r/testicularcancer • u/Silent_Data_9468 • 5d ago

Abdominopelvic CtScan result

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Just received this result via email. Will be meeting with our oncology tomorrow. With this, what would happen next? My husband was done with the 3xBEP. Hope to hear your stories as I didn't know what to think anymore.

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u/acaron2020 Survivor (Chemotherapy/RPLND) 5d ago

Not a doc

Likely RPLND would be the next step due to the nodules in the abdomen. Based on the pathology found from the RPLND, they’d either do surveillance or more chemo after that

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u/Silent_Data_9468 5d ago

Thank you 🙏

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u/StatisticianBig4137 5d ago

WHAT WAS PAHOLOGY CANCER TYPE

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u/Silent_Data_9468 5d ago

He has EC 32% , seminoma 27%, teratoma 26%, yolk sac 15%

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u/sortaknotty Survivor (Chemotherapy/RPLND) 5d ago

Not a Dr.
Sorry you and your husband have to go through this! Its concerning to me that the iliac and retroperitneal masses got larger during chemo treatments. I would suggest reaching out to Dr Einhorn at Indiana University, if your husband isnt already being treated at a very highly regard treatment center.

I had a similarly sized , but smaller retroperitneal mass. Its considered a very large mass for TC. The physical size of the mass can physically impede bodily functions like bowel movements and passing urine by compressing vessel. Your husband needs expert care. There are surgeons and institutions that routinely deal with cases similar to your husband's and have successful outcomes. Often local oncologists can consult with world class experts and handle the chemo aspect, while the surgical aspects are best handled at high volume centers that routinely perform RPLND.

Good luck!

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u/Silent_Data_9468 5d ago

Thank you so much for your kind words. Appreciated it a lot.

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u/OneEngine7433 5d ago

Not a doc, but my guess is RPLND. The growing nodule could be terraroma. They don’t respond to chemo, but can be surgically removed.

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u/Silent_Data_9468 5d ago

Thank you.. I guess there's no other way than surgery..

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u/OneEngine7433 5d ago

Yeah not pleasant. But thankfully it’s highly effective.

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u/SDL1238 5d ago

As others have stated, sounds like RPLND is next step. Sorry to read his tumour in abdomen did not shrink from BEP. Although, the BEP likely killed any ant cancer which is too small to show on scans. Good luck with everything!

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u/Silent_Data_9468 5d ago

Thank you.. hope we all get through this in a positive way 🙏

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u/fixed_night_turn419 Survivor (Chemotherapy) 4d ago

Not a doc either.

Definitely some good comments here. Google search on “growing teratoma syndrome.” This could be a possibility. Basically it means RPLND is likely next, as some others suggested.

Definitely consult with a high volume center, Indiana, Memorial Sloan, with RPLND experience. 💪

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u/Silent_Data_9468 4d ago

Thank you 🙏