Hi Reddit, I am looking for any help or advice with a very good family friend who was recently diagnosed.

A little background, this is a 61 year old male with cerebral palsy and a learning disability. A few years ago, he had congestive heart failure. Since the heart failure, he’s been doing pretty well up until this diagnosis. Around May, he started having some issues with his walking (but having CP he hasn’t always been steady on his feet) but he described having pain, at first we thought maybe it was sciatica or something along those lines. In June, he had an appointment with his doctor to discuss the pain. However, before the appointment, he went to the hospital with a racing heart. It was there that we eventually found out he had spots on liver and his spine. The mass on his liver is what was causing the back pain. The oncologist said that the cancer was slow growing (20%) and the team of doctors decided that they would do a spinal surgery to remove the bigger tumor - luckily it hadn’t infiltrated the bone and they were able to remove the most of it. This was on July 3rd. Since then, his spinal incision has not healed and since he’s older, has the cp, and not in the best shape he’s been in rehabs trying to walk and get better. Last week, he went back to the hospital with a UTI, and just today his spinal incision was cleaned up, and the doctor said it wasn’t as bad as he thought. The biggest concern here is they said they couldn’t do any treatment until the incision healed which it sir hasn’t 2 months later, and now the mass on his liver has progressed and has gotten bigger. We are waiting to hear more from the oncologist, but they also mentioned palliative care. I know there must be other treatments out there for him, but it has been an absolute whirlwind on him and his family. I am unsure what else we can do - we are based in Northwest New Jersey. Any advice or suggestions would be very appreciated and helpful. I recommended seeing an endocrinologist because I have had a phemo before that was removed in 2020, and seeing an endocrinologist was extremely helpful. I’m not sure if this is in the same wheelhouse or if they should find a NET specialist.

Thank you!