r/lungcancer 12h ago

SCLC - Hospice time

My mother (73F) was diagnosed with extensive SCLC in May, treated with chemo/immuno for 3 months and unfortunately has had rapid progression with new spread to the brain. She has opted for hospice and we began that this week. She is at peace, but as a caregiver I am curious for anyone who’s been through SCLC with loved ones, how long did they last on hospice?

I know everyone is different and it’s based on the patient, I am just looking for your experiences.

9 Upvotes

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5

u/RoomEquivalent1 11h ago

This is not a personal experience, but in New York State, one would not qualify for hospice unless prognosis is within 6 months.

Hang in there OP

3

u/Safe-Bite-5867 11h ago

Thank you. We are in New York :) Doctors say “weeks to months” but that just seems so broad. I am a nurse and I can’t use my nurse logic with her; I know no one knows for sure. Thank you!

5

u/RoomEquivalent1 11h ago

When your mom goes into hospice, there will be nurses and case manger coming. You can ask them for their assessments too.

I asked my mom’s nurse. The nurse gave an estimate but emphasized “only God knows how long for sure.”

I’m sorry OP. This is a horrible disease. Fuck cancer

4

u/Azhul 9h ago

My prayers are with you and your family.

2

u/Safe-Bite-5867 8h ago

Thank you!

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u/missmypets 9h ago

My cousin's mom-in-law was diagnosed with sclc at a time when her Alzheimer's was beginning to cause her problems. It was decided that allowing her to die from the cancer was the most benign option. My memory is imperfect here but I think she lasted about 6 weeks- it may have been 4 weeks.

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u/Safe-Bite-5867 8h ago

Thank you. I’m sorry for your loss. Dementia is a terrible process. I hope she was peaceful in the end 🤍

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u/missmypets 8h ago

It was peaceful for her and hospice did a marvelous job of keeping her comfortable.

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u/LisaBeason 7h ago

My husband (58) passed on hospice after 5 days last December. From day of diagnosis until his passing was only 6 months. Still can’t believe it.

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u/Safe-Bite-5867 7h ago

I’m so sorry for your loss, Lisa. Thank you for sharing this with me. What a horrible disease. Sending love your way!