around my airways and arteries.So I'm just hoping that it w hasn't spread.Last pet scan only showed the one mass in the right lung.Hopefukly it has shrunk enough that they may be able to reset it. I'm not sure what is next,but my oncologist is saying probably 1 hour a week immunotherapy infusions for a year. Just hoping for the best.prays to all stay strong and try to stay positive.just because we have cancer doesn't mean cancer has us!!take care of your mental health as well as your body. I think most people don't realize that mental part of this journey is as hard and important as the physical. I believe you let your mind get convinced that it's over,then it will hard survival alot harder. Stay strong and positive. God bless you all. And good luck


r/lungcancer 5d ago

Targeted therapy no longer working

15 Upvotes

A family member was diagnosed with T2bN3M0 lung cancer a year ago. They were started on targeted therapy Osimertinib (otherwise called Tagrisso I believe). Initially this showed some really positive results, with the main mass reducing in size. However on the last scan, it showed the tumours have now increased in size. Now waiting to hear whether chemo/radiation will be the next steps. Has anyone else/family members also experienced targeted therapy no longer working? What treatment came next and how did this affect prognosis?


r/lungcancer 5d ago

Thanks For The Feedback!

7 Upvotes

That’s for all the feedback on my Lobectomy VATS surgery removing the upper right lobe. So much appreciate all the feedback, and can not believe so many folks have had this surgery.

The biggest thing from all the comments was I should 100% go buy a recliner. So that’s what I am going to do!!!! Any more suggestions?????


r/lungcancer 6d ago

Seeking Support Mom is going to hospice

14 Upvotes

Mom was hospitalized last Friday because her lungs have water and they needed to drain it. She hasn’t left and it’s unlikely she will now. She got pemetrexed Tuesday, but today the doctors say her cancer is likely so advanced that continual treatment will be dangerous (for context, she can’t even lie down because of the pain despite being on morphine). She can’t even get an MRI because of the pain, doctor thinks it’s likely her cancer has advanced far enough in the brain.

She also isn’t really eating right now and is either delirious or super sleepy. I got in a fight with my dad because I know my mom wants to be at home but dad wants her in a facility because he is afraid mom will eventually develop resistance to the oxy dosage and we won’t have morphine injection at the ready (he’s anxious - I can’t; he’s afraid she’ll develop resistance in the middle of the night and we won’t have anything. I mean fair but mom wants to be home for her last days???)

It’s so frustrating. Fuck cancer man. I think I’m literally going to die from a broken heart. I’m the youngest in my work / friends group but is the first one going thru death of a parent. So unfair. I saw how this disease ate my mom from the inside out and left her a skeleton with only skin and bones. Fuck this man.


r/lungcancer 6d ago

Good news on treatment assessment

36 Upvotes

Hi all. I’m so happy to share my scan done after round 3 shows the big mass has shrunk about 50%, I’m still doing round 4 to further shrink it and the oncologist says the thoracic surgeon will follow up with me now.I’ll see the oncologist again after surgery for maintenance plans. Surgery is what I wanted. The maintenance is because of risk of recurrence and two tiny nodules that shrank but could be an issue. I knew todays appt would be emotional, tears of joy much better than of disappointment. Just so glad to share a good news post after all and this and while the journey isn’t over it’s a huge step. I have faith and I so appreciate this group for all the posts—from tough to inspiring it’s been a comfort to share in the group and I am glad to have you all to walk with


r/lungcancer 6d ago

Severe pain after radiotherapy on femur

5 Upvotes

Mum was up whailing and crying in pain during the night. Strong painkillers seemed to take hours to work.

She does have MS too so I wonder if it’s nerve pain.

No sign of fever.

We wanted to call an ambulance but mum does not want to be anywhere near a&e - she has a fear of infection. I will of course call her oncology team but the office is closed as it’s a bank holiday here in the UK.

Did anyone else experience severe pain post radiotherapy?


r/lungcancer 6d ago

KRAS and BRAF question

5 Upvotes

If genomic testing identifies both KRAS and BRAF variants as non targetable, what does this mean?

Does it mean they cannot be treated at all?

The exact wording is:-

KRAS c.35G>A p.(Gly12Asp) variant detected

BRAF c.1396G>C p,(Gly466Arg) variant detected.

If they can be treated, what is the treatment?

Thank you.


r/lungcancer 7d ago

First appointment - any recommendations?

11 Upvotes

My mom (64F) was recently diagnosed with adenocarcinoma of the lung. We have not done a PET scan yet to determine the staging of the cancer we just know from a CT scan that there are three masses in her lung. She has both abdominal and back pain.

We were seeing a pulmonologist and have our first appointment with an oncologist tomorrow. Does anyone have anything they would recommend we ask? Is there anything I should look up beforehand?

We’re all just trying to process everything so any tips/recommendations of things to do would be appreciated. Also any tips on how to support her during this time would be appreciated as well. Thanks in advance.

Edit: We had the first appt with the oncologist and he had scheduled a liquid biopsy, brain MRI, and PET scan and is hoping to get the testing done this week and be back for an appointment next week to go over the results. Thanks to everyone who replied it definitely helped me to feel more prepared going into this.