r/lungcancer • u/ElodyDubois • Apr 02 '25
Seeking Support Small Cell Carcinoma
I see a lot of posts for Non-small cell diagnoses, but I was wondering if anyone is living with, or cared for someone who had small cell carcinoma, limited stage.
When my father was diagnosed one year ago today, he was given an estimate of 12-18 months with an aggressive treatment plan. He followed the plan and did chemo and radiation. It was very hard on him.
Since then, a new study came out that suggests life can be extended to an average of 24-33 months with immunotherapy. He started immunotherapy and will continue therapy for two years, as the cancer comes back within 2 years 95% of the time.
Even with treatment, this diagnosis feels like a death sentence. The treatment can extend the life but actual remission is unlikely. The 5 year survival rate for men is 2%.
Right now, dad seems happy, alert, he’s putting on weight and rooting for the lady gamecocks basketball team to bring home the championship.
It seems like when people do take a turn for the worse, it’s very quick and traumatic. I have a lot of anxiety even though he seems to be doing well today. Based on his original prognosis, he’s living a miracle.
I’d just like to hear from others who had this specific diagnosis or family affected by this diagnosis.
I can’t sleep and am just crying in my bed, searching for comfort and/or understanding. I want to be prepared.
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u/WalkingHorse NSCLC T2b, N0, M0 IIA 🫁 Currently NED Apr 02 '25
I don't know what to say other than as best you can stay in the moment with your dad. Outcomes are unique for every person with SCLC. Anticipating the worst is an easy mindset to fall into. No one is promised tomorrow. No one. As hard as it is, shake off the anticipatory grief. Best to your father and you. 🤍