r/sarcoma • u/RainS__ Synovial • 25d ago
New Diagnosis Needing help and insight about chemotherapy (Male 27)
Hi, I'm Male (27 years old) reasonably fit and healthy until I got diagnosed with synovial sarcoma about a month ago. I underwent surgery to remove the tumor located at my left armpit. Luckily highly local and no found metastasis from the scans.
My chemo treatment is starting in a few weeks time and will be given daily for 4 days and repeated every 21 days for 5 times. I'm receiving Doxorubicin + Ifosfamide + Mesna. I've searched it's also called the "AIM" protocol.
This is not something I know a lot about and would like to know more before my treatment. Has anyone done a similar protocol? How have you managed the side effects? A quick search online shouts that it's a hell of treatment and I'm bound to have the worst time; making me worried. Any chemo tips, heads up/what to expect, or personal experience with recovery is greatly appreciated.
Update: Thank you all for the generous response. I now get that it would be tough but not impossible especially with your valuable insights. I’ll keep this post updated as i move towards a cancer free life. Stay healthy, take care.
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u/Nebby1988 21d ago
I am so sorry for the diagnostic.I had it in 2023,the bastard was on my right tight stage IIC-IIIA,high grade G3 ,big tumor 10cm/9cm/14cm still local Thank God.I had 3 sesions of AIM regiment then 35 sesions of radiotherapy(do the radio please)killed it,got it to 3cm/1cm/4cm after treatment and then surgery.I had to do 3 more sesions of chemo after surgery but manage to do just one sesion because the chemo was killing me littery.We are diffrent so the side effects are diffrent.I lost my hair,didn't need blood transffusions,not so much mouth sores,but I didn't eat much because of the metal taste I had in my mouth.Try to drink lemon juice for the nasuea,eat as much as you can,sleep and have faith!You can beat it!🤗