r/sarcoma • u/RainS__ Synovial • 26d ago
New Diagnosis Needing help and insight about chemotherapy (Male 27)
Hi, I'm Male (27 years old) reasonably fit and healthy until I got diagnosed with synovial sarcoma about a month ago. I underwent surgery to remove the tumor located at my left armpit. Luckily highly local and no found metastasis from the scans.
My chemo treatment is starting in a few weeks time and will be given daily for 4 days and repeated every 21 days for 5 times. I'm receiving Doxorubicin + Ifosfamide + Mesna. I've searched it's also called the "AIM" protocol.
This is not something I know a lot about and would like to know more before my treatment. Has anyone done a similar protocol? How have you managed the side effects? A quick search online shouts that it's a hell of treatment and I'm bound to have the worst time; making me worried. Any chemo tips, heads up/what to expect, or personal experience with recovery is greatly appreciated.
Update: Thank you all for the generous response. I now get that it would be tough but not impossible especially with your valuable insights. I’ll keep this post updated as i move towards a cancer free life. Stay healthy, take care.
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u/ami_unalive_yet 26d ago
I did the VDC/IE protocol which includes the AIM protocol plus a few other chemotherapy meds. My main side effects were low rbc and low platelets so I had multiple transfusions. Nausea was also a side effect but that was controlled with nausea meds. I also lost my hair during this time. If you have specific questions feel free to reach out!